- Kate McTavish
Hi, I am seeking a support network to share and hear other peoples experiences about cancer in there family and loved ones.
My family history of cancer is on both my mother and fathers side as well as my bother. My mother died (1995) of breast cancer (41 yrs first diagnosis) at the age of 49 after a long struggle through six additional secondary cancer diagnosis's, that we battled like valkyrie women together. I was the daughter that held the space and walked the path with mum, went to the chemo, radiation and surgery held her hand, shaved her head, cried together, laughed together, wondered together, waited in the room holding her jewellery for a miracle to just stay together.
My father was also diagnosed with cancer age 61 with stomach cancer, and had his stomach removed. My brother has had a malignant carcinoma removed from his back. My maternal Aunty had ovarian cancer in her 20s and my maternal uncle died from cancer, also my paternal uncle has just died cancer. What I'm looking for are other people that have a similar cancer experiences to talk and share. What's been happening lately is that as I get older my feelings of perceived risk are getting more intense, as I am only 2 years off the time my mother was diagnosed with breast cancer.
I would like to meet other people that have had experiences with cancer how they manage there feelings and share stories, philosophical concepts, decisions and outcomes. It would help me greatly to connect in this way.
Hope to talk soon, Kate.Breast CancerMy loved one or someone I know has cancer
My 9 year old son was recently diagnosed with a Germinoma Pineal Gland Tumour & is about to start radiationBrain tumourMy loved one or someone I know has cancer
I am 48 years young, I'm a wife and mother and grandmother of 9 beautiful grandchildren. I work in dissability, Well I did before mothers day 2009 when I found a lumpin my left breast and will again as soon as I get the all clear to return to work. I am looking forward to returning to my life. I am also on Avastan/Bevacizumab trials which will finish in June.Breast CancerI am a survivor
My husband has a grade 3 brain tumour that we have been treating since 2004. He has had 3 brain operations, radiation and of course chemoBrain tumourMy loved one or someone I know has cancer
You’ve got a month to live!!!
Hello, my name is Paul Litchfield and I wanted to share with you all my story.
Late November 2008 I was diagnosed with Squamous cell carcinoma of the head and neck. Specifically affecting my tongue and 3 lymph nodes in my neck. After all the various tests you get with this kind of news. I was told the tumour was 8cm and growing fast. Then I was told there was nothing they could do for me and was given about one month to live. Thus began a terrible time of coming to grips with this devastating news. How to tell my wife, family and friends. The first thing I did was tell the doctors, No it’s not going to play out that way. Figure something else out. Find some way to give me some time. After many discussions it was agreed that I would receive some chemo and see how that went. Well a Miracle occurred and the tumour shrank by about half from one dose. After that they said well okay have more chemo and now you can have some radiotherapy, So began 7 weeks of intensive radiotherapy 5 days a week, combined with three weeks of chemo, various types and by the time it was all over the tumour was completely gone from my tongue, all that was left was the three lymph nodes still having not shrunk completely, so after I recovered from all that I had a partial resection done on my neck to remove the affected lymph nodes. So now I am in recovery from all of that. The last PET scan I had a couple of weeks ago was 100% clear and the doctor said come back in a year!
Well that was the mechanics of the Cancer. The reality was very different. The Chemo, even though it shrank my tumour was very hard on me physically and mentally. I had terrible hallucinations, even at one point “seeing my wife die in front of me” At that point I went insane for awhile, but gradually recovered enough sense to see it was just a hallucination. As I said I had to face the realities of my situation and truly without the many forms of support from my wonderful wife, family and friends gave me, I don’t think I would have survived it. But interestingly enough I “knew” from the initial diagnosis that this was not the end for me yet. That’s why I told the doctors, no it’s not going to play out the way they were telling me it would. Where this certainty came from I do not really know, just that it was there. Every time I went to see the doctor, I asked him, how I’m doing Doc, he would shake his head and say Mr Litchfield, I’m sorry but I can’t change my mind you are still going to die, maybe not quite so soon but no more than a couple of months at most. On my last visit he said to me well all I can say is you’re a better poker player than I am, I put my cards on the table and you dealt me a better hand. Whatever you are doing do not stop.
And that brings me to what was I doing during all this time and did it and does it have anything to do with not only my survival, but my continued recovery as well.
For the last 18 years I had been working as a healer. Though now am fully retired. Specifically a form of Chinese healing called Chi Gong. My wife and I have treated many patients over the years many with serious problems such as my own. Some people survive cancer some do not. I don’t think there is any one reason why this happens, but it is clear to me that some things help and others do not. For me personally to find myself with cancer was a huge shock as I was doing as many so called good things to keep myself as well as possible, meditating every day, good diet, plenty of exercise, trying to be a better person, and yet I got a typical smokers cancer, amusing as I had never smoked a day in my life. Of course there was the occasional medicinal wine and I do mean occasional. And apparently if there is a localised infection in the area alcohol can play a part in the development of this type of cancer and I actually did have a burn in my throat from some food that was too hot and got caught in my throat which was taking a long time to heal. But there were also things from my past that haunted me and which despite many attempts to free myself from their effects I was always somewhat sad, fearful and angry at life for what I considered things not my fault! But I have come to see that and (again I stress this is just my point of view,) that while there may be no actual plan of life, things do seem to occur in a perfectly timed manner. And I have come to accept that the things that were deepest in my heart did have a definite effect on my health and it is also clear to me that I could have done a lot more than I was doing, particularly when it came to meditating more. My wife was always complaining and rightly so that I was very good at sussing out other people’s problems and doing what I could to help them, but very bad at doing the same for myself!!!
During my ordeal whenever I could I would sit or lie down, more often lying down and do a meditation called the Golden Light Meditation. Basically all it involves is visualizing, telling yourself it’s there whatever works for you, that the whole body is enveloped and pervaded by a pure golden light that enters all the bodies’ organs and filters out all the rubbish in them and replacing that with all the things the body needs to heal and be healthy. Simply breathing in the good stuff and breathing out the bad stuff. Usually for an hour at a time sometimes more. I did this for as many hours a day as was possible for me, sometimes up to eight hours a day as I had nothing else to do. Gradually I felt stronger and could start to feel that I really would survive. I still do six hours a day. This is as necessary to me as having a shower and brushing my teeth. As well as this I really started to take responsibility for how my actions affected not just myself but everyone around me. My friends now tell me that the haunted look is gone and some barely recognize me. My closest friends remarking where did that angry arsehole go? All I know is that my future is possible now in a way that wasn’t before because I am free of so much baggage. How does this happen? Are there Miracles? Yes I believe there are and many prayers were said on my behalf, some from me to God, yes, but not the kind of prayer that begs for life and I will do this in exchange. No my prayers were more a deep feeling intuition that the Divine exists and perhaps something can change maybe not, but it’s okay either way, and I truly felt that it would be okay. Today my fear of the cancer returning is still there and my doctor was adamant that it would return by last Xmas, wrong again and sometimes I go a whole hour without thinking of it! Yet basically my life is returning to a kind of simple balance that I’m not sure I’ve ever experienced before, but am enjoying. So I’m writing this story with the hope that others can know it’s possible to survive this type of cancer.
Best regards to all.
Paul.Other (Specify)I am a survivor
I am a mum of a 8 year old, married with a busy life of work etc. I have a great family and good friends.Brain tumourMy loved one or someone I know has cancer
i'm not exactly sure just what i write here bout myself. im 26, enjoy PC gaming (mainly i play WoW) during my free time. ive been caring for my 61 year old father for the past few months now since he discovered he had cancer. I also lost my mother to cancer back in 1998. I guess the main reason im here is because im loosing friendships because my so called "friends" just couldn't understand how hard and demanding being a full time carer is.Other (Specify)My loved one or someone I know has cancer
- KatDoeBrain tumourMy loved one or someone I know has cancer
I was diagnosed in August 2011 with triple negative breast cancer.I finished treatment April 2012. Because this is such an agressive cancer I decided to take control and inform myself with as much knowledge I could find. The treatment was very agressive, very hard to cope, but important to me not to give into something that would deny me all I loved in life. The treatment for tnbc is different to hormone receptive and so is what you eat and what you avoid. Do what is for you. Knowledge is power, you can fight this one.Breast CancerI am a survivor
Lost the love of my life to cancerOther (Specify)My loved one or someone I know has cancer
- tanya164Bladder cancerMy loved one or someone I know has cancer
I am a gay women who's partner been operated on for Ovarian Cancer had chemo and now her cancer has returned.Ovarian cancerMy loved one or someone I know has cancer
- choc2ruleLung cancerMy loved one or someone I know has cancer
My Husband was diagnosed with Perotid Cancer on June 10th 2011, after surgery in July and 30 sessions of Radiation, we thought the ordeal was mostly over.
Due to the Radiation, my darling husband got gravely ill with a rare disease called Sweets Syndrome brought on by the radiation, which meant he was hospitalised for a week and put on very high doses of Steroid tablets. After that was under control, 9 months later we found another lump and was diagnosed as having a metastatic cancer in the same area, so after surgery in July this year, we are on the Radiation round about / rollercoaster ride again. 10 days down 15 to go.. and we are exhausted.Head and neck cancersMy loved one or someone I know has cancer
- Jan MPancreatic cancerI am a health professional
- Emma_GardnerBowel cancerI have cancer
im a mum of two boys who has survived cancer
i stay at home raising my boys whom my world not revolves around!!Non-Hodgkins LymphomaI am a survivor
51yr old female diagnosed with bowel cancer in may 2012. Have got support but other people have made me feel like I didnt really have cancer as I never needed chemo because surgery got all the tumour, also had full hysterectomy. I feel guilty and they also made me feel like bowel cancer is dirty because people dont like to discuss that area of the body.Bowel cancerI am a survivor
- Mum and GraemeBowel cancerMy loved one or someone I know has cancer
I was diagnosed with pre-B cell ALL in December 2005 while on a working holiday in London. While immunosuppressed, I caught a fungal infection called Aspergillus that affected my lungs and brain. After two weeks in an induced coma, and after being given less than 5% chance of survival, I ma back in Australia with continuing rehabilitation and medical involvement with a wide group of practitioners. I am also undertaking a Fine Arts degree through Open Uni Australia.LeukaemiaI am a survivor
I am aged 70,overian cancer dec2010.after surgery graded 3c borderline serious.carbo and taxol then 5mnt remission..now finishing gemzar,cisplatin and avastin..on 7th august. Can not get any more avastin unless I pay $2000.per treatment.so into remission.
Since I had cancer have taken up study and now into my 5th unit for a degree in Australian studies..keeps my mind off cancer. Live in west australia country.Ovarian cancerI have cancer
- mary.joCervical cancerI am a survivor
27 yrs old. Recently lost my husband to melanoma cancer.MelanomaMy loved one or someone I know has cancer
- HayeseyBowel cancerMy loved one or someone I know has cancer
- LeishieHead and neck cancersMy loved one or someone I know has cancer
- katewNoneI am a health professional
My mother in law was diagnosed with bowel, liver, lung and bone cancer 7 weeks ago, she has been placed in pallative care as the session of chemo knocked her so much, she is unable to weight bare without the assistance of 2 and a hoist now and is extremely fatigued and debilitated and looks like remaining their for the duration of her time with us.Bladder cancerMy loved one or someone I know has cancer
I am a mum to 6 children all age 6 and under, I have an amazing best friend in life who is also my partner and dad to our kids, And who i am going to lose soon due to terminal liver cancer.Liver cancerMy loved one or someone I know has cancer
- angie1987Bowel cancerMy loved one or someone I know has cancer
Positive for HNPCC - MSH2 gene. Many and varied cancers in family with this mutation. Two daughters positive (one died of Ovarian in 2002) and one son positive.Other (Specify)Other (Specify)
- janinePancreatic cancerMy loved one or someone I know has cancer
Hi I am a 65yr old male with CLL that dosent seem to want to go away with treatment although I did get 9 months clear but it now seems to be hear to stay and progressing
Kind regards KevinLeukaemiaI have cancer
My mum was diagnosed with Cancer last week. They are doing more tests to find out the extent of the diseaseOther (Specify)My loved one or someone I know has cancer
- ShellywellyBrain tumourMy loved one or someone I know has cancer
- Jay may
Im a professional artist married with three adult children and two lovely dogs. I have recently been diagnosed with colorectal cancer .Bowel cancerI have cancer
Newly Diagnosed St.4 Colorectal Cancer I have commenced Xeloda Chemo. I am now day 9 on this drug.Bowel cancerI have cancer
- Nicole in MelbourneBrain tumourMy loved one or someone I know has cancer
- Sunshine84Brain tumourMy loved one or someone I know has cancer
I'm a 49 year old woman, living in Central West NSW. I was diagnosed with "other" cancer on September 1, 2011. I had chemo & radiation treatment and have been given the "all clear" - BUT...I understand it's very common to experience depression/anxiety after surviving cancer & cancer treatment - that's what's happening to me now. I physically can't do the job I was doing before & I loved it, so I'm coming to terms with that, and miscellaneous "stuff".Other (Specify)I am a survivor
- Tez KarnaghanKidney cancerI have cancer
I am a staff member of Cancer Council TasmaniaNoneI am a health professional
In 2006 I was found to have had cancer. A tumour was removed from my septum/nasal cavity. 12 months later I was required to undergo 4 surgeries in 6 weeks followed by 6 weeks of radiotherapy. I got a fright recently when a small growth was detected at the regular checkup but biopsy was all clear. I can tell you I was quite relieved!Head and neck cancersI am a survivor
I have 2 young children aged 3yrs and 6months. I love to read, play tennis, walk and spend time with my family.Cervical cancerI have cancer
I am a 41 yo mum of 3 beautiful kids (11, 9 & 20months)and I was diagnosed with anal cancer 3 Nov 08.
Chemo and radiation - It was a tough time with lots of horrible side effects too "delicate" to mention here ...lol....
I am now 6 months post treatment and absolutely living each day to the max. My skin has healed and I am appreciating the "new normal". I have just had scans and colonoscopy (18/8/09)and there is no tumour.... very relieved! My energy levels are starting to return and I have just signed up for a soccer team - something my kids find hilarious!
My last check up scan has found cancer in my thyroid. Thankfully completely unrelated to my first cancer. I've had a hemi thyroidectomy last month and am now booked in to have the rest taken out in December and the radioactive iodine treatment in January.
Still playing soccer Still having a great time. Cancer still sux thoughOther (Specify)I am a survivor
My wonderful Dad has brain and lung cancer. Diagnosed March 2011. Still hard to believe.Other (Specify)My loved one or someone I know has cancer
- nannaslifeHead and neck cancersI have cancer
- MonnersMelanomaI have cancer
Carer of GBM4 patientBrain tumourMy loved one or someone I know has cancer
- jaybeeeBowel cancerI have cancer
I have Leiomyosarcoma, a very rare form of cancer, that apparently stays with me for life and have been living with the condition for 8 years.Uterus cancerI have cancer
Well I am 45 years old I am a female I have one brother whom is currently not well and one sister, mother, grand mother and other close family members whom are very sick or passed from this disease (I call it the flu). I live in the southwest of Sydney with my only daughter, her husband and my lovely two grand children both boys. My reasons to enjoy life are my family.
"Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning." Albert EinsteinNon-Hodgkins LymphomaMy loved one or someone I know has cancer
- makielyOther (Specify)Other (Specify)
my mother has cancer and i live in a different stateBowel cancerMy loved one or someone I know has cancer
I would like to chat to anyone who has some knowledge about this rare type of TumourOther (Specify)My loved one or someone I know has cancer
- Miss Robyn
I am a 11 year cancer survivor - had pelvic radiation in 2001 - external for 5 weeks then brachytherapy for 17 hours.
still have emotional issues and side effects from the treatment.Cervical cancerI am a survivor
just started chemoLeukaemiaI have cancer
I found out I have BrCa2 mutation late last year, then had BSO surgery (removal of both ovaries and fallopian tubes) in March this year. I'm now considering whether to have further surgery - double mastectomy - or "just" continue with regular yearly surveillance. I'm also wondering about use of Tamoxifen - very hard to find out if this is still useful in my particular situation. My dad had breast cancer but has recovered well, fingers crossed.Other (Specify)Other (Specify)
I am a 60 year old female who lives with her 88year old mum on a horse farm in Western Sydney. I have non small cell lung cancer. My upper right lobe was removed in June and it was discovered that it had spread. I am currently half way through my chemo at Liverpool Hospital where they are exceptionally kind and caring.Lung cancerI have cancer
- Charlie Brown
38 year old married mum with 2 boys currently undergoing chemotherapy.Breast CancerI have cancer
- tambam74Pancreatic cancerMy loved one or someone I know has cancer
- TrudyVNoneMy loved one or someone I know has cancer
I am 64 years old, married with three adult children. I work full time as a classroom music teacher and a flute teacher. I have just finished writing a research thesis for a Master of Teaching and love my work, which was the basis for my thesis.Pancreatic cancerI have cancer
- debraBowel cancerMy loved one or someone I know has cancer
- EurekagalBowel cancerI am a survivor
- nbarchamNoneMy loved one or someone I know has cancer
- AlexisNoneMy loved one or someone I know has cancer
- RhianNoneMy loved one or someone I know has cancer
Husband has just been diagnosied with T3 bowel cancerBowel cancerMy loved one or someone I know has cancer
Diagnosed with RCC in September 2010 at age 39. Mother of two boysKidney cancerI am a survivor
my husband has dlbcl and i am also helping my single daughter out with her 11yr old son who has aspergersNon-Hodgkins LymphomaMy loved one or someone I know has cancer
- bree_v85Breast CancerMy loved one or someone I know has cancer
- Mel GBowel cancerMy loved one or someone I know has cancer
I am caring for my husband who has extensive small cell lung cancer and would like to talk on line with other carersLung cancerMy loved one or someone I know has cancer
- benbraveryBowel cancerI have cancer
- deb rob
friend of emmaBowel cancerMy loved one or someone I know has cancer
I recently lost my soul mate & our children lost their Daddy. He was so very inspirational & brave. We are so blessed to have been privileged to live our life beside him xoHead and neck cancersOther (Specify)
RetiredNoneMy loved one or someone I know has cancer
Diagnosed with papillary Thyroid cancer. Just had total thyroidectomy, neck dysection and limph nodes removed. Cancer has now metatstified. Waitiing for nuclear medicine treatment and CT scan.Thyroid cancerI have cancer
- jodiemillsBowel cancerMy loved one or someone I know has cancer
I was diagnosed in 1998. I have had surgeries, radio isotopes, chemotherapy,...currently only on sandostatin. No further treatment available for me. Numerous tumours in major organs and bones.
Married with 2 daughters and 5 grandchildren. Living in Brisbane.Bowel cancerI have cancer
My eldest son (30) was diagnosed with Thymus cancer in 2006 and tumours were removed / chemo and radium then and again in 2009. The cancer has returned and he has several tumours and has been told he is terminal. He has been in the defence force since he left school at 18. Myself and his siblings are struggling to relate to him, he will not accept any counselling and is pushing us away.
While we realise that he is going through a hell of a time, we love him and want to be there for him. I would really appreciate some assistance as we want to spend the time he has left with him.
Lyn.Other (Specify)I have cancer
Live in rural NSW and was diagnosed with NETS in October 2010, currently tumours are stable and living life to the fullestOther (Specify)I have cancer
- MerkelCellCommunitySkin cancerOther (Specify)
- sassykaliUterus cancerI am a survivor
- Stephanie KavanaghProstate cancerMy loved one or someone I know has cancer
I'm my husband's only support,he has amyloidosis and is one day 2 of his 2nd rd of chemo.I have 2 children one lives in QLD and my 16yo son lives at home with me.I've been with my husband Dave for 25 years and we are together 7/24 for pretty much all of it.I'm terrified and i don't want to lose him.We are each others only support.I suffer major depression,ptsd and anxiety/panic attacks all stemmed from childhood sexual abuse.I hit a low point[lower than usual]in 2004 and decided it was time to report my brother for it.I wasn't believed by my parents and other siblings and they wanted me out of their lives.My dad passed away from pancreatic cancer a couple of years later and i learnt this 2 days before his funeral..i didn't know he was even sick,no-one told me.My mum and i started talking again about a year and a half ago,she said she missed me.3 months later at the end of 2010 i had 3 mini strokes and i'm still recovering now.Last year easter tuesday,my husband had already been sick for a few months then and we didn't know what it was.He wouldn't be able to go from a sitting or lying position without collapsing but him being a MALE wouldn't go to a Dr.I'd been trying to get him to go for soooo long it was/is frustrating anyhow,on this day we had a knock on the door..i was out back on the pc with our son.I heard a weird noise and i thought i'd better check it out,i thought Dave had collapsed.I ran out the back room and turned down the passage,i made it half way down when i saw Dave pinned against the wall by 2 blokes,they were beating into him.At the same time i saw them,they saw me,the bigger bloke ran at me and beat and kicked me to the ground all the time screaming..give us your money,where's your money[dave and i are both on disability support and we didn't have any apart from the landlords money which was in the bedroom.After a few minutes of not getting anything the big bloke got angrier and frustrated,he said f this turns around opens a bag he apparently had and pulls out a rifle.He aimed it point blank in front of me.All i had time to do was scream.no and i shut my eyes.He pulled the trigger and i was flung back and my head smashed on the floor,he knocked me out,i thought i was dying.I come to when he woke me saying..are you ok.I realised he shot the gun off next to my head and the police retrived the bullet from my sons doorframe.The big guy then said,get me your handbag or i'm going to shoot your bloke and started reloading his gun,i screamed let me up i'll get it for you,and he did.When i was just about in the bedroom,my husband managed to get away from the other bloke and we both got in the room and dave slams the door closed,they were trying to get in.I ran to the window and started screaming,a couple of seconds later we hear the door slam and see them take off down the drive.I learnt dave was stabbed 4 times,we were both a mess,my son i'm happy to say was smart enough to sneak out the backdoor and hide.The police caught them 6 days later and the bloke who stabbed my husband was shot dead.I could write a stack of books on my life and the things that has happened.Amazing,i just want to be left alone...i'm quiet,shy don't like going out unless i have to and have a slight social phobia.And now this.It took my husbands foot and leg to swell up but he managed to see a doctor in january they just diagnosed this as amyloid about a month and a half ago and today is the first day of his 2nd round of chemo,and he is sick and i'm terrified and tired.Other (Specify)My loved one or someone I know has cancer
I am supporting a family member who lives with breast cancer.Breast CancerMy loved one or someone I know has cancer
- bbarchamNoneMy loved one or someone I know has cancer
Have been diagnosed with Herthle cell thyroid cancer - tumour was 4.6cm. Had one side of the thyroid out and the other side two weeks later. Have to have radio iodine therapy at St Vincents. Very scared and very depressed and alone. Mother in law said I would be "dead within two years" and I know I need to get motivated. Hard though!Thyroid cancerI have cancer
I have thyroid cancer. Operation to remove both thyroids was in September 2011. At the moment, I am on 6 monthly check up.Thyroid cancerI have cancer
- AGBowel cancerMy loved one or someone I know has cancer
Diagnosed with Acinic Cell Carcinoma Feb 12 surgery and 40 Rad treatments completed 6/12Head and neck cancersI have cancer
I am the partner of a man who has now been diagnosed with a re-currence of throat cancer. He lives in the US I live here in Australia.Other (Specify)My loved one or someone I know has cancer
secondary breast cancerBreast CancerI have cancer
- Struggling mummy
Diagnosed with multi focal papillary cancer waiting for RAI after total thyroidectomy end of May and oh so very scared.Thyroid cancerI have cancer
I am a carer of my husband who has cancer. We have an 11 year old daughter and live in Geraldton WA.Brain tumourMy loved one or someone I know has cancer
I have a mother who has mouth canerHead and neck cancersMy loved one or someone I know has cancer
28 year old caring for my husband with recently diagnosed brain tumour. We have an 18 month old son.Brain tumourMy loved one or someone I know has cancer
My dad has recently been diagnosed with inoperable lung cancer, which has spread to the lymph nodes. Is the first person close to me to ever be diagnosed. I am married with 2 bubs under 2 years of age.Lung cancerMy loved one or someone I know has cancer
- colleenBreast CancerI have cancer