Our community
jules jpI found the breast lump myself while on holidays. In Nov 2007 after fine needle biopsy and ultrasound, I was diagnosed with invasive ductal & lobular carcinoma grade 3, 22mm ER+ and PR+ 0/1 sentinel node biopsy. Lumpectomies incl wide excision to clear margins. Followed by FAC (6) and radiation (25) Tamoxifen 2008-2010. Currently enjoying life and living cancer free!
Breast CancerI am a survivor
tropicalMy husband was diagnosed with a frontoparietal GBM in June 2012.
Brain tumourMy loved one or someone I know has cancer
missbrookiePancreatic cancerMy loved one or someone I know has cancer
cazbarMy husband of 32 years has been diagnosed is terminal cancer and I am lost lonely not sure what to tell the kids Im working and don't want to be working as I want to spend all my time with him but he has not accepted what happening to him and if he has hes keeping it quiet I feel very lost
Bowel cancerMy loved one or someone I know has cancer
RubesMy mother suffered from a GBM
Brain tumourMy loved one or someone I know has cancer
kay living in fearBowel cancerMy loved one or someone I know has cancer
Steve55Head and neck cancersI am a survivor- maddie86
my boyfriend has recently been diagnosed with stage four bowel cancer. Im 23 and he's 22.
Bowel cancerMy loved one or someone I know has cancer
MollyBNon Small Cell Lung Cancer
BBC noseLung cancerI have cancer- MelanieBrain tumourMy loved one or someone I know has cancer
- ToniaKLung cancerMy loved one or someone I know has cancer
MartineBladder cancerMy loved one or someone I know has cancer
YazMy husband has been recently diagnosed with oesophagus cancer...it is also in stomach and at stage 4.
Other (Specify)My loved one or someone I know has cancer
anangelBreast CancerI have cancer- neenie
I'm a 54 yr old wife/mum and work part time. I love to paint/draw and use the computer.
Brain tumourI have cancer
fewrioustylesCervical cancerMy loved one or someone I know has cancer
tfox64Recently misdiagnosed with Lymphoma, now rediagnosed with a metastatic neuroendicrine carcinoma.
Other (Specify)I have cancer
Faith_n_hopeNon-Hodgkins LymphomaMy loved one or someone I know has cancer
CoraI was diagnosed with Thyroid Cancer (Papillary) at 23 and have since had a total Thyroidectomy, Left Neck Dissection and 3 doses of Radioactive Iodine and still, 3 years later, have several suspicious lymph nodes showing up in my most recent ultra sound.
Thyroid cancerI have cancer- edie
I have had cancer.
Bowel cancerI have cancer - cathy miller
My mum has a brain tumor which was operated on and now another one has come up. They won't be operating and I know it's terminal but I'm just looking for information as to how long she has. She presented at hospital with a headache a few days ago and now she is losing vision in one eye. I don't live in the same state and am wondering if I have time to pack up everything and move down there or if I should just get on a plane and visit.
Bladder cancerI have cancer
chatterdogThyroid cancerI have cancer
lambshankI have completed 30 radiation sessions for throat cancer, and am experiencing some nasty side effects despite going through the treatment well,
Head and neck cancersI have cancer- daddysgirlMelanomaMy loved one or someone I know has cancer
PatchedupBrain tumourI have cancer- Karen Rose
In 2007 at 46 yrs diagnosed with oral cancer. T4N1M0 Had 75% of tongue removed - neck dissection - flap from thigh. Radiotherapy & Chemo for 6 weeks, Diag with Osteoradionecrosis, Mandible jaw removed & reconstructed with bone from hip. Tongue flap redone. 30 Hyperbaric Oxygen Treatments. Looking forward to getting back into workforce part time when all my treatments are finished.
Head and neck cancersI have cancer
Nurture MassageI am a Remedial practitioner seeking to make a differnce for those with cancer. Connecting with prople and to appreciate their experiences. I am a mother of two daughters seeking a life balance of giving. My hands are my tool to those in need.
NoneI am a health professional- scottinthegarden
I am 44yo father of two (8yo girl and 4yo boy). I am caring for my wife who has just been diagnosed with multiple myeloma at age 39.
Multiple myelomaMy loved one or someone I know has cancer
Gaihttp://gaicomans.com Providing an avenue for Breast Cancer survivors to thrive and grow.
I was diagnosed in 2000 (aged 38) and given a one in ten shot of surviving. Not only have I survived beyond all expectations but I am now thriving in life that I absolutely love. I also volunteered in the Cancer Connect peer support program for five years.Breast CancerI am a survivor
jfk78I was diagnosed with NETS in June 2010 when I was 32 yrs old, at the time I had just had my second Daughter. Life came to a halt as we came to terms with my diagnosis, 2 weeks after diagnosis I had a large surgery that removed part of my liver, bowell, lymph nodes, gall bladder and appendix. Needless to say I felt as if I had been hit by a truck. I recovered well and have since been receiving monthly Lanreatide shots . I have changed my dirt and lifestyle and feel healthier than pre diagnosis, however everyday is a lesson in learning how to cope with an unknown future and at the same time planning and doing everything possible to be here for my daughters for as long as I can.
Other (Specify)I have cancer- bloodannie
i am a family member of a person with lechemia, could you tell me if there is anyone i could contact regarding some funding to help her with the cost of living. she only gets 440 p/f which doesnt even cover her rent. i would like to find away to help her, but im on a disability pension myself.
I have already lost my brother through brain cancer, a dear dear friend from lung cancer. 1 month later my dad with non-hodgkins, 2 weeks after that my cousin. and now my dear friend with lechemia.LeukaemiaOther (Specify) - paulined_cancer...
I am a staff member of Cancer Council NSW
NoneI am a health professional
viperswifecarer of husband with bowel cancer
Bowel cancerMy loved one or someone I know has cancer- Kylie Cameron
My sister-in-law was diagnosed with Adrenal Cancer 2 years ago while pregnant with their second child. As this cancer is extremely rare (only 600 cases reported world wide) it is hard to find support and funding to help fight Kirsty's battle.
I was hoping to meet other sufferers/survivors and hear their stories.
At the moment we are finding it extremely hard to pay for all the medical costs as my brother has been told he earns to much. But with all of the medical expenses, a house mortgage, car repayments and 2 children to feed, sometimes the money runs dry! It would be nice to meet others going through the same!Other (Specify)My loved one or someone I know has cancer
junasBowel cancerI have cancer
Josh Bonello 88I was diagnosed with Testicular Cancer in 2011. I decided that I wanted to do as much as possible for others out there who are also dealing with having cancer, not just testicular cancer, but any type of cancer. I started to blog my story so far, and have decided not leave anything out about my diagnosis and treatment. I am doing this in the hope that people can relate to my story, and it will help them get through whatever it is they may be feeling. If I can help ANYBODY, I know I will have made a difference.
Testicular cancerI am a survivor
Ron50Dx 1998 st3 c colon ca 6/13 lymph nodes pos. Surgery 48 weekly sessions chemo. Ca free since dx but with long term side effects of chemo
Bowel cancerI am a survivor
StarceeOther (Specify)I have cancer
The RowanAt the beginning of 2011 I was not feeling quite myself, but being a single person who lives by themself, I had to keep going as I had to keep a roof over my head and pay the bills.
I thought I was just a little run down and a bit anemic, so I took some iron tablets and multivitamins, gritted my teeth and pushed on until I got to the stage where I couldn't cross the road without having to sit down and catch my breath.
At the end of April 2011 I was nearly at the point of collapse and was admitted to hospital and given blood transfusions after a blood test showed that I had a high white cell count and a low red cell count.
After 11 days of being prodded and poked, I was diagnosed with Auto Immune Haemolitic Anemia (AIHA), but during the prodding and poking, they had performed a PET scan, and this ultimately found that I had stage 1 endometrial cancer.
In August 2011, I had a radical hysterectomy and my cancer was sucessfully removed, without the need for chemo or radiation therapy.
Those were the worst four months of my life! In that short period of time, I had been diagnosed with a serious blood disorder which required me to take large amounts of steroids and immuno supressants to treat it, I was made redundant from my job, and had surgery to remove cancer.
My head was realing, and with a family who seemed to only support me by phone, I learned to focus on each bit of information as it came, deal with it and move on to the next bit.
In a way, I was lucky that I fell ill with the AIHA, otherwise we would not have discovered the cancer until a much later stage. And being made redundant took the pressure off having to return to work too soon so that I could take the time I needed to recouperate.
As I am an office worker, I was able to return to the workforce towards the end of October, and I now have a steady routine again.
I am currently in remission for both the AIHA and cancer.
Uterus cancerI am a survivor- GMTDBrain tumourMy loved one or someone I know has cancer
femmeMy name is Femme, the mother of a beautiful daughter who was diagnosed with a malignant brain tumour (GBM) in Jan. 2006
Brain tumourMy loved one or someone I know has cancer
Ms JanI have a diagnosis of anal cancer. 50 years old, Kiwi, I have been living in Sydney for a couple of years. I'm haaving my treatment in New Zealand. This is where I have the best support, friends in most towns and family to stay with. I've thtree adult children and one has made his home my home for the duration of whatever happens.
Other (Specify)I have cancer
helenakcPre-authenticatedHi I am a sandgropper living in Switzerland. I was diagnosed with Stage 1 breast cancer 6 months ago and am struggling with it all. I am heading back to Perth in July and would like to be in touch with people who understand how it feels.
Breast CancerI have cancer
Sunshine006auMy beautiful brave father lost his battle with Head & Neck cancer on 06.02.12. I willmiss him forever.
Head and neck cancersMy loved one or someone I know has cancer
PamelaI lived in regional NSW and struggled to get a biopsy for a mouth ulcer I knew was bad. So relieved when diagnosed with SCC as I could finally get something done. Moved to Newcastle and had full depth surgery at side of mouth; inner cheek and 3 teeth removed; left neck lymph nodes removed (one cancerous); wrist graft and arm tendon to repair face; thigh graft to repair wrist; 30 sessions of radiotherapy. 11 months clear and counting
Head and neck cancersI am a survivor
Zen-moment48 years old, single parent of 2 beautiful sons, working part time, enjoying life.
Breast CancerI am a survivor
robfuscateOther (Specify)I have cancer
pdjonesI care for my fiancee who was diagnosed with lung cancer some time ago. She is so wonderful and I love her very much. Most of the time the big 'C' hardly enters our life but nevertheless is constantly present with Doctors, Specialists, and Supportive medical services to arrange and see. At other times it looms large: it has been a great lesson for me in just how important life is.
Lung cancerMy loved one or someone I know has cancer
LostLittleFoxMelanomaMy loved one or someone I know has cancer
MadisonMy husband has been diagnosed with cancer of the unknown primary. He has secondary cancer in both lungs and a rip. He has started chemotherapy yesterday and we will know in 2 months if it will work. Without the treatment he has been given a year to live.
So far he has no side effects from the chemo.Other (Specify)My loved one or someone I know has cancer
blacbethI'm a 47 year old woman, just recently told I have a non-functioning pancreatic islet cell tumour that is watchable! Told to lose weight and come back in 6 months to see what's happened! I have three children, I am a Lecturer, I'm studying for a Degree in Sociology. I write poetry, paint, and appreciate life!
Pancreatic cancerOther (Specify)- Terry MayBowel cancerOther (Specify)
craftyoneAfter 10 years (approx) of gastroscopies to find those nasty polyps and 2 small bowel ops (after colorectal cancer) I seem to be past all those nasties - YEAY!!!!!
I am living in country Victoria, retired in February this year, 2009, and thoroughly enjoying it.
I love doing lots of different craft work and am trying to create a veggie garden at a place which has pretty poor soil, so lots of building up.
I have been living in the country for just over a year - no traffic, not too many people and most very friendly.
Am very grateful to have survived this disease.I think I spoke a bit tooooo soon, have had two gastroscopies so far this year with more to come, some large polyps and medium polyps to be cut off with lots and lots of smaller ones to keep an eye on. I have had my thoughts confirmed, that when a section of my bowel is removed, the polyps just grow in the next section.
Oh well, maybe another 10 years before anything else major has to be done, I will enjoy life as it is right now.Bowel cancerI am a survivor
GeoffUProstate cancerI have cancer
Jo FergusonI had a total hysterectomy about 25 years ago, 3 months ago I was diagnosed with cervical cancer, had one operation late August and was advised they had not got all the cancer and that I needed to go to the Mater (Brisbane) and see another specialist.
After CT scans, PET scan and investigative surgery, I have been told this week my cancer is 1B1, moderately aggressive and I am to have another operation 16th November with the possibility of chemo and radiation treatment to follow.Cervical cancerI have cancer
stargazerIm 50 years of age. Married for 28 years.Have two children,boy 24 and a girl 21. I currently work in the hospital system I have been there now 8 years.
Bowel cancerMy loved one or someone I know has cancer
Beckle79My dad is currently battling stomach cancer
Other (Specify)My loved one or someone I know has cancer
michele1960I'm a 52 year old mum of two beautiful kids - 18 & 20. I have PNET - Pancreatic Neuroendocrine Tumours. I was diagnosed in May 2012. I have mets to my liver, where I had 4 tumours. They pretty much wrote me off saying it was inoperable and have about 12-15 months.
I had 5 rounds of chemo up till Oct 2012...Carboplatin and Etoposide...3 days a week every 3-4 weeks depending if my neutrophils were high enough. After regular CT scans the tumours hadn't responded how they expected and my oncologist decided to give surgery a go as they had remained static.
On Dec 10th 2012 I had a 10cm tumour removed from seg 2 of my liver as well as the 3 other smaller tumours..so lost about 50% of my liver and am scheduled for a Whipple early Feb this year - 2013 (in about 3 weeks).I've recovered well from the liver surgery but have to admit to being a tad nervous about the Whipple. I think the hardest with the rarity is not having any protocol to follow. .....Initially they said I live about 6 months, then it was 12 - 15 months and now a possibility of a few extra years if the surgery goes well. Which is fantastic news for me as I want to see as much of my children's lives as I can!
May 10 2012 - diagnosed (age 51) Pancreatic Neuroenocrine Tumor (poorly differentiated) which is the rarest type of PNET; multiple liver mets, Grade 3 tumors
May - Oct 2012- 5 cycles chemo, (3 days) Carboplatin & Etoposide
May - Oct - 4 CT scans showing no change in Tumor size
Oct 2012- scheduled for liver surgery in Dec to remove existing tumors
Nov 2012- MRI reveals 2 more liver tumors
Dec 10 2012 - liver resection removing 50% of liver with 10 x 9 cm Tumor and 3 smaller tumors. Margins clear histo results show tumors were now grade 2
Scheduled for Whipple procedure early March 2013Other (Specify)I have cancer
MausyfI have been diagnosed with Myeloma and am absolutely terrified and confused! Been advised to start chemo CTD, just waiting on an MRI under a general anaesthetic in Jan. I suffer badly with anxiety and am finding this is comsuming all my thoughts! Thanks
Multiple myelomaI have cancer
SellyA mother of three young children and a husband who has pancreatic cancer
Pancreatic cancerMy loved one or someone I know has cancer- WorrieddilHead and neck cancersMy loved one or someone I know has cancer
quocherroI have had invasive breast cancer with the lump removed, and clear margin and no progression to the limpth.
Breast CancerOther (Specify)- Irene Kwasha
I have been fortunate to be accepted as a Cancer Council Information Centre Volunteer.
NoneMy loved one or someone I know has cancer - LucyPA
I'm the youngest girl in a family of 6. I have 2 older sisters and a younger brother. My dad was diagnosed with lung cancer 6 months ago and my mum suffers from chronic back pain and has fibromialgia. Dad is 72 and, until now, has been a healthy, strong man. In fact, Drs have said to him that his heart is one of the strongest they've come across. We are hopeful that he'll come thru this well.
I'm self-employed, single and have two fur-babies of the kitty-kind, 5 chooks and 3 bunnies! I love my animals
Lung cancerMy loved one or someone I know has cancer - flightHodgkin's diseaseI am a survivor
paul_desiree46 years old
historically - very fit, average 1.5hrs day fitness activities
no family history of my type of cancerdiagnosed with 10cmx8cm lump in Apr 2010 following 17hrs in emergency with Kidney Stone
lump surgically removed in Apr 2010 - with right hemicolectomy
Nuclear studies and CT scans post surgery - diagnosed Carcinoid cancer, with additional 4 lesions in Liver
still undertaking further tests and scans to determine next stepsOther (Specify)I have cancer
ejbOther (Specify)My loved one or someone I know has cancer- GiraffeBrain tumourMy loved one or someone I know has cancer
katjackI am looking to help me, and maybe others by going on this.My partner died 10 mths are being diagnosed, and now I am trying to live a life without him and finding it very difficult at times.I miss him enormously. Am I lonely? No!..only for him!
Lung cancerOther (Specify)
JenAliMy sister was diagnosed with breast cancer at 37years and 5 years later had it in both breasts she died 13 years after her first diagnosis. My older sister has just been diagnosed at 62years of age with breast cancer. I am 50 years old and have had DCIS, ductal carcinoma insitu picked up on mammogram screening. I have had multiple opinions. 2 female specialists said double mastectomy and one femal spcialist said single mastectomy and 3 male specialists said breast conserving treatment with radiation. I just don't know waht to do!
Breast CancerI have cancer- joseph
Diagnosed with Prostate cancer in March 2009 (no active treatment)
Diagnosed with Carcinoid cancer in August 2009 (completed course of PRRT with combined chemotherapy in January 2013)Other (Specify)I have cancer
SymphonyLung cancerMy loved one or someone I know has cancer- sharond
I had a Breast Cancer lumpectomy, chemo and radiotherpay in 2002, a mastectomy and silicone implant reconstruction in 2009, and the other side mastectomy, reconstruction and more chemo in 2013.
Breast CancerI am a survivor
freetobemeI am a single mum and I've joined because I have a friend who is really going through a hard time, and I want to try help her. Her mum died a year ago of cancer and her husband is also dying of cancer, so she will loose him soon too. Shes been through hell and back and it hasn't finished with her yet. I feel so helpless, and sad for her. I just want to do something to help but don't know what to do. I am hoping to find some answers here.
Pancreatic cancerMy loved one or someone I know has cancer- Willi
Esophageal Cancer. I will be 52 in July and I am female. Right now (well as of last Friday anyway) it looks like I'm winning the fight.
Other (Specify)Other (Specify) - MangoBrain tumourMy loved one or someone I know has cancer
Meredith ArbonI was diagnosed with Adenoid Cystic Carcinoma in 2005 - on my right nasal septum. Since then, have had 4 more recurrences and 12 ops. After the last op in July 2112, biopsy came back with a "hybrid" result - ie Squamous Cell Carcinoma cells as well. Would love to contact any other SOUTH AUSTRALIANS with a similar diagnosis.
Head and neck cancersI have cancer
glenys48woodsBreast cancer has touched my life as I was diagnosed in June 2010 having both 2 surguries Lumpectomy and Mastctomy. Time hasn't given me any satisfations on having the recovery made for me. I haven't had kemo or radiation as I take a hormone tablet so I have got off lightly. The diagnoses was enough to send anyone to the moon. I have hated this experience of having the diagnoses and wished it didn't happen to me.
Breast CancerI am a survivor
LeeanneI have just found out I have bowel cancer which was quite a shock. Have had a colonoscopy, CT scan and MRI and just awaiting more tests before most probably radiotherapy/chemo for 4-6 weeks and then probably on to surgery. Looking to connect with others who have had similar experience
.Bowel cancerI have cancer- lesley_gSkin cancerI have cancer
samy114Other (Specify)My loved one or someone I know has cancer
TeacePre-authenticatedSaved!
NoneMy loved one or someone I know has cancer- wapwap48
I lost my first child when he was 1 year old to a brain tumour (PNET) in 2007. My mum (60) was diagnosed with advanced bowel cancer in 2010. I've been an active Cancer Council Volunteer since 2009, felt the need to give back after the counselling I received, and plus to raise money to beat this dreaded C word.
Brain tumourMy loved one or someone I know has cancer
s21314Pre-authenticatedBeing positive is the key. YOLO!
Bowel cancerI have cancer
tatsoii'm 35 years old and live with partner and daughter in northern nsw. In July 2012 my dad (59) had a craniotomy to remove a brain tumour. It was diagnosed as a Glioblastoma multiforme. (grade IV). It's been a a turbulent journey. So much sadness and disbelief. Such a shock in the beginning...and now it's the new normal...although i hate the fact so much.I try to spend lots of time with my dad. He's finished his treatment now (raditation and chemo). He's become depressed and is getting help for that....I've had some wonderful times with him in the last few months and hope for many many many more great times.
Brain tumourMy loved one or someone I know has cancer
manotoLeukaemiaI have cancer
supportivedaughterHi, im a year 12 student looking for help in supporting my mum who was just diagnosed with Melanoma a couple of weeks ago and people to talk to for when things get tough.
MelanomaMy loved one or someone I know has cancer
Garry Meistermale 58 married eight surviving children, seven grandchildren(currently).
retired from my own IT/Telecommunication business in 2011 after nephrectomy for kidney cancer (Grade 4 T3N0Mx) resulted in SMA and celiac arteries being removed. Not expected to live after vascular repair. 6 days in coma, 8 days in ICU intubated, dialysis, 6 weeks in hospital. vascular repair kinked 72% blocked, stented after 2 angiograms, stent kinked currently 50% blocked. Gall bladder cancer diagnosis in 2012, cholecystectomy and partial liver resection, tumour proved benign. Currently cancer free but left with serious gastro intestinal symptoms that make a normal life, work and travel difficult. I am a practicing Christian and a member of the Church of Jesus Christ of Latter day Saints (LDS/Mormon) where I have served in a number of leadership positions over the years. Currently writing a book about my experiences with a view to starting a support group for ICU survivors.
.Kidney cancerI am a survivor
dojinaI am a wife to Bill and mother to three adult children with 5 grandchildren. I love my community work and am working hard with the Cranbourne-Narre Relay for life 2013.
I also have a strong family history of Breast cancer, bowel cancer and Pancreatic cancer.Pancreatic cancerI have cancer
TiffyeHi iam 27 years old im a wife and mother of a 5 1/2 year old, 2 year old and a 7 week old i love and live for my family xo
Hodgkin's diseaseI have cancer
kayemcOvarian cancerI am a survivor- BonVivant
Inner city, highly indepedant, 1st diagnosed in '07 with recurrences approx every 2 yrs. Martini & classic cocktail enthusiast - owner of 2 chows - politicial junkie with style
Cervical cancerI have cancer
ellaI'm a wife mother of two and granmother to four teenagers and live in regional n.s.w.with my retired husband and our little moodle called tinker.
I love gardening, play table tennis twice a week, very involved with pink ladies at the hospital and go travelling in our motohome whenever possible and involved with our local church.
I was diagnosed with vipoma five years ago and because it is such a rare tumour i find it hard to get any information or be able to talk to anyone about the way I feel and what I should be doingT
Other (Specify)I have cancer
mariannefaithfulmy mother has oral cancer and has been sujected to a "series of unfortunate events"
Head and neck cancersMy loved one or someone I know has cancer
StephMy son Harry is 14 and last year was diagnosed with a JPA in his thalamus. He had surgery in June and they managed to get 80% but the price for that was an aquiried brain injury. We had to privatly do the rehab as the kids hospital would not treat us.
Now he is slowly getting more symptoms back and I want to connect with other parents who have had a similar journey.Brain tumourMy loved one or someone I know has cancer
warnerrandyPre-authenticatedMultiple myelomaI have cancer
MeggsieMarried, 58 yrs old, 4 grown up children, 7 grand children plus 2 step grand children, 1 great stepchild plu 3 more due this year..
Breast CancerI have cancer
LcarBreast CancerI have cancer- Wendy Walker
One of 6 children, Married with 3 kids and 4 grandkids.
Other (Specify)My loved one or someone I know has cancer
russbestyProstate cancerI am a survivor

