Our community
pimbokWas told I had a lump in my right buttock but highly unlikely it would be cancer. Had it out 5 weeks ago. Surgeon was excited because it was very rare type of tumor but nothing to worry about - just needed checking every 6 mths. GP hit the roof because it was cancer. Everything began in a mad rush - more scans, oncologist, planning for radiation etc. This bit has only happened in the last week and a half and I can't wrap my head around it. Keep crying even though I know it will all be fine.
Other (Specify)I have cancer
Tara CullOther (Specify)My loved one or someone I know has cancer- DPCPancreatic cancerMy loved one or someone I know has cancer
Nathaniel71I'm a 40 year old early childcare worker who loves music and dance. I have recently discovered I have cancer and am still trying to process it. I don't know why I have joined this site, except that I feel lost and lonely.
Head and neck cancersI have cancer- SILLY
Iwas diagnosed with adenoid cystic carcinoma in February,2010.
Head and neck cancersI have cancer
wombat4I lost my lovely wife to cancer after a 2 year battle on 21 dec 2011
Liver cancerOther (Specify)
harkerI am interested in finding ways for this site to support personal writing by people living with cancer and their carers. Information sharing is good, too, and I like being able to do that. But my main interest here is in uncovering myself via writing. I want this blog space to enable me and others to do that.
Update: If there are people who start to share something as writers, rather than as information seekers or people with a specific communication need, then I think this site will add something to the process of recovery and living with cancer. Well, actually, I know that is the case already. The evidence is there. I'm getting a lot out of this.
Multiple myelomaI am a survivor
MignonI am a mother of a young woman who had Non_Hodgkins Lymphoma.
Non-Hodgkins LymphomaOther (Specify)- felixr_cancerco...AdministratorExpertGroup creatorHelplineProject OfficerOther (Specify)I am a health professional
jsbachUsually fit and active. Apart from being told that I have this horrible disease, I don't feel sick and have no symptoms. I am determined to buy as much time as possible and have no intention of simply giving up.
Pancreatic cancerI have cancer
ashesI have MM
Multiple myelomaI have cancer
SmileyMarried to David for 22 years, 2 wonderful teenage sons & 1 neurotic dog !
Brain tumourMy loved one or someone I know has cancer
SamRI am a Survivor - 9 years (rare Endometrial Cancer).
Op - May 2002, followed up with Radiotherapy for 6wks Aug-Oct.
The cancer diagnosis was an absolute shock, everything became a blur & as I Iook back now I realise I went on to "auto pilot".
I keep waiting for the memories to fade and most of the time they have , until May or Oct rolls around, then the memories come flooding back.
My Oncologist was very skilful - one tumour was growing around a major vein (no blood units used), but thankfully not attached & the other within (both early stage -neither secondary).
Other (Specify)I am a survivor
Sunshine006auI live in Paterson NSW, work full time, have 2 grown children & 3 gorgeous granbabies. My dad is has been fighting vocal chord cancer, first diagnosed in Feb 2011, underwent Radiation treatment in April,total larengectomy Sept,dad is still in hospital due to his neck not healing (due to radiation),he has had 2 op's using muscle flaps fromthe chest to try to close the wound but they didn't take, today (01.12.11) dad had surgery to put a PEG into his stomach, we are hoping to have dad home next week & hoefully the wound will heal enough over the next few months & the Dr's will try to close the wound with thigh muscle. I find it very hard trying to stay positive whilst watching my dad go thru this.
Head and neck cancersMy loved one or someone I know has cancer- Shorty_ShellThyroid cancerI have cancer
debstarmy fiancée was diagnosed with Perotid Cancer on June 10th 2011
Head and neck cancersMy loved one or someone I know has cancer- Lockey
18 months agao -Partial Nepherectomy due to Malignant Tumor in Kidney
2 weeks ago another Malignant Tumor removed from Omentum..Suspected as being secondary cancer...still looking for primary cancer (ovaries looked normal after internal ultrasound and blood test looked ok
Going for Endoscopy & Colonoscopy on Tuesday to check for stomach and bowel tumors
I am under a general surgeon who is planning debulking sugery - removing ovaries & tubes and the rest of my omentum plus anything that might be present in bowel or Stomach. I was admitted to hospital on 31st jan for a lung infection and was given a CT scan as they were worried I might have a blood clot. The CT scan showed that I still had a large Thymus Gland and this has just complicated things even more as they don't know what to make of it but are thinking about doing a biopsy to rule out a malignant tumor.
All of this is very new to me and I have been overwhelmed by all the tests and results/jargon. I have autoimmune disease/under active thyroid and type 2 Diabetes. A friend has suggested an alternative enzyme treatment instead of chemo & Radiation but I don't know what to do...i don't think my body will cope with more surgery and Chemo and radio.Other (Specify)I have cancer
neenI was diagnosed with Thyroid cancer in September. I have had a complete thyroidectemy and neck disection. I'm waiting for radioactive iodine treatment late January. I have a beautiful 2 1/2 year old girl who keeps me going!
Thyroid cancerI have cancer
kasianneI was diagnosed with Cancer of the Oesophagus in August 2011. The tests and treatment all passed me by very quickly and currently undergoing chemo to shrink the tumour before and operation just before Christmas
Other (Specify)I have cancer
lynnibear07I am a young mum who has been recently diagnosed with follicular thyroid cancer. My Dr has successfully removed the cancer, but now i a have to have my thyroid removed as a precaution and have radioactive iodine treatment after the surgery.
Thyroid cancerI have cancer
roscodiagnosed june 2005 (smouldering) started treatment (oral chemo) dec 2009. high dose iv chemo & stem cell t/plant mid 2010. going well now
Multiple myelomaI am a survivor
jane mariePre-authenticatedi have a mother in law with liver cancer, would like to talk to other people about ways to support her through this x
Liver cancerMy loved one or someone I know has cancer
WidgetI'm 45 single mum with stage iv appendix cancer. Diagnosed Dec 09, had surgery, had chemo now trying like everyone else with terminal diagnosis to understand the unknown.
Other (Specify)I have cancer
Jules_68My diagnosis and second chance at life RCC T2/G3, contained kidney cancer. Im 42yrs brisbane lady and presented with itchy rash (ongoing) and egfr 44%. right radical nephrectomy april 7 2011. Surgery was my treatment. World turned upside down. Positive thoughts on how blessed i am. I find yoga helps still my mind and acupuncture helps with my lowered function. My best advice, keep your mind open and keep trying and reading everything until you "find" what works for your life now. Love and blessings.
Kidney cancerI am a survivor
christina.hIn March 2011 I was diagnosed with Non Hodgkins Lymphoma. I had both my lungs fill with fluid and I had to have 6 cycles of chemotherapy. I have just had my ct and pet scan and waiting to see my professor to see if I am in remission.
Non-Hodgkins LymphomaI am a survivor- LB
My husband has pancreatic cancer (June 2011) had unsucessful surgery. We have had chemo, chemoradiation and are now waiting on a CT scan (Feb 7th) to see if the pain and suffering had any impact on the tumour.
Pancreatic cancerMy loved one or someone I know has cancer - CJF
I am 48 years old. First diagnosed with tongue cancer in 2006, neck cancer in 2007. Remission since then.
Head and neck cancersI am a survivor
Desy CaresIn 2006 at my 35th Birthday I announced to all my friends and family that on my 40th birthday I was going to shave my head for Cancer. Ironically in December 2009 I was myself diagnosed with the rare Cancer – Adenoid Cystic Carcinoma. A cancer that as you may know is rarely treated with Chemo, so I kept my hear.
However, since being diagnosed I have undergone eight separate operations which included having half my palate, a third of my top jaw, sinus, adenoids, nerves and lymph nodes removed. The surgeons did a fantastic job, rebuilding my palate using skin, muscle and tissue from my left arm and right hip and an artery taken from my left arm to feed blood up to my new palate.
I then underwent 32 treatments of radiation. In September 2010, I decided that I was going to continue with my pack to help raise money by shaving my head so for the last year we were fund raising.
In September 2011, my 10 year old son, my wonderful partner and I all shaved our heads having raised $70,000 for Cancer Council NSW. A great journey, which I believed help me cope with my own diagnosis, however have to say I am glad it is all behink me now.
Now, I am just happy to discover the new Desiree and decided who, this new person is and how I can ensure I make a difference in this world, which is the reason I got this cancer in the reason.
I would be please to answer any questions any of you may have who are still going through this journey with me at the time.
Kind Regards
DesyOther (Specify)I have cancer
Beautylee47 female, lives at Jandowae Qld,
Head and neck cancersI have cancer
startingoverPre-authenticatedI am a single mum of two young men the youngest is 18 and still living at home. I have been studying at Uni and working parttime for the past 5 yrs and was to complete my undergrad degree at the end of 2011.
In Aug 2011 I was diagnosed with cervical cancer stage 3 yes I had regular pap smears. Most of what happened after that is a blurr I was on a merry-go -roundCervical cancerI have cancer
1232michelleI am married with a 9 month old and 2 year old and the week before Xmas 2011 my dad was diagnosed with a glioblastoma grade 4 and my brother and I are his primary carers.
Brain tumourMy loved one or someone I know has cancer
MausyfI have been diagnosed with Myeloma and am absolutely terrified and confused! Been advised to start chemo CTD, just waiting on an MRI under a general anaesthetic in Jan. I suffer badly with anxiety and am finding this is comsuming all my thoughts! Thanks
Multiple myelomaI have cancer- SueI
42 years young, mum of 10,14 & 16 year olds with the best husband, we have alot of fun as a family. Have had two myxodfibrosarcomas (high grade) removed from arm by resection with free flap from groin. Path. showed that it is now in muscle so will have muscles removed the end of the month. New lump now in wrist so more tests. Have four nodules in lungs to be checked 3 monthly by CT. Radiotherapy to start after next surgery. The hardest thing has been finding medical advice and direction for this type of cancer as it is not common. Always trying to keep mentally on top of things. I have a great supportive family. If I start feeling down, it's because of how this affects them and makes family and friends feel sad.
Other (Specify)I have cancer
Margaret MSimple D & C revesled a mass. diagnosed as uterine cancer. Spread to fallopian tubes, but fortunately, lymph nodes free of cancer... 2 months in hospital with infection complications. Three sessions of chemo starting 18/10, then radiation for as long as it takes, then a further 3 sessions of chemo. Then God willing, I will be free of this evil thing....
Uterus cancerI have cancer
Ally3Uterus cancerI have cancer- VLASTA
Hi , I'm 45 year old female. On 18/02/2011 I've got diagnosed with an endometrial carcinoma stage 2 and on 04/03/11 I already had a total hysterectomy where also 20 lymph nodes were taken out and one of them was infected which puts me one more stage further, I think. Last week my doctor informed me about surgeon and oncologist decision that is a radiotherapy recommended. At the moment I'm still recovering from the operation, waiting for my radiotherapy and hoping for the best.
Uterus cancerI have cancer
bevIn June 2007 I was diagnosed with Stage 2 Uterine Cancer. I had a modified radical hysterectomy and had lymph nodes removed in July. Testing of my tumour it was found that I had faulty cancer genes and was referred by my gynaceologist oncologist to a genetic professor. My grandfather and father both had bowel cancer so this was a good start. In September that year I had 28 doses of radiation. I now have to have annual colonscopies and every second year I have a gastroscopy. I see my gynaecological oncologist every 6 months and radiation oncologist in between those 6 months, so evey 3 months I have a check up. I don't mind the check ups, at least if the cancer came back it would be found early.
I have been married for 44 years in May, and have 3 adult children, and 5 grandchildren.
I have retired from full time work.
I am now a volunteer at our local Cancer Council Information Centre and later this year will do some training for Cancer Connect.Uterus cancerI am a survivor
bellai am 64years old mother of 11 children.last time i counted i had 46 g/children. i have raised 6 of these still have one living with myself and my beautiful husband andy i think i have about 14 great grand/children and still counting the g/child with me is called kash
Breast CancerI have cancer
SailorI have had cancer since 1998, three lots of radiotherapy and now regular drug therapy. It slowly advances! I was an academic but have now retired but remain active as a volunteer in a number of areas.
Prostate cancerI have cancer
Harry_HMy mother has been diagnosed with lung cancer. She has been given 1-2 yrs even with treatment:(
Lung cancerMy loved one or someone I know has cancer- sebastian
Bowell cancer removed then 6 months chemo - side effect numb ankles
Bowel cancerI am a survivor
lynnielouI was diagnosed with ovarian cancer in Feb2010. I had tumors removed and hysterectomy followed by chemo. The cancer returned in July 2011 and I had another operation for removal of lymph node followed by radiation on a part that couldn't be removed. I am now having serious trouble with constipation
Ovarian cancerI am a survivor
JaxOther (Specify)I have cancer
Deb1960I have advanced Stage 4 colorectal cancer, I tried palliative chemo, it did not work at all (my cancer was found way too late). My body can't take anymore, my oncologist has backed me up on my decision to now allow nature to take its course. I am at peace with my decision.
Bowel cancerI have cancer
StaceBowel cancerI am a survivor
Helen DezsoPre-authenticatedFirst diagnosed with BC in august 2008 I am a 53yo female with secondaries to the bones and liver after being cancer-free and rebuilding my life for over a year....Am currently having weekly chemo with abraxane and monthly phosphomide injections for the bones. Have never attempted to join in a self help group or make contact with other patients/survivors until now. Of course, I am here because I wish to connect with people in similar situations to my own to give and receive the type of understanding,practical information and support that we all need.Trying to stay strong
<3Breast CancerI have cancer
kj65 had whipple surgery 6 months ago
Pancreatic cancerI have cancer- willow
Finished chemo for breast cancer - about to start radiation
Breast CancerI have cancer
samexI am a bowel cancer survivor. I am 14 months out of treatment (6 months of treatment)and a teacher. I have a family - husband and 2 sons 20 and 15.
Bowel cancerI am a survivor
Linda MunroI was diagnosed with breast cancer April 2011 Had mastectomy and TRAM reconstruction June 2011, Chemo in July and radiation in November completing on 23rd Decmber.
54 years old.Wife of 36 years. Mother of 4. Mother-in -law of 4.
Grandmother of 7. Pre-primary teacher.Breast CancerI have cancer- Seadee
Diagnosed Stage 4 NSCLC May 2011 (non smoker)
Lung cancerI have cancer
CocoI was diagnosed with Non-Hodgkin's lymphoma in April 2010. I had chemotherapy, stem cell transplant, surgery and radiation therapy. I completed all treatments in January 2011.
Non-Hodgkins LymphomaI am a survivor- Roslyn
I am a mother, have 4 children and live in a lovely place in the country on a small acreage with my husband.
Our youngest son Daniel was diagnosed at age 2 years in 1979 with ALL Leaukaemia.
Sadly he relapsed at age 4 and was the youngest child to undergo a bone marrow transplant. The irradiation and chemotherapy was very harsh 30 years ago and caused many side effects.
Sadly our beautiful son Danny lost his battle in December on Saturday the 3rd. He died surrounded by all the family at our home. He was 34 yrs and lived a courageous and beautiful life.LeukaemiaMy loved one or someone I know has cancer
AnereMother of two and husband has metastatic adenocarcinoma head and neck area.
Head and neck cancersMy loved one or someone I know has cancer
shamI am married with 7 beautiful kids, about to hit my 3rd yr remission {2011}
Thyroid cancerI am a survivor
belinda74Cervical cancerI have cancer
Jules2oooh, just me a ordinary past survivor of cancer and currently doing the treatment thing with another cancer! Bit more info on that one. Twenty one years ago i was diagnosed with secondary (lymph glands) amelanotic melanoma. Fortunately for me i outlived the medico's expectations. Now i have a squamous cell carcinoma in my tongue and throat. Have finished chemo now and waiting to do radiotherapy (commences next week on oct 1). Funnily enough October is the month i had my last cancer eradicated.
The oldest and strongest emotion of mankind is fear. And the oldest and strongest kind of fear is fear of the unknown" ~H.P.Lovecraft
I have to put this somewhere as i just found it and want to revisit it after i have pondered for a bit.
It's all about living in the NOW and enjoying what the Universe offers you! No benefit in the past & not worth worrying about the future - just trust!”
Head and neck cancersI have cancer- flightHodgkin's diseaseI am a survivor
peanutzBrain tumourMy loved one or someone I know has cancer
Andrea has a he...Bladder cancerI have cancer
Wendy AshbyOther (Specify)My loved one or someone I know has cancer- Lynnette
I am 58 years old and was diagnosed with nose cancer last May. The surgery saw the removal of my nose and I have now completed my chemo and radiation treatments. I had a prosthetic nose fitted in January.
Head and neck cancersI am a survivor
EpantingI'm a 39 y.o married mother of 4 children 3 of which live at home.My husband does fly in fly out work while i stay home I also have a small home business making candles. I have 2 dogs and 2 cats.
Bladder cancerMy loved one or someone I know has cancer
tnarg3110just been diagnosed and had colonoscopy,mri,ct scans and met with chemotherapy and radiotherapy doctors so waiting now to have treatment, big shock to the system. i am 62 yo male and look forward to contact with others paddling same boat or already been there so i know what to expect with treatment and later operation, i start chemo/radio 4 jan 2012
Bowel cancerI have cancer- buggerHead and neck cancersI have cancer
exhaustedWife of GBM sufferer
Brain tumourMy loved one or someone I know has cancer
FighterDMy brain tumour journey began in 2007, when i underwent surgery to remove a Grade 2 Oligodendroglioma from my left frontal lobe. Life quickly went back to normal, with the only reminder over the years that followed being my 6 month MRI scan check ups.
I honestly believed that would be it, but sadly the tumour returned and in October this year I had a second surgery and received the earth shattering news that my tumour had progressed to a grade 3 oligodendroglioma.
Now in a battle with brain cancer, I am acutely aware of the battle in front of me, and am currently undergoing a course of radiation and plan to follow with chemotherapy.
Brain tumourI have cancer
ItsinmybloodI'm a 12 year colon cancer survivor. I have Lynch Syndrome- gene mutation MLH1
Bowel cancerI am a survivor- daughter72Lung cancerMy loved one or someone I know has cancer
DannyI was diagnosed With A.L.L when I was 2 Yrs old. then relapsed at 4 Yrs. I had a bone marrow transplant with. My older brother as my donor. Also had a kidney removed when i was 19 Yrs old. I am now 34 doing well and coping with all the side a effects. November last year ( 2010 ) I was diagnosed with cancer of duodenum. And had a wipple's operation and a 3 month stay at RPA hospital.Which wasn't very nice but now I am on the mend.
LeukaemiaI am a survivor- reindeer
I was diagnosed with invasive ductal carcinoma (breast cancer)Grade 3 in Dec05, underwent Lumpectomy, chemo(FACx6) and radiotheraphy(30).
I was introduced to this Cancer Forum by my Breast Cancer Support Group.
Breast CancerI am a survivor
Riss654I am a 57 year old Australian married woman. I was recently diagnosed with thyroid cancer & had a total thyroidectomy 1 week ago. I have been informed that I will now require further surgery to remove lymph nodes. I am otherwise healthy & feel well.
Thyroid cancerI have cancer- Lizd
I am 58 and have breast cancer. Treatment was in 2008 but side affects still are ongoing. My husband died of leukaemia in 2006.
Breast CancerI have cancer
MaryBeeHave been close to cancer through several important people in my life suffering from it.
MelanomaMy loved one or someone I know has cancer
AllicatBreast CancerI have cancer
mj1980Non-Hodgkins LymphomaI am a survivor
Kym.LeanneI am a 32 year old female
Uterus cancerI have cancer
PatDDiagnosed with Pancreatic Cancer - to undergo surgery (Whipples) on 11th Oct., 2011
Pancreatic cancerI have cancer- BobHBreast CancerMy loved one or someone I know has cancer
MeAgainAt the age of 32 had a Hepatic flexure tumour (adenocarcinoma) discovered in my large intestine, subsequent Right Hemicolectomy (no bag required- yay) then 14 cycles of Chemotherapy (which I thought would never end). Coming up to 5 years post diagnosis.
Bowel cancerI am a survivor
etacarinaeI enjoy cooking, music and travelling...so my cancer better not come back because I have got a lot of stuff I want to do. I was diagnosed with stage 3 rectal cancer in 2010 and have had surgery, a stoma,chemo,radio and a stoma reversal. I am bloody lucky because I had been seeing doctors for a few years with my symptoms before I found one who took me seriously and ordered the colonoscopy. I am here because I don't know anyone my age/sex that has had this experience and I would like to share my experience and hear about others.
Bowel cancerI am a survivor
sarahI'm a survivor
Other (Specify)Other (Specify)
danielI am 35 years old and from the northern nsw area and in august 2010 i was diagnosed with advanced oesophogeal cancer wich has also been detected in my lymphatic system and have started treatment with chemotherapy and radiaition around the middle of september.
Other (Specify)I have cancer
ajI lost my mother to cervical cancer, my father to pancreatic cancer, my mother in law to leukaemia, two cousins to ovarian cancer, my husband is a colon cancer survivor and I survived cervical cancer, skin cancers and breast cancers. Actually I am not that fond of the term survivor, I feel it is a bit wishy washy. I like the term overcomer much better. My beloved husband has had an operation removing a lot of his large intestine to remove tumour which had kind of taken over his colon. Later he was found to have prostate cancer, which we were learning to come to terms with (and the treatment thereof.) He recently found out that he not only has renal tumour but that it has metastasised into his bone. He now faces surgery for removal of his rib.
Kidney cancerOther (Specify)- countrychickBowel cancerI have cancer
mazsaNormally very fit,healthy & full of life & looking forward to the next few years when my partner & I are hoping to buy a house together then later plan our wedding. I'm 54, a mother of 2 & a grandmother of 2. I was seeing a physio with backache in June when pains down my left side started, a few ultrasounds & a CT scan later showed a tumor on my pancreas & 2 biopsys later proved pancreatic cancer. Still early stages & visit the oncologist next week to commence treatment. I'm a fighter & definately not giving in. My mother died from PC aged 76 & it appears she has passed a bad genetic gene down to me.
Pancreatic cancerI have cancer
Shennanigansi'm not exactly sure just what i write here bout myself. im 26, enjoy PC gaming (mainly i play WoW) during my free time. ive been caring for my 61 year old father for the past few months now since he discovered he had cancer. I also lost my mother to cancer back in 1998. I guess the main reason im here is because im loosing friendships because my so called "friends" just couldn't understand how hard and demanding being a full time carer is.
Other (Specify)My loved one or someone I know has cancer
lena3kidsBrain tumourMy loved one or someone I know has cancer- KyllesBowel cancerI have cancer
yapaMy 45 year old husband has just been diagnosed with Metastatic pancreatic cancer.
Pancreatic cancerMy loved one or someone I know has cancer- Ine
I am a 55 year old female supporting my partner with bowel cancer.
Bowel cancerMy loved one or someone I know has cancer
didiBreast CancerI have cancer
chezzaBowel cancerI have cancer
Gypsy1946My Husband has just been diagnosed with Esophageal cancer and it is scaring the hell out of us,we get the CT results today and tomorrow a visit to the Surgeon, we were in the middle of a trip around Australia when this happened and do not know what to expect
Other (Specify)My loved one or someone I know has cancer
julia.wDiagnosed 29 Oct 2009 with bone metasteses, then a week later with breast cancer. Had radiation for pain on walking, then four rounds of AC chemo. Now on Tamoxifen and painkillers. Have a break in my pelvis so had more radiation for that; just getting over the burns, couple more months using a crutch
Breast CancerI have cancer
cameli like to draw, not very good at the moment, but i'll improve
NoneMy loved one or someone I know has cancer
TerrafirmaI'm a voluntary worker/supporter helping people with cancer and their supporters find information and support on the internet. I've spent thousands of hours searching the internet and reviewing cancer-related websites to find the best internet resources. I've created the website http://www.bestcancersites.com to help people quickly find the internet resources they need. It's independent, contains no ads, and is there for one purpose - to provide information. Simply go to the home page and look for a link to the cancer type you are involved with.
I live in Adelaide South Australia.Other (Specify)Other (Specify)
u_canI've been on the cancer journey ever since I was diagnosed a few years back at the age of 20.
I'm easy going, spontaneous, love meeting new people, love the out doors and as a result of my journey am dedicated to serving others on a similar path
MelanomaI have cancer
Scott MurrayFifty - one years old and diagnosed with left follicullar thyroid cancer. about to start radiotherapy. Married with three teenage children.
Thyroid cancerI have cancer- Leah
Carer of stage three bowel cancer
Bowel cancerMy loved one or someone I know has cancer
