Welcome
Hi everyone, Welcome to the new cancer survivors section within our online community. This space is for you to communicate with others who may be on a similar journey. From time to time I will post articles I come across that may assist cancer survivors, their family, carers and friends. Meanwhile, jump on to our new forum and share your thoughts and keep in mind that our new "Living well after Cancer" programs are being held in many locations around the state over the next month. Location details are on our website www.cancercouncil.org.au Speak to you soon, anniem
Hi Anniem, Great idea and look forward to "survivors" posting things on the site, Now there are two who have posted. Steve
I didn't know there was a survivors forum until now. I've been posting under general. My interests are improving my health and life post treatment. I have been in remission for a year now but still have issues related to graft versus host disease after my bone marrow transplant, so it would be good to hear from others in the same situation.
Hi pinkeye, congrats on being a survivor!!! I think one of the things I have problems with is how do I move on from being a cancer sufferer to a cancer survivor?Part of me keeps waiting for the other shoe to drop!Hopefully, this too shall pass! I wish I could help with your question but it's all Greek to me. Keep posting,Margro
Hi Steve, congrats to you as well and guess what?We now number 3!!!!!!! Margro
Hi Margo I recently went to a cancer council relay for life event. That helps puts things in perspective as a survivor, and helped me move along a bit as a survivor. I found it too easy to shove stuff under the carpet and not deal with it, as people are uneasy about talking about cancer experiences at work etc. At the relay for life event you are there with a whole lot of other survivors and do the first lap of honour for the relay and then have an afternoon tea to meet some other survivors. John
Hi John,that is so much better than 'pinkeye'!!! Part of my problem with being a survivor is the fact that I had pancreatic and I am forever being faced with the odds!!! Why should I be the lucky one? I figure there must be a reason I beat it but I am still trying to find it
Now we are four! I'm a survivor of 14 years and have come to terms with the fact that although cancer may not be a death sentence, it IS a life sentence. Annual check-ups with my oncologist remind me, as well as the surgical scars on my body that are with me daily. Don't get me wrong, I don't live in fear and I've finally stopped waiting for the other shoe to drop, but I was only able to build a new 'normal' for myself once I realised that cancer could come back again and I can't change that. I use this knowledge to live as fully as possible every day. Being human, of course sometimes I forget to do this, but I believe that I do my very best to make each day something to be celebrated. Basically it's just a matter of keeping on keeping on - and no matter how far down the track you get, always have people to talk to who have been on the same journey. Family and friends don't want to hear about it over and over again, but if you need to talk, then you need to. Who better to do that with than other survivors?Jane
Hi Jane and welcome! I agree with the live every day,in fact,I think we are the lucky ones....we know the true value of every day we have! My wonderful partner bought me some clothes today and he said when he gave me the jumper "it just said you".Repeated over and over on the top are the words"LOVE TO LIVE"!!!!Should be our web site theme. In case any of you are interested,I am walking in the city to surf this year to raise money for pancreatic research.Any donations would be wonderful(feel like a street person begging but it's worth losing any pride I have) and can be made directly to the cancer council in my name. Contact me for more info Thanks all,Margro
Hi everyone I will celebrate my 9th cancer birthday in July. On being diagnosed with a squamous cell carcinoma of unknown primary in July 1999 I had a pity party for 2 days then decided that this uninvited guest would not define who I was and control my life. I still have blood tests and scans and see my oncologist every year but I choose to look on that as simply confirmation that I am doing well. Cancer changed my life bigtime, I found a person inside me I did not know was there. I have since really lived my life, had some amazing experiences, met incredibly inspiring people, and learned some great life lessons. It hasnt always been easy and my life is now vastly different from what I ever imagined it would be at 60 years young. I have been a support group facilitor for almost 7 years, have completed various training programs through the Cancer Council and other organisations, and have just begun to do a Diploma in counselling. We can learn from and support each other through our journey and while I fully accept that having had an "unknown primary" there is a possibility that this little rogue may surface again some time, I think in the meantime, I have other more exciting things to think about. I also want to say that having been honoured to read the Relay for Life oath in 2002 [central coast nsw] the importance of being able to attend this event is significant to many of us for different reasons. We understand each other, we dont need to explain why this event is so special, why we are there, we just know. I love relay, it is my personal reaffirmation time, and even though I think they make the track longer each year - lol, it is a wonderful time for renewal and reflection while raising funds for the Cancer Council. Finally, I was told I would probably not survive 5 years. Hope and humour - yep - I will take them anyday. Best wishes with your continued journeys everyone. Lyn
Hi I to have survived it is now 3 years since my last treatment of both radio and chemo I must so I feel so much better than this time last year. I am still struggling with eating are ver restricted in what I can manage to eat but I try not to stop me from having a "social life" I have joined to 2 support groups which meet regularly and I have made some good friends from these people. When I moved here I had just completed treatment,left my job,sold my house and prior to that I had lost my husband to cancer13 months before. The only contact I had was my daughter who lives 20 kms away with her family. I also have joined other groups which seems to fill my time in. The only thing I find is that because I have lost so much weight people seem to think I am helpless and insist on trying to help me and I am determined I become independent. I must admit some days I get rather down and think "why me" so then I put the lead on the dog and go for a short walk or drive down to the river and watch the water. I find this helps me settle and I am seriously thinking of taking up fishing. I have just one question to ask (has anyone any tips or advice for the dry mouth and if there is and chance it will improve) my GP is very negative about this and my ENT DR seems more interested i if there is any sign of cancer. By the way my cancer was on my left tonsil and would you beleive I still have my tonsils try explaining this to people who don't understand Kind rgards to all
Hi Jenny, Way to go...9yrs!!I was told I wouldn't last 6wks and in Sept it will be 3yrs! Aren't dogs the best thing ever invented?I walk my 2 babies every morning on the beach(off leash beach)and no matter how lousy I feel when I get up,that is one thing I know will make me feel better. Like you,I lost a lot of weight very quickly(14ks in 2wks and I was only 55k to start with)and because of the scar from surgery etc,I had a lot of body image issues.Walking everyday has helped with toning and that is an added bonus. Keep up the good work
Hi Jenny, Thanks so much for joining in and sharing. You are not alone with the dry mouth. I hear about this regularly. Im not sure whether you have had a look at this website, however there is some good information on it regarding the challenge of a dry mouth. This is a very reliable website for all cancer questions. You sound like you are doing such great things for yourself. Taking time out for you, finding what "makes your heart sing" and then putting it in to action is a wonderful way to live your life well. Well done and enjoy the un conditional love of your four legged friend Cheers, Annie





Hi anniem,guess at the moment I'm "everyone"! Still think it's a great idea.