side effects of chemo

7 replies [Last post]
sebastian
User offline. Last seen 1 year 16 weeks ago.
does not have a status.
Joined: 31 Jan 2012
Groups: None

Chemo side effect semi numb ankles still there after 5 years has anyone come across any treatments/therapies to reduce or clear these effects?

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.
wombat4
User offline. Last seen 42 weeks 6 days ago.
does not have a status.
Joined: 10 Jan 2012
Groups: None
Re: side effects of chemo

Hi sebastian,
My wife would get neuropathy in her fingers and she did say once she felt the top of her legs felt slightly different, all to do with nerve damage, but I would suggest ask the treating oncologist.
wombat4

StressedOut
User offline. Last seen 21 weeks 2 days ago.
does not have a status.
Joined: 2 Nov 2012
Groups: None
Re: side effects of chemo

My relative has had a metallic taste in his mouth since starting chemo about 6 weeks ago. The doctor didn't have any suggestions on how to help this, but thought it would get better eventually. Has anyone else had any experience with this?

Caitlin

VLASTA
User offline. Last seen 1 week 5 days ago.
does not have a status.
Joined: 28 Mar 2011
Re: side effects of chemo

Hi Caitlin,

I had that while having my chemo now about 14 months ago. It helped me brushing my teeth with a natural non-invasive tooth paste, rinsing my mouth often through the day with the sodium bicarbonate, and sucking on mints or having mint tea.

Hope it will help Smile Good luck!!

Cheers
Vlasta

Ron50
User offline. Last seen 4 days 16 hours ago.
does not have a status.
Joined: 19 Mar 2012
Groups: None
Re: side effects of chemo

Hi to all.
Caitlin I was on a dreadful drug called levamisole. It gave me a hot metal taste to all of my food and reversed a lot of the taste of other food ,salty became sweet ect. My taste returned to normal a few weeks after finishing chemo.
Sebastian I am nearly 15 years out from chemo. I had no neuropathy when I was having chemo for colon ca but nearly seven years later I was exercising heavily ,walking up to 50 miles a week and I started to loose touch with my feet. It has gradually become worse . Now I can hardly feel my feet and legs apart from pain and it has spread to my left hand. I have tried lyrica ,neurontin and endep. None helped much and all had severe side effects for me. I keep on trying to get help from my docs but they seem to be out of answers. Lyrica and neurontin are not on the pbs for neuropathy only epilepsy so they cost a fortune so beware. Best wishes ron.

StressedOut
User offline. Last seen 21 weeks 2 days ago.
does not have a status.
Joined: 2 Nov 2012
Groups: None
Re: side effects of chemo

Hi Ron

Thanks for your reply. Your experience with chemo sounds awful. How many cycles did you have? My relative has been told that the taste should subside soon which is good. I don't know if smoking and drinking is helping matters much.

Caitlin

Ron50
User offline. Last seen 4 days 16 hours ago.
does not have a status.
Joined: 19 Mar 2012
Groups: None
Re: side effects of chemo

Hi Caitlin,
I had chemo every tuesday for 48 weeks. The drug that caused my problems I only had every second week. I took three tablets a day of levamisole for three days after my infusion of 5fu on the tuesday. I didn't smoke or drink at the time,still don't,Cheers Ron.

StressedOut
User offline. Last seen 21 weeks 2 days ago.
does not have a status.
Joined: 2 Nov 2012
Groups: None
Re: side effects of chemo

Hi Vlasta

I'm glad to hear something helped for you. I'll pass those suggestions on. Anything has to be better than alcohol and cigarettes!

Caitlin

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.

What is a blog?

A blog is a shared on-line journal where people can post diary entries about their personal experiences. You can post a new blog entry using your "My stuff" box on the right side of this page. The list of latest blog entries can be found here. For general discussions please use our forums.

Introduce yourself

Are you a new member and looking to share your stories and experiences with others who understand? Visit the Introductions Group and share as much or as little about yourself as you would like. It is a great place to let other people find you and to share details about things that are important to you. Click here to say hello and introduce yourself to the community. Community members, come and make our our newest members welcome.