Regarding cancer systems, what do you think is working well or not so well?

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admin_one
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Regarding cancer systems, what do you think is working well or not so well?

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Re: Regarding cancer systems, what do you think is working ...

The monitoring of the illness by both patient and doctor.

In my opinion communication is the biggest let down. Ensuring tests that are required 3 monthly or 6 monthly are taken, communicating accurately the current state of the illness to the patient.

borderline
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Re: Regarding cancer systems, what do you think is working ...

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Re: Regarding cancer systems, what do you think is working ...

Hi All,

Please be advised that this thread was begun by a previous administrator of the website and is no longer active.

The posting of direct requests for information from users by administration staff is a practice that is no longer continued on this website.

Kind regards,

Felix

Cancer Connections Coordinator

Sailor
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Re: Regarding cancer systems, what do you think is working ...

Excellent move Felix

Sailor

LauraKate
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Re: Regarding cancer systems, what do you think is working ...

GPs need to be more educated in cancer diagnosis. From the first sign of symptoms, I waited 6 months to be properly diagnosed because the doctor didnt recognise the cancer.

bev
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Re: Regarding cancer systems, what do you think is working ...

I know this reply is late in coming, but I don't always check this site out very often now.

Anyhow, from my personal experience here is part of my story. I hadn't been feeling well for a while and went to my local gp. I had tests done and he decided that I had fibroids and explained that it was a very common complaint with women my age. I told him that I was feeling tired and bloated and he replied it was because I was too fat. Anyhow, finally after having symptoms for just on 2 years, and lots of repeat visits to him, he decided that I would be able to see a gyno. Well, I saw him on a Friday and on the Monday he called back to say that he wanted to see me urgently. Saw him that afternoon and he told me that he thought I had cervical cancer, but would refer me to a gyno oncologist and I saw him on the Thursday. Hysteroscopy followed the following Tuesday and the result was stage 2 uterine cancer. We have since changed gp's and both our new gp and my gyno oncologist cannot understand how something wasn't picked up earlier.

It is now past 3 years, and I feel good.

carolyn2
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Re: Regarding cancer systems, what do you think is working ...

my gp decided to refer for an ultrasound after a year of worry and psychologists visits and 1 surgeon who didnt have a clue for people with disabilities

SILLY
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Re: Regarding cancer systems, what do you think is working ...

With my cancer I went to my gp with what I had thought was a cold sore in my nose which I'd had to my knowledge for about 6 weeks and sometimes it would bleed a little ,. I had sometimes thought it could be cancer.The "sore" was in the exact spot where a tube had been attached for 3 months following surgery for a blocked tear duct.That operation had not been a complete success and the eye doc admitted that in 9 years of doing 5 or 6 operations each fortnight he'd only had 2 others that hadn't worked . I saw him a few times for another 3 months after the tube was out .He'd never looked inside my nose since the op .Maybe he would have seen something if he had , maybe not. Maybe he should have.
Anyway the gp looked , saw something , was not sure if it was a post-op wound that hadn't healed or something else, did the right thing and sent me for a ct scan. The result said a polyp. I got a referral to an ENT but had to wait 3 months to get an appointment . The ENT looked and said it was not cancer,just a polyp.I had looked up nasal polyps and saw that on very rare occasions that it can be cancer.A week later it was out and the biopsy said ACC , a surprise even to the person who did the biopsy.
So yes gps who are unsure should have appropriate tests done .Mine said she was no wiser after the ct so did the right thing again, thr referral.
Because ACC is so rare and my ENT had never seen it before I cannot fault him . He acted promptly. Two months of tests ,more biopsies, research , consultation and debate followed. All of this was the best thing .When one test showed anything suspicious, it was checked out.I had all that could be done.
I only recently read on the internet that blocked tear ducts can be caused by cancer ,though it is very rare. If the eye specialist knew this was a possibility it could have been checked out months earlier,but I don't know if it would have been found .Instead he was ready to operate again . I cancelled the second op the day before because I decided to get the sore checked out first and I wasn't sure I was prepared to be cut open this time. The previous op was endoscopic. I'll bet any time this doc has a similar experience he will act differently. There was no bleeding till a couple of weeks after I saw him .If there was he would have taken a different action ,I'm sure.I still think he should have at least looked to see if all looked ok.
One thing I feel strongly about is that my surgery was facially disfiguring and both the surgeon and radiation/oncologist told me it was not as bad as I thought but neither suggested counselling through the Cancer Council. I did get to see a counsellor near the end of my 6 weeks of radiation.She suggested I find someone near my home as it was a long distance for me to see her again. She never suggested CC either. My gp did the paperwork for me to have counselling through Medicare but did not know of one she could recommend.She believed that there should be counsellors willing to bulk bill for this but I couldn't find one. Then I decided to try the CC. SUCCESS.
It would be great if cancer patients were told of this service by their surgeons, oncologists and gps.If this meant CC resources could not stretch to cover an increase in the number of clients couldn't Medicare be used?
I hope this isn't too long-winded.

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