new to forum ....... needing to talk to others who are dealing with melanoma
Wed, 30/11/2011 - 14:05
hi , well my journey started a long 17yrs ago when i had a melonoma removed i didnt really know much then or now for that matter. all i know that it was bad they removed it i had regular checkups and after 5 yrs all good ......... until sept this year when i found small lump in groin went to gp who sent me to ultra sound then my world spiralled out of control tests more tests and diagoned with metastaic malignant melanoma and a groin dissection done 2 weeks ago and now waiting for that to heal and then chemo and then iterferon ......
it is all a little bit hard to comprehend and am doing my best to deal with it all day by day but am struggling with the fact that it has come back so many years later and i am just doing what i am told by doctors oncologist and surgeon .
i am having trouble with my groin dissection as fluid build up is lumpy and along scar line as the drain became blocked so they removed at day 7 when i was still losing 120mls a day ........am going back to surgeon today to see what he wants to do until then i sit and wait for what seems like eternity as i have noidea how long this journey will be and how i will survive finacially as not recieving income anymore as run out of annual leave and sick days ..... so many thoughts running thru my head all the time
Thu, 01/12/2011 - 11:42
#2
Re: new to forum ....... needing to talk to others who are ...
I'm in Perth WA ......... i know i will beat this am just a bit overwhelmed at the moment . Congrats on your journey stage 4. im classed stage 3 thanks
Fri, 02/12/2011 - 08:20
#3
Re: new to forum ....... needing to talk to others who are ...
Of course, there's so much possibility raised with a diagnosis of cancer that it's really easy to feel overwhelmed. Sometimes we need to take a bit of time doing things for ourselves to recharge so we've got more oommff to get back in the fight. For me it's massages and going bush 
Have you heard of Clinton Heal? He runs groups in Perth, see www.melanomawa.org.au and is an amazing survivor who I'm sure you would get a lot from.
hi Pen,
It funny how it takes a while for our understanding and emotions to catch up with what's going on in our body. Which city are you based in? As I know of a few melanoma groups in Sydney, if you wanted to hear other stories and advice face2face.
A journey with cancer is hard, actually it can be bloody hard, but you don't have to be a victim if you dont want to. I know of several people who've taken control of their journey and exceeded all expectations/statistics as a result. I'm one of them when I was classed as a stage 4 melanoma a few years ago.
I wish you peace,
U Can