Hello World
Wed, 17/08/2011 - 08:58
Hi there,
I'm new here. My partner, 55 y/o, was diagnosed with brain tumours on 4/8/11. He had a surgery on 8/8/11 to resect a bulk of his tumours and was officially confirmed with GBM Stage IV on 11/8/11. Wow, how life can turn upside down within a week!!! :-S
Nat
Wed, 17/08/2011 - 22:03
#2
Re: Hello World
Hi and welcome,
Feel free to express any thoughts and feelings on here. Everyone is on here to have an outlet and also very supportive.
All the best wishes
Take care
Thu, 18/08/2011 - 15:22
#3
Re: Hello World
At the moment, I'm trying to be optimistic although deep down I'm afraid that one day he'll be gone just like the vast majority of people with GBM. Well, a friend said where there's life, there's hope. 
N
Thu, 18/08/2011 - 15:27
#4
Re: Hello World
Most of us a same here, some one is more strong, someone not, but i realy wish that i can help you, at least i can give you my best wishes. All the best. NADA
Thu, 18/08/2011 - 15:48
#5
Re: Hello World
It happened like that for us too.
Tue, 23/08/2011 - 13:58
#6
Re: Hello World
The last few days I feel quite good and not being too worried about the whole thing. Am I in denial? People at work asked me about my partner and I talked about it openly without feeling upset. I think the way I talked made them think it's not so serious even though I quoted our good oncologist "Trust me, I know what I am doing and at our centre we have 39% 2 year survival rate". WOW seriously!! is that supposed to be a good rate??
Wed, 24/08/2011 - 00:40
#7
Re: Hello World
Maybe it is a good thing. Maybe you will help you partner and you self by
acting and fill this way. wish you the best and you have to be strong for
both of you. NADA
Wed, 24/08/2011 - 10:23
#8
Re: Hello World
You can't feel or act the same all the time so you can't be upset constantly. Anyway at work you would be in a different frame of mind.That said,there may be times when you're in denial. There were times when I used to say to myself that none of this is real 'cause it feels like I'm in a movie about someone else.This was when my husband had cancer 6 years ago and me last year. I suspect it's our mind's way of coping when the reality is too much for us.
Thu, 25/08/2011 - 10:22
#9
Re: Hello World
Yes, I agree it seems so unreal. When we first knew about my partner's tumour and that he would require a surgery, I would wake up every morning and thought it was just a nightmare. Now it seems the surgery was the least of our problem.
What a bummer, we plan to go to Europe next year and we already bought tickets! 
Thu, 25/08/2011 - 10:56
#10
Re: Hello World
Is there to be any more treatment,radiation and/or chemo? Maybe you will still fit your trip in after treatment. Did you get travel insurance?If the trip time doesn't suit you could explain and they should be able to let you change your times if you need this. All the best toyou and your partner.
Thu, 25/08/2011 - 13:48
#11
Re: Hello World
Dennis will start Chemo-radio therapy on Mon 29/8. He had a surgery on 8/8. Unfortunately, we were still looking around for travel insurance as we got the tickets not long before he had the symptoms. We got the tickets using mileage points so I think we will have to pay a fee either to cancel or changes the tickets. I hope he will be well enough to travel after all the treatments as now we are out of luck in getting travel insurance, I believe. If he can't travel but can live for a long time, I'm happy with that.
Fri, 26/08/2011 - 00:01
#12
Re: Hello World
Y es his health is no. 1 .
Mon, 29/08/2011 - 22:35
#13
Re: Hello World
Well the whole thing is so distressing, I feel so hurt for us all,I wish I had a magic wound and could just make us all well, I often wonder how doctors cope with it all, I would be in a ball under my bed everyday, I thought the worst thing that could happen to me was when my daughter was struck with a brain tumor 15 years ago, but she beat all the odds and they called her a miracle, she now has a little baby and is cancer free, now it has struck me, and here it is in my life all over again, I HATE CANCER, I wish I could take it and shake it and break it into pieces, and maybe I can, maybe we all can, who knows ?. For those who asked about other treatments the only other treatment I have heard of is (Gerson Therapy) but I don't know anyone personally who has done it personally, I watched about 5 mins of it and I don't like the way they talk about the medical profession, I need to feel they are on my side at the moment even though with the treatment and its side effects it does not feel that way at times, I am in early days I suppose and I am hopeful, God bless us all.
Wed, 09/11/2011 - 07:08
#14
Re: Hello World
So sorry to her of your pain.My thoughts ( for what they are worth) are here for you.
Tue, 30/08/2011 - 10:14
#15
Re: Hello World
A quick Google search shows that part of Gerson Therapy uses coffee enema, vegetables juice, and supplements. I think this is what Jimmy Stynes does and showed in his documentary. I think there is nothing wrong about doing all this 'on top' of the conventional therapy. At least, it may have some placebo effects
Fri, 13/04/2012 - 08:34
#16
Re: Hello World
Hi All,
Those interested in Gerson Therapy may find this link of interest:
http://www.mskcc.org/cancer-care/herb/gerson-regimen
Kind regards,
Felix Cancer Connections Coordinator
Thu, 01/09/2011 - 19:43
#17
Re: Hello World
Hi Peanutz,
My husband too has a GBM (4) and was diagnosed in April 2010 - he was 48 then. We are still fighting the damn cancer - life is one big roller coaster. But that being said we have had some good times too. We also had to cancel an O/S trip as we were due to leave 6 week after his diagnosis - our flights too were Frequent Flyer. I contacted the airline and they were marvellous - recredited our points plus the tax we paid with out any question.
Happy to answer any questions you want to bounce off me in regards to GBM - happy to also listen to you vent ! Its a bugger for the cancer victim but hard too on the carer. Look after yourself
Mon, 05/09/2011 - 13:20
#18
Re: Hello World
Hi Smiley,
Thanks for the info. I'll have to contact the airlines and see what they can do. From a quick check, we may have to pay a fee. I'm still hopeful that we can make a trip. *sigh* Perhaps, we haven't reached the scary part of the ride yet. It's only the 2nd week of chemo-radiation.
Cheers
Mon, 07/11/2011 - 23:10
#19
Re: Hello World
Just wondering how things are going in your world ?
Tue, 08/11/2011 - 22:50
#20
Re: Hello World
Just when I thought we were doing alright... my partner finished chemo-radiotherapy on 10/10. At the moment, we are just waiting for him to start chemotherapy. We have an appointment with his oncologist tomorrow afternoon.
The last few weeks he did OK but was tired most of the time. He felt dizzy sometimes. Occasionally, he felt good enough to go super slow jogging, 3-4 times from my memory. Last week we went on holidays in Thailand for a week and back on Sunday. He did quite well during the trip without any problem and felt better towards the end of the trip. However, since this early morning he has had quite a bad headache, vomited a few times today whenever he tried to eat/drink something, and been in bed the whole day. Still he doesn't want to go to a hospital, he really hates it there. I'll let him sleep in our bed tonight and tomorrow morning if his condition is not better, off he goes to the hospital. He's a lot bigger than me and I'm not much help when his legs go week and about to fell over. Is this the start of the 'down' trip? I feel helpless. I don't really know what to do. I have work to do, people to manage. I've been in my job for only 8 months and I already spent 8 days on carer leave this year during the surgery and recovery to support him.
Mon, 09/04/2012 - 08:25
#21
Re: Hello World
I am thinking of starting a facebook group page, an open page for anyone who needs support to join, what do you think? Maggie
Mon, 09/04/2012 - 11:35
#22
Re: Hello World
@Nat I am sorry to hear that, yes life is unpredictable you are just a little older than I, it is a terrible thing to hear, I want to start a facebook group but I am not sure what to call it, we don't want crazies, then again that might be a fun distraction,I love life but it sure does suk sometimes, and if it is trying to give me that message, i am pretty sure think I got it. good on you all for reaching out lets see if we can support each-other that would be fantastic, Maggie Taylor
Mon, 09/04/2012 - 11:43
#23
Re: Hello World
if anyone would like to connect with me and start a fb group or something could they private message me this site is not friendly enough or i am to stupid to figue out how to PM you, if you could i will get back with my details and we might be able to get something positive happening. Maggie
Fri, 13/04/2012 - 08:31
#24
Re: Hello World
Hi All,
In relation to the provision of support via Facebook and other similar sites, these can be a valuable tool in connecting with others.
It is also worthwhile considering however that these sites are first and foremost commercial enterprises.
Any content and information you provide can be and is used for market research and targeted advertising.
Considering the potential impact on your privacy and that of the people you communicate with is crucial when considering using these types of media service.
It remains a matter of personal choice as to whether they should be used or not but being aware of the significant risks should always play a part in your decision.
If any community member is experiencing difficulty accessing the private message function here on Cancer Connections please email us at admin@cancerconnections.com.au
Kind regards,
Felix
Cancer Connections Coordinator
everyone here is upside down, so you're in the right place.
H