Has anyone stopped taking tamoxofin?

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MissRen
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Hi there. I've been on tamoxofin for almost 2 years of the 5 that has been prescribed and I'm thinking of stopping. Has anyone stopped taking tamoxfin before the pescribed and date? If so,how are you?

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Allicat
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Re: Has anyone stopped taking tamoxofin?

Why are you thinking of stopping?

Have you talked to your doctors about it?

MissRen
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Re: Has anyone stopped taking tamoxofin?

Yes i am and I have spoken to 2 oncologists about it. There is no data available on the decrease or increase of reoccurence being on it for 2 years purely because no one has researched this, it's only been done at the 5 year mark. So I thought I'd put it out there and ask on this site hoping the is someone who can share their experience.

MissRen
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Re: Has anyone stopped taking tamoxofin?

I'm thinking of stopping it to concieve.

jules jp
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Re: Has anyone stopped taking tamoxofin?

Hi Miss Ren, how are you? Its been a long time. I stopped tamoxifen in second half of 2010. Be prepared for the surge in hormones again for eg. PMS etc! Having said that, the only good thing about tamoxifen was that it kept me regular and calm. I am glad to be off tamoxifen and back to a new/old me. I've lost some of the weight and bloating that came with it. You are right, there is very little research done on this. The risks were discussed at length with my husband and I - for eg. if cancer were to come back and possibility of leaving a child with one parent. We too are trying to conceive. There is a possibility that I may return onto tamoxifen (maybe a low dose) post pregnancy. That's all for now. I am 39 and have been told by my gyno/obstetrician that if we considered IVF that they use different hormones to stimulate growth to collect the eggs. Also the chance of recurrence in that one month would be minimal, so that IVF, if it were a last resort, will still be a safe option. In 2010, my oncologist referred me for a bone scan and MRI of head, chest and abdomen, plus bloods to make sure everything was ok before coming off tamoxifen. We are still trying naturally - need to allow at least 12 months. I wish you all the best.

Allicat
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Re: Has anyone stopped taking tamoxofin?

Sorry, I can't help as I haven't even started on tamoxifen yet.

That's surprising there is no data - I would have assumed everything like that would have been studied.

Best wishes for whatever you decide to do.

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