Ewings Sarcoma
Thu, 07/01/2010 - 11:40
Would love to chat with people with my RARE cancer. It's tough enough being young with cancer.
Thu, 07/01/2010 - 20:58
#2
Re: Ewings Sarcoma
I just worked out who I'd chatted to who had Ewings Sarcoma - Lora Lee (http://www.cancerconnections.com.au/users/loraleeb)... when she was 16 (she's now 38).
She doesn't use this site much any more, but you could send her an email or PM through her profile (she's also on Twitter). She's a bit busy at the moment going through chemo again (for breast cancer) and publishing her second book, but she's a great person and I'm sure she'd love to hear from you.
Her book is really good by the way. Its a bit hard to get in Australia, we found the easiest was is through amazon.uk.
Cheers
Steve
Thu, 07/01/2010 - 21:35
#3
Re: Ewings Sarcoma
Thanks Steve, i will definately try to get into contact with her!
Thu, 07/01/2010 - 21:36
#4
Re: Ewings Sarcoma
Thanks Steve, i will definately try to get into contact with her!
I have Ewings sarcoma in my sacrum, which is the back of my pelvic bone. Have started chemo and it has started shrinking!!!