Damn nightmares again
Sun, 17/06/2012 - 15:27
I have an MRI coming up on Friday and last night, the first of the nightmares returned again. I had my tumour out a year ago, and all the dates for this MRI and surgeon are similar to last year and the shock of finding out my tumour had been cancer etc. I feel very, very alone but this forum is a great outlet. I just had to get this down.
Mon, 18/06/2012 - 21:17
#2
Re: Damn nightmares again
Pimbok
Hope all goes well Friday fingers crossed good luck
kj
Sun, 17/06/2012 - 16:27
#3
Re: Damn nightmares again
Thanks so much Wombat. Really appreciate your comments.
Kim
Wed, 20/06/2012 - 11:01
#4
Re: Damn nightmares again
I hope the scan shows you to be cancer free. Then the nightmares should stop. Do you know when you get the result ?
Wed, 20/06/2012 - 18:25
#5
Re: Damn nightmares again
I also hope all goes well on Friday for you,the nightmares are terrible so hope they go away.
Dotty
Thu, 21/06/2012 - 07:45
#6
Re: Damn nightmares again
Thanks everyone for your replies and support - I truly appreciate it. I still can't believe how this disease eats into your soul even when you're supposed to be ok - even if it's only for a little while.
Sat, 23/06/2012 - 00:05
#7
Re: Damn nightmares again
Mri is over .Now waiting to hear good news .The results should take no more than a few hours to get to the doctor. I had an MRI on Monday at 11am and the results went to the doctor that afternoon. I saw him on Tuesday at 11 am. There was no sign of cancer for me and am hoping the same for you.
Sat, 23/06/2012 - 14:53
#8
Re: Damn nightmares again
Hi Silly,
That's fantastic news for you! Brilliant!
I've read my MRI report but don't see my surgeon till next Friday. From my understanding, the lump is still the same size and a particular type which they don't believe is cancer, but the scarring is getting worse - which I knew about as it's supposed to get worse for another year. I'm not comfortable about the lump as that is exactly what they said about my initial one. The fact that it hasn't grown also doesn't mean anything to me as my cancer was supposed to be a very slow growing one. I know I'm sounding negative, but I feel like I've been there before. I'm hoping the surgeon will take it out, then I will know what it is.
Take care and thanks so much for your concern.
Sat, 23/06/2012 - 23:17
#9
Re: Damn nightmares again
I can understand your thoughts and feelings about the lump. It must be difficult waiting almost another week to see the doctor.
How do you get to read the report before seeing the doctor ?They always try to send me one by mail so that I receive it after seeing the doctor.Next time I want it before so that I can have questions ready. Mine didn't even tell me that they found sinusitis in 3 different sinuses. I thought I had it but didn't know for sure as I'd never been told by any doctor.
Fri, 06/07/2012 - 18:07
#10
Re: Damn nightmares again
Hi Silly,
I got to read my report because I had to pick up the films in the afternoon. They said the report was ready and asked if I'd like a copy of it which I did. Maybe if you ask them next time, you can have a copy of the report before you see your doc. It was really, really handy. I finally got to see my surgeon this morning after having to wait an extra week as he was away last Friday. Unfortunately, he's concerned that there is so much scarring, it would be very difficult to find the lump and there would probably be more damage than good having it removed including possible nerve damage. If it grows, he'll organise another MRI with markers so he can pinpoint it a lot easier. I'm frustrated as I don't particularly want anything more growing in me and I don't believe the lump is necessarily benign. Guess with this one I'll just have to wait it out. The good news is, I can go off Lyrica now as the pain is so much better.
Sorry it's taken so long to get back to you.
Kim
Sun, 24/06/2012 - 11:16
#11
Re: Damn nightmares again
Hi Pimbok
Although your results show you still have a problem, it is a positive result under the circumstance.
However, I agree with you that you would want it out. If your doctor does not do so, I suggest you get a second opinion.
Most of us know our bodies well, and gut feelings are for a purpose.
Get all the information you can from more than one source to enable you to make an informed decision.
Sun, 08/07/2012 - 18:12
#12
Re: Damn nightmares again
I would feel the same as you ,Kim . I hope he does that other scan and gets it all sorted out and fixed .It's good that you're off the Lyrica . I still take it twice a day ,150mg and 75mg . I will take your advice and ask for reports before I see the doctor next time . That will be in 12 months time unless something bad crops up . Keep us updated with your progress.
Sun, 12/08/2012 - 14:58
#13
Re: Damn nightmares again
Hi,
Saw my surgeon again and he said, "No" before I even got in through the door. He's too concerned about causing more damage for such a "small" lump but is happy to take it out if it grows. I left his room in tears. Guess I will just have to try not worrying and get on with things and see how it goes. I'm riding my bike from Hobart to Alice Springs leaving on Saturday for the Black Dog Institute which will help keep my mind off things.
It's great that I'm off Lyrica but can still feel problems sometimes. I'm sure it will all be fine and I'm loathe to go back on it. Its amazing what cancer and radiation etc can do to our bodies, eh?! You went through yours before mine and it's still going. I hope things are settling down around your eye and you're feeling better about it all. My son and I are heading up to Nerang in January to see my parents, so I'll be in your neck of the woods 
I remember one Christmas when we were up there, it was so hot the balloons melted to their wooden posts. Hope it's much cooler next year.
Take care,
Kim
Sun, 12/08/2012 - 20:06
#14
Re: Damn nightmares again
I'm so sorry that the doctor will not remove the lump to give you peace of mind but maybe he's doing the right thing . I don't know . I guess you'll have to forget about it for a while like you said .
I'm impressed about your bike ride . Wow ! I bought a second hand bicycle a couple of years ago to see if I could ride as I'd onlytried it once since I was 8 years old (sometime in my 30's ) and wasn't very good then. My childhood bike didn't even have gears . Anyway I rode it once, but where we live I need to be able to ride uphill or downhill from our driveway and both are too scary and uphill too hard ,so that's the end of that .
I'm happy enough about the eye now .
I will send you a private message about your Christmas visit .
Sun, 12/08/2012 - 20:07
#15
Re: Damn nightmares again
I'm so sorry that the doctor will not remove the lump to give you peace of mind but maybe he's doing the right thing . I don't know . I guess you'll have to forget about it for a while like you said .
I'm impressed about your bike ride . Wow ! I bought a second hand bicycle a couple of years ago to see if I could ride as I'd onlytried it once since I was 8 years old (sometime in my 30's ) and wasn't very good then. My childhood bike didn't even have gears . Anyway I rode it once, but where we live I need to be able to ride uphill or downhill from our driveway and both are too scary and uphill too hard ,so that's the end of that .
I'm happy enough about the eye now .
I will send you a private message about your Christmas visit .
Sun, 12/08/2012 - 20:16
#16
Re: Damn nightmares again
Hi,
So glad you're happy enough about your eye now.
I should have mentioned that I'm only riding my motorbike to Alice - I can't even get down our driveway on my bicycle
Looking forward to your PM.
Take care
Sat, 10/11/2012 - 11:10
#17
Re: Damn nightmares again
Even your riding a motor bike is impressive to me .
Good luck on Friday pimbok. Hoping its only the nightmares that have returned on a temporary basis.
Wishing you a cancer free future.
Wombat4