Cancer and a sex life - WHATS THAT????
The unmentionable issue. Both my wife and I have a high sex drive and with the cancer, complications and treatment this has been stopped totally. We still cuddle and kiss but it’s all different now. The need to care and the creams potions and pills take the thrill away. It’s like we are different people. This feels strange and is placing different stresses on those we already have. Its like losing something precious, or having that precious thing there but always just out of reach.
Have others faced this? Are there resources or help available? How have others coped with this sort of thing.
Iain
My heart goes out to you, you are a very special Mum and woman. I can especially relate to the time spent with the treatment. My wife spends so much time either having the treatment or having supportive treatment. Fortunately we have a team of friends who give support while I am at work.
It must have been very hard for you with children. It appears that the treatment is part-time to full time in the effort required!
Its great to hear that things are as good as they have ever been for you, This has really brightened my week. Us poor old males tend to be such sexual creatures!!
A year to 18mths is do able for me.
Thank you
Mini Driver
I have a warped sense of humour and i actually found it quite funny that just before i was to have chemotherapy i had a male nurse come talk to me about my sexuality. Am single at the moment too! haha
Ahh, dont be too hard on yourself re sex ... its just another bit of your relationship that cancer manages to turn upside down and you just have to figure out another way to deal.
One thing cancer does i feel is to make us very inventive in our minds and bodies.
Good luck with it all and to your wife also. Anyone having been through treatment has a huge amount of empathy for those that are going through it.
I should tell you about years ago when i was waiting to see an oncologist in a clinic. There were two guys in wheel chairs who had spent time in hospital together. Apparently there was a third one who was still in hospital. They were laughing and joking in the clinic about how when "so and so" was having treatment and was soooooooooooooo sick, they ate all his choccies. lol Plus they took this bloke up the top of some ramp and let his wheelchair go!! Life is what we make of it and thats in our heads and therefore its possible to change our perception. Least thats how i look on it.
take care
Julie
I had a cancer nurse visit me in hospital and tell me not to forget about my sexuality.
Julie
Wow, what a very poor uneducated way to behave I sincerely hope NOT to come across that poor misguided individual. I hope that you wrote and reported this person to the hospital board of directors. I certainly would.
Thanks for your response
Iain
Hiya Iain
No, at the time i was far more occupied with other things. I just thought it was strange, although, its not such a bad thing to bring up per se. Just the timing of it was probably not the best.
I think cancer patients need an initial consultation with a cancer nurse and then a follow up one and information given out at appropriate stages. I think trying to discuss sexuality at this point in time for me, was not worth it.
No offense intended on his behalf and certainly none taken on mine. Just thought it was strange!
Julie
Hi Julie
Thanks for that. Sorry if my response was a bit strong. I am a bit sensitive at the moment, and am usually much more patient with people.
Iain
Hey Iain
dont stress, i think if its one thing everyone on here understands that we are all not as we used to be
, i know i am certainly not.
take care
Julie
Sox!!! Oops ...sorry....even forgot how to spell it. Sex! Not unmentionable at all. I guess I was probably about 3 months out before it even sort of crossed my mind..... I know that probably doesn't help you at the moment but as Vanessa says, let your wife take her time and be your guide. The poor old body has been poked and prodded enough during treatment and it's tough to start feeling like an "appealing" sexual woman again. Cold showers
!!! It does get back to normal eventually but it's all about time.
Thanks so much for your response! (I think!) I know it requires time and adjustment. Its comforting to know that others have and are facing similar issues.
Mini Driver
Thank you for all the comments and input! I have had a laugh today. (about the chocolates) This site is a lovely support.
Iain
laughter is great 
G'day Minidriver
I hear what you are saying - its a bastard
I had a Radical Prostatectomy recently that was not nerve sparing. As a result I am unable to acheive an erection possibly for three years (a year to eighteen months without sex seems quite doable in my eyes.) To give you some idea (and now we are cutting to the chase) all the nerves responsible for the erectile function are shot to buggery and will take time to sort themselves out if they do at all. Nothing I or anyone else can do (and I mean in a personal private way) will help get an erection or even give me hope. Hell I cannot even go to the toilet standing up as there is not enough length to get out of my pants. Sheesh. And I am only 49
Added to that is the incontinence - well that just makes for a real dandy night between the sheets.
And I hear what you are saying about pills and potions. They hardly enhance a romantic night / day whatever. Added to that maybe the need for pumps or injections then a fair bit of the sponteneity goes away.
Now that I have embarrassed myself I had better stop. It seems that the big C has lots and lots of side effects. Its a pity that some of them are spoken about in such a roundabout way.
Do not give up - kiss, cuddle, squeeze, fondle. And yes, laughter is great
Good Luck
Kym
Hey Kym
You havent embarrassed yourself at all!!
Julie
Hey Mini
Right now, my husband is having treatment every fortnight. Now, he's always had quite a high sex drive while mine seems to go in waves.
Of late, mine is dead in the water - I am far too tired and emotionally exhausted to contemplate sex much. Plus, my anti-depressants (for an anxiety disorder) seem to put a dampener on the good ole libido, yay for me.
What's weird is, hubby is the one having treatment, is tired beyond belief yet on his good week (non-chemo week), I have to bring out the headache excuse at least once LOL.
We, being newlyweds, should be shagging like bunnies but like others have said, Cancer Land really takes it out of you. Sex isn't really sexy when you have to worry about contraception so his chemo drugs don't affect me and my fertility, if you get my drift. Or I have to be careful not to touch his surgery scar on his tummy as it's still tender. Kinda takes the spontaneity out of it all.
I think sex for a lot of 'cancer couples' is about staying reconnected and keeping the intimacy alive, even when the body couldn't give a rats ass in a world where it's all very sterile, medical and matter of fact. Well, at least I think that's what it is for us.
Jo
G'day Folks
I went up to the Clinical Oncology Society of Australia meeting up on the Gold Coast a couple of weeks ago. They had a panel discussion on sexuality. They had a panel that had several 'consumers', a nurse a social worker and a sex therapist. This sex therapist was entirely medicalised - sex was just seemed something mechanical. When one person raised the issue of erectile dysfunction she glibly replied that it was no longer a problem as we had appropriate pharmaceuticals to deal with it. Also that if, as you got older, you didn't have sex as frequently it was because you had had boring sex when you were younger! I started to get angry when some old bloke from up the back got up and let her have it. He explained in words of one syllable what loss of libido really meant, that he worked with men who had had prostate cancer and how many couples found that viagra and injections were unsatisfactory because they took away all spontaneity and many older couples where the man had had a prostatectomy decided against using aids and settled for intimacy instead and were quite happy about it. He, really let her have it and I felt like cheering, she was just so smug, glib and medicalised.
It is appalling when these so called professionals just have no understanding of what it is like.
Cheers
Sailor
Without patience, a sailor I would never be. Lee Allred
oh amen to what you have written sailor in regards to "professionals". I could say more, however, its just not right to do so. 
Julie
Hi Julie and others too
Actually I guess I wasn’t really worried about embarrassing myself – beyond that now. More a case of embarrassing all you good folk out there. I generally don’t discuss my erections (or lack thereof) with people. Seems a totally inappropriate and I would normally get the measure of someone before I say too much anyway. I guess I just don’t know who I am talking to here and so I worry that I have said the wrong thing. Sex (along with politics and religion) is one of things we are taught not to talk about in company.
I have discovered that I can talk to people with cancer about all manner of things that are affected by cancer without too much discomfort although I think I say too much and then think “Hmmm went a bit too far there”.
Quite frankly I could do with a shag right now and knowing that I may never have another one leaves me quite depressed so the less I think of it the better off I will be – but hell I am a bloke and we are always supposed to be thinking about it – aren’t we. I really have to get over some of the other issues surrounding my surgery.
Sailor, - your comments from the Oncology Society meeting make some interesting reading too – it is interesting the she was a ‘she’ and probably hasn’t a clue what blokes prostate blokes are going through. The loss of the ability to have a ‘useful’ erection takes away some of a man’s manhood and can be quite disheartening both for him and his partner. I tried to explain this to a counsellor and used the analogy of a woman losing her breasts. She said “I hope you think of women as more than a pair of breasts”. Well der… yes but the loss of them is devastating for a woman as is the loss of the ability for a man to have an erection. But I am getting off the point.
I guess there are other ways and means of releasing sexual tension for cancer sufferers and their partners but along with sex comes intimacy and that cannot be traded away.
Ah well maybe a good night’s sleep will make me feel better.
Cheers
Kym
Is the sun over the yardarm yet?
Hi Kym
The beauty of the internet is that there is a little red "x" up the top right hand corner of our screen and should we choose not to partipate in something we can exercise our democratic right and click it.
I wouldnt stress too much, although in saying that i understand. I was feeling a little iffy as to how much detail etc...
I actually think this is a fantastic discussion.
The thing is with cancer is that we find ourselves with a "new us". We have to adjust and get used to how life is for us now and how it is going to be and sometimes it can be vastly different to how we used to be. Not always an easy thing and some parts of that are harder than others.
Cheers Kym and yes i think the sun is over the yardarm well and truely by now. Depending on when you read this of course. 
Julie
Hello all, thank you for every comment. I have been educated and humbled by your input. I have not had the pleasure before to deal with such a caring insightful, patient group of people before. Already the cancer journey has been greatly improved for my wife and myself.
Thanks, thanks, thanks, thanks, thanks. Hugs and kind regards to you ALL!!
Iain
Hi Everyone,
I swear everytime, I log in there is another post that makes me say 'we're not the only ones'. This is such a great sight to share experiences so honestly. Thank you everyone and thanks minidriver for having the courage to post this topic!!
Alana








Hi Minidriver,
I was diagnosed with cervical cancer 3 years ago at the lovely young age of 31. Things do return to some kind of normal, it just takes time. There are are really difficult things your wife is dealing with right now, both emotionally and physically, it is difficult for you too, but giving her time to come to terms with what she is going through and understanding is really important. When some time has gone by and she is healing she will tell you when she is ready.
I hope that helps a bit. Its a touchy subject that most people dont want to talk about. The team looking after your wife will be able to help with any medical type questions you have & also the social workers are great. But I would say mostly just remember for the most part things can and do return to normal, just tell her you love her and offer her emotional support & the rest will follow in time. I had surgery, chemo and radiation and 2 kids to look after, that was exhausting, but I can tell you happily that things are just as great as they have always been but it took probably over a year for me to feel happy within myself again.
We have a group here on cc your wife might be interested in joining, here is the link.
http://www.cancerconnections.com.au/groups/gynaecological-cancer