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  • 27 Mar 2011 - 00:56
    SILLY's picture

    I was diagnosed with ACC in February ,2010.The tumour was in my nasal cavity,lacrimal duct and lacrimal sac.It was stage 3 cancer .I had surgery in April and imrt in June and July. An MRI in December showed no sign of cancer. There are surgery and radiation side effects.

    This cancer is rare and to have it where I did is even more rare.I know not many Australians have it but still there may be one using this site. I would be glad to talk here to anyone with this cancer.

    31 comment(s)
  • 26 Mar 2011 - 18:56
    Bindy's picture

    I was ten days shy of six year remission mark. I started to feel unwell, night sweats, fatigue, itchy skin etc. Rang my oncologist to get earlier appointment.

    Its back again.

    Had PET scan yesterday and Peter Mac hospital put it on a disk.

    My sister and her husband kept being dismissive. Saying well I had a lump it was benign, I get hot at night and have fan on every night etc, etc.

    So I showed them my PET scan and they just went "Oh Shit".

    Few more tests this week and chemo should be start in about two weeks with a stem cell transplant as well.

    6 comment(s)
  • 23 Mar 2011 - 06:29
    Sailor's picture

    Hi There

    We have recently had another person who is enthusiastic about diets changes, supplements etc., making suggestions to the site. It is their right to do so and I would defend that. I would also suggest a bit of rationality.

    Many of these dietary suggestions have a lot in common - avoid meat; high amounts of fruit and vegetables; lots of 'organic' foods and swallowing lots of juices made from all sorts of vegetables. No sugar, bread, pasta, tea and coffee, alcohol and dairy products. Add to that lots of multivitamins and mineral substances and herbals supplements.

    7 comment(s)
  • 17 Mar 2011 - 23:13
    Allicat's picture

    I finished chemo 3 weeks ago. When I started 4 months seemed like forever but now it is over. I am relieved but not as relieved as I thought I would be. I guess that is because I still have some side effects and also I am going to have a mastectomy in the next few weeks so now I am starting to worry about that. I had put off thinking about that until chemo was done.

    5 comment(s)
  • 9 Mar 2011 - 10:35
    Teacher Mum's picture

    Well folks its been a while since I have been on here and I am in the fortunate postion (at the moment)to have completed a year in remission from my gynae cancer and although the slog is a little tough at times and the 'cure date' is not for another 9 years.

    Nevertheless, I am still counting my blessings every single day and you are never too far away from my thoughts. Cancer is a lifelong club I think, once you join, you never leave and the people you meet will always touch your soul in ways you never imagined, leaving you all the more richer for it.

    4 comment(s)
  • 8 Mar 2011 - 15:16
    diannep52's picture

    Hi All,

    I seem to have some sort of problem with the site. I am being notified by email that there has been a response to a post, but I go looking for it, there is no new response showing. Dont know how this can be, when I have the msg in an email?????

    My apologies to Ally3 and Prayingtobeanswered. I have tried to respond to you both, but just cant do it!!! I will tack my responses onto the bottom of what I have showing as the last post, hopefully it will make sense at your end.

    Lets give a go anyway - sorry in advance if it doesnt work!

    Di Smile

    10 comment(s)
  • 8 Mar 2011 - 13:44
    maddie86's picture

    hi all just wondering if anybody else has experienced really sore aching feet? my boyfriends just finishd radiotherapy and chemo..

    1 comment(s)
  • 2 Mar 2011 - 10:44
    Catherine Keil's picture

    Helloooooo, To all us individuals out there, with our individual treatment raceme....Yepo! Been there, Done that and still doing it ! On HERCEPTIN, Targeted therapy till July 2011. Currently 2 weeks post-Opp 2nd Mastectomy, prophyelactic. Easier said that done, that to be strong, as we all hear all the time !!! But in the words of, Mary Anne Radmacher from the HER2 team..." Courage dosent always roar, sometimes courage is the little voice in us at the end of the day say, Ill try again tomorrow "...........

    0 comment(s)
  • 21 Feb 2011 - 12:56
    PrayingToBeAnswered's picture

    Reposting my story

    From the 17/2

    Really not sure how to feel. Dad was supposedly cleared of cancer couple of weeks ago and now its back and taken over his whole body I hate this he never drank or smoked or anything. He doesn't want to see me hes been in hospital for a few weeks now Mum says his body has swallen up and hes lost control of his bodily functions. He doesnt want me to see him like that and he is still in shock with his current diagnosis which basically is you can try chemo again but your not going to make it.

    12 comment(s)
  • 20 Feb 2011 - 20:34
    david71's picture

    i had testicular cancer twice and i beat it but now 6 years later my feet are killing me the pain is shooting any tips

    5 comment(s)

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