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  • 11 Sep 2011 - 19:58
    johnrp1964's picture

    Been away for a few days. Had the right supraclavicular lymph node removed under a general anasthetic on thursday. Was quite nervous before surgery so they gave me something to relax me. They couldnt get the needle in to my hand as my veins were trying to avoid it, hate needles Smile Being under was great, went to sleep with a smile on my face for a change! Woke up from the operation and had an anxiety attack. Fiance took me back to her place for the night, I felt pretty good so I cooked us all dinner. Stayed there longer than I expected.

    0 comment(s)
  • 10 Sep 2011 - 00:39
    SILLY's picture

    Here we can say almost anything .As long as we don't hurt or offend others. It's funny that we can say things so easily here ,often when we can't say them to our nearest and dearest. It's almost like leading another life away from the real world ,yet this world is real to us too,just not to outsiders.

    Is that how you see this or am I the only one?

    13 comment(s)
  • 9 Sep 2011 - 12:42
    butterfly5's picture

    going to see our friend tonight and cant wait to give him a hug and say i love you. got on the phone to look for a support group for him, but its so raw i don't think he'll go.

    2 comment(s)
  • 8 Sep 2011 - 09:17
    benbravery's picture

    Not enough is written about stomas, not just on this blog, but generally. Here are five things you wouldn't know about 'having a bag' unless you've had one.

    1: I now fart in a more controlled manner. No more holding in wind, clenching muscles and worrying if the person next to me is going to smell it. Having a bag means that all gas is safely collected and ready for release at my convenience. Now that's civilized.

    11 comment(s)
  • 6 Sep 2011 - 18:34
    Daffodils's picture

    Last week I was diagnosed with Vulva cancer. Apparently it is rare and mostly women over 70 get it. I am 51. I haven't seen the specialist yet. They say it is slow progressing and not to worry. Well I am. Although I have read up on it I don't know what stage mine is or what to expect. The whole thing is freaking me out just a tad!

    4 comment(s)
  • 5 Sep 2011 - 13:24
    debstar's picture

    Hi My name is Deb,
    My reason for Blogging is that my darling Fiancée has been diagnosed with Perotid Gland Cancer on the 10th June 2011 since that day we have been to hell and back, and the ride hasn't stopped yet.. Tomorrow we start another chapter in his recovery. We are on our way to the hospital for the planning session for the radiation therapy.

    3 comment(s)
  • 4 Sep 2011 - 20:08
    pimbok's picture

    My radiation finished 2 weeks ago. The next day I had a TIA - mild stroke. I'm fine except for being very very tired and my burns are still healing. I just can't seem to get my head around what's been happening to my body. I want so much to be pain free and back to normal.

    2 comment(s)
  • Meh
    2 Sep 2011 - 01:51
    johnrp1964's picture

    Hi there again computer. Can't sleep so I thought I might as well write another blog entry. Today wasn't such a bad day. Dad came up and helped out around the house and garden for a while. The fiance came over and later on I went round to hers and had dinner. Back pain was quite severe today but I managed to soldier on and ride to the shops and back twice. No diagnosis yet but starting to worry about the back pain and whether its related to cancer or just stress. Worried also that I might be making something out of nothing. What if it's not even cancer. Not coping well emotionally.

    5 comment(s)
  • 1 Sep 2011 - 18:29
    <none>'s picture

    well sorry i haven't been on fo quite awhile,working full time all this year so far and it's not too bad, up in the Pilbara for 2 weeks training some guys up and boy do's the heat wear u down, especially with the limited saliva, hence heaps of water.
    my ENT is next week which will be 9mths out from rad treatment,still got the same old same old, no teeth as yet, maybe top ones before xmas, but i am settled into my mushy eating habits and quite suprised at what i can gum down Smile
    tongue still swells a bit but you guys know.

    0 comment(s)
  • 31 Aug 2011 - 23:55
    johnrp1964's picture

    Things are finally starting to move along now. I have a date set for my biopsy, its on thursday the 8th september. They are going to remove one of the lymph nodes from my right shoulder area. Went and saw the day surgery unit to complete all the paperwork. One of the nurses there was so nice to me. When she realised what I might be facing she put her hand on my arm and asked if I was alright. Well that just set me off. I couldnt hold the emotions back anymore and had a good cry.

    3 comment(s)

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