Latest Blogs

  • 15 Sep 2011 - 10:30
    maddie86's picture

    hey all.. havent been on here in a while...

    8 comment(s)
  • 14 Sep 2011 - 17:38
    johnrp1964's picture

    Hi there again all, finally got my diagnosis today. Its lung cancer and it has also spread to one of the lymph nodes in my neck area as well, so they haven't caught it early Sad They are doing more tests today on the tissue they took in the biopsy last week. Tomorrow I go in for a colonoscopy and a gastroscopy to see if anything is there as well or evidence of a primary to see where it may have started. I am reacting to the news better than I thought I would. I dont think it has hit me fully yet and I am maybe still in shock.

    5 comment(s)
  • 13 Sep 2011 - 18:57
    benbravery's picture

    My ultra low anterior resection was an 'open surgery' because the surgeons needed a good look and lots of light, a better look and more light than if it had been laparoscopic.

    Laparoscopic versions of my surgery leave you with four small holes and a small cut near the pubic bone where the actual tumour and colon is pulled out.

    My open surgery left me with a 33 cm incision and 47 staples. Oh, and I lost my belly button because the incision went right through it, rendering any 'button' unrecognisable.

    Staples are usually made of titanium mixed with a bit of nickel.

    9 comment(s)
  • 13 Sep 2011 - 11:13
    johnrp1964's picture

    Just got a letter in the mail to say I have an appointment with the specialist tomorrow at 10:30am. I guess I will find out tomorrow whether I have cancer or not and I feel absolutely terrified Sad

    2 comment(s)
  • 12 Sep 2011 - 00:10
    Annie333's picture

    Hello all again.

    5 comment(s)
  • 11 Sep 2011 - 19:58
    johnrp1964's picture

    Been away for a few days. Had the right supraclavicular lymph node removed under a general anasthetic on thursday. Was quite nervous before surgery so they gave me something to relax me. They couldnt get the needle in to my hand as my veins were trying to avoid it, hate needles Smile Being under was great, went to sleep with a smile on my face for a change! Woke up from the operation and had an anxiety attack. Fiance took me back to her place for the night, I felt pretty good so I cooked us all dinner. Stayed there longer than I expected.

    0 comment(s)
  • 10 Sep 2011 - 00:39
    SILLY's picture

    Here we can say almost anything .As long as we don't hurt or offend others. It's funny that we can say things so easily here ,often when we can't say them to our nearest and dearest. It's almost like leading another life away from the real world ,yet this world is real to us too,just not to outsiders.

    Is that how you see this or am I the only one?

    13 comment(s)
  • 9 Sep 2011 - 12:42
    butterfly5's picture

    going to see our friend tonight and cant wait to give him a hug and say i love you. got on the phone to look for a support group for him, but its so raw i don't think he'll go.

    2 comment(s)
  • 8 Sep 2011 - 09:17
    benbravery's picture

    Not enough is written about stomas, not just on this blog, but generally. Here are five things you wouldn't know about 'having a bag' unless you've had one.

    1: I now fart in a more controlled manner. No more holding in wind, clenching muscles and worrying if the person next to me is going to smell it. Having a bag means that all gas is safely collected and ready for release at my convenience. Now that's civilized.

    11 comment(s)
  • 6 Sep 2011 - 18:34
    Daffodils's picture

    Last week I was diagnosed with Vulva cancer. Apparently it is rare and mostly women over 70 get it. I am 51. I haven't seen the specialist yet. They say it is slow progressing and not to worry. Well I am. Although I have read up on it I don't know what stage mine is or what to expect. The whole thing is freaking me out just a tad!

    4 comment(s)

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