Latest Blogs

  • RIP my beautiful husband
    23 Feb 2013 - 22:57
    Tammy Woods's picture

    At 4.40am yesterday morning (22/2/13), my husband took his final breath. I was with him until the end, and I know that he is in peace now.

    I spent some time today with the funeral director and walking around the crematorium finding a beautiful final resting place. Trying to get the eulogy and funeral details sorted, but I'm not in a good head pace right now.

    Read more
    9 comment(s)
  • Chapter 3 Surgery
    22 Feb 2013 - 17:29
    gn21's picture

    Scheduled for surgery in March 2009. Being a tough as old boots I just get partner to drop me off and come see me the following evening. But fate intervened, and he appeared in my post surgery haze telling me that the surgery had to be stopped as the cancer was more widespread than appeared, and pathologist bought in to view results thought breast cancer cells were making an appearance. Great!

    Original specialist drops in to say 'this isnt what we wanted to hear' and charges me for the appointment!

    Read more
    2 comment(s)
  • It's bad news
    22 Feb 2013 - 16:32
    jobeth's picture

    Results: tumour deep within the limbic system. Inoperable.

    It's not the end. It's not the beginning of the end. Perhaps it's the end of the beginning?!.

    Jo

    Read more
    2 comment(s)
  • FEAR = False Evidence Apperaing Real
    21 Feb 2013 - 13:15
    jobeth's picture

    Except CANCER!!!

    FEAR of what happens after diagnosis. FEAR of treatment.. FEAR of that next investigation scan. FEAR of the time that you seemed to be doing nothing. FEAR of how people react to you, strangers in a shop or your work mates or boss. Do they shake your hand or do they look at you with pitty and slide away as quickly as they can. FEAR being left behind.

    Read more
    7 comment(s)
  • Chapter 2
    20 Feb 2013 - 11:56
    gn21's picture

    Realised I probably need to cut the long story short and focus on the lowlights and highlights!

    Having gone through the X-ray, ultrasound and CT scan, and having the doctor ri going me urgently (always a worrying sign) it was fairly clear that it was suspected I had lung cancer. Time to start talki g to partner about it, having kept quiet for the precious 2 weeks. So during dinner on the Friday night I turned off the tv and uttered those scary words 'we need to talk'. A few tears were shed, the only ones ever shed in fact.

    Read more
    0 comment(s)
  • To blog or not to blog - that is the question
    19 Feb 2013 - 15:20
    gn21's picture

    Well, I'm 4 years in with Stage 4 lung cancer. And we all know there is no stage 5.

    I have been tempted a number of times to start a blog but it always seemed too hard. Plus I wondered whether I had anything useful to say. But this site seems to make it easy, and I guess after 4 years, heading into my 5th, I must have something useful to say surely!

    But what are my motivations I wonder? I guess like all of us I have a story to tell. And the need to reach out to others who understand that this new 'normal' can be a very strange place.

    Read more
    5 comment(s)
  • My brother
    19 Feb 2013 - 11:09
    Quail Cottage's picture

    My brother has Leukemia and is undergoing bone marrow cell
    transplant this coming week. I do not live close to the
    Hospital (VGH) BC. My other brother is coming from Thailand
    as a donor.

    I have tried my best to keep in touch via email, and phone and
    visits but I seem to be the one in the family that he projects
    all his anger upon. We have a diverse family of 5 siblings who
    do not get along at the best of times so this is a very stressful
    time interacting with any of them. It has become so difficult I
    have pulled out of the family dynamics and am trying to cope with

    Read more
    3 comment(s)
  • Dreams
    18 Feb 2013 - 21:25
    maddie86's picture

    I keep having dreams about my husband... husband... sounds weird when i say it because he is no longer... yet was only mine for a month... in my dreams he is talking and acting so normal, yet i know he isnt supposed to be there... i miss him so much it hurts. I feel like he was just supposed to go away for a little bit and come back.. is this normal? I sit here in disbelief at times and think 'did i just get through that?'....

    Read more
    2 comment(s)
  • GBM - MRI Coming Up
    18 Feb 2013 - 12:21
    jobeth's picture

    I hate the week leading up to an MRI. Every little thing takes on new meaning.

    A stumble, "is that a new tumour"?, a headache, "has it grown back'? My husband is living on Zanex and I'm on a razor's edge with fear.

    How long do we have to live like this? Why cant a cure be found?? I read the stories of GBM spouses and I hate the pain and suffering they have to endure. Watching their loved ones slip away and, I know it will be me some time in the near future who will sit helpless as my husband is taken from this world years before he should be.

    Read more
    2 comment(s)
  • A new kind of living
    16 Feb 2013 - 20:41
    Rubes1984's picture

    Its been a while since I last posted, life has been super busy and I have been adjusting to a new kind of living.... Living and coping after cancer treatment and returning to some level of normalcy.

    Firstly I have gotten off all the pain medications and I am feeling much better for it. Although I still experience pain I am grinning and bearing it, managing on panadol, hot showers and bedrest. Its a new kind of living which Will take a lot to adapt to.

    Secondly I have returned to work part time. I have been back for about a month, its exhausting me however its nice to be back.

    Read more
    0 comment(s)
Sort by:[Name][Number of posts]

Runningman (1)
Lisa5911 (1)
jocelyngoodwin (1)
melre0213 (1)
carolyn2 (1)
JulieLV (1)
drumma (1)
Xanadu (1)
paul.manning (1)
gwenneth8 (1)
Kylie Cameron (1)
beckstar73 (1)
Pilens (1)
Stacey (1)
SueI (1)
postiesgirl (1)
Newbegin (1)
Pennygirl1968 (1)
Sunshine76 (1)
David Robertson (1)

What is a blog?

A blog is a shared on-line journal where people can post diary entries about their personal experiences. You can post a new blog entry using your "My stuff" box on the right side of this page. The list of latest blog entries can be found here. For general discussions please use our forums.

Introduce yourself

Are you a new member and looking to share your stories and experiences with others who understand? Visit the Introductions Group and share as much or as little about yourself as you would like. It is a great place to let other people find you and to share details about things that are important to you. Click here to say hello and introduce yourself to the community. Community members, come and make our our newest members welcome.