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My Journey ...

11 Jan 2013 - 06:24

Been a fun 6 weeks. Bit of bad news has come my way, on 3/12/12 they found some nasties when I was being CT scanned for another issue. Enlarged lymph nodes and 2 liver lesions found incidental to the scan for kidney stones. My GP said to me straight out (without any further checking or tests) you have Lymphoma. He gave me lots of info and advised me to sign onto the Liverpool Hospital Cancer Centre immediately and arranged an urgent appointment with a liver guy too.

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His Beautiful Blue Eyes Closed!

9 Jan 2013 - 21:36

Kevin passed away 28th Nov 2012! It was very peaceful. He took a seizure Th 22Nov whilst having Avastin ( no known connection). Would try again. Was admitted to hospital and transferred to Monash Clayton. The Asphagia and I guess the brain cancer made it difficult for him to communicate and he couldn't stand on his own. I didn't know how I would manage him at home if he couldn't stand to get from the bed to the wheelchair etc. I didn't need to worry as later that day he took a seizure from which he did not really recover consciousness or whatever level he was at.

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To scared to sleep

9 Jan 2013 - 18:08

Hey All
This is my first blog…I have felt the need to join the website to chat with people who are going thru similar experiences who may be able to offer some advice/tips etc on the dreaded prognosis of terminal cancer to which my Dad is living with.

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Time to reflect

8 Jan 2013 - 13:49

Its been a while since I have visited and/or posted on this blog, in fact it was the day my dad died that was the last time.

Since then I have had my ups and downs as you can expect and the road has been paved differently to that I thought it would have been.

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Part 26: 'Blocked' - What the Doctor Didn't Tell Me.

7 Jan 2013 - 10:08

This blog post talks about the side effects of all the anti nausea medication I was on during treatment. It wasn't always just the chemo that made me not well, it was the things that were supposed to make me better too haha.

http://www.thecancerstory.com/2012/02/part-26-blocked-what-doctor-didnt-...

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missing him

6 Jan 2013 - 15:57

its been just over a month and today is a bad day... it all started a few days ago i started to become lethargic then today i eventually broke down n pretty much cried all today. I miss him so much... i want to smell him again, to touch him, to have him hold me... when i used to get upset over him dying he'd console me and hug me so tight it was like instant relief. Ive been walking around the house moping and crying and both my parents have ignored me! My dad is in a terrible mood and my parents are just ignoring me while i bawl my eyes out...

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Ready for round two

5 Jan 2013 - 19:13

Just back from spending a week with my mum in Adelaide as she fnished her radiation treatment. I get to spend two days doing family stuff before we start our daily runs to hospital for Petes radiation.
Mum is a rural patient and had to stay in Adelaide for her treatment, fortunately the cancer council SA has fantastic accomadation available to patients with a shuttle bus that runs between hosptial and motel. I got to meet some wonderful people there, all there because of cancer. Some just starting and some who were well into there treatment.

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seems to never stop.

4 Jan 2013 - 20:29

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Dad

4 Jan 2013 - 02:08

My father passed away three weeks ago under palliative care at home. I was honoured to spend his last days on earth with him. I am unable to sleep and feel that I need to express how I feel so I have written a poem. I'm no expert at it but it makes me feel better to tell the world how I feel.

As a baby you were my world
As a child you were my hero
As an adolescent you were my idol
As an adult you were my wise advisor
As a bride you will be with me in spirit
As a new parent you will be missed
As my children grow you will be remembered through your legacies

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Chemo delayed.....

3 Jan 2013 - 20:02

Today we attended our scheduled appointment with the oncologist in Ballarat to commence our Chemo program for the next 6 months.

Oncologist was not happy with Nigel's progress after Radiation/Chemo as he is still very weak and very breathless. Doctor sent him for a doppell scan on calf and CT on chest. Diagnosed with blood clots on right leg lower and upper. Both lungs also show a blood clot on each. Now he is in hospital for two days, we now have to learn to give him injections to assist with dissolving the clots. Has anyone else experienced blood clots?

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