Latest Blogs

  • 22 Jun 2011 - 00:01
    BJS's picture

    My husband spent 11 hours at the hospital last Friday having tests etc in an endeavour to get into a clinical trial. The doctor phoned today & said at the moment they don't think he's fit enough to go on the trial!
    (How fit do they expect him to be? He's had cancer for over a year!!!)
    Even before cancer my husband wasn't what you would class as an active person, he had retired from work & his days mostly consisted of sitting in front of the TV!

    0 comment(s)
  • 21 Jun 2011 - 23:05
    Peaacal's picture

    Today is my youngest son's 11th birthday and it is the first birthday that my father has not been here to celebrate the special day. Two weeks ago we were discussing gifts of bmx bikes and birthday celebrations, today it is impossible to not notice his absence.

    4 comment(s)
  • 21 Jun 2011 - 21:28
    mel015's picture

    today mum went and had a heart scan done, i think it went well and all was ok, i then took her to the oncolgy unit to find out when they would be starting the chemo, they are still unsure as they are still waiting on results to be able to start from canberra, its so frustrating, she just wants to start fighting and i feel this really let her down, it let me down, i want to see her stepping forward in this process and the start for us is to do the chemo!! why does it take so god dam long to get it all going??

    3 comment(s)
  • 21 Jun 2011 - 19:57
    Deb1960's picture

    HOW DARE YOU !!!!, we have enough to deal with in our lives without you doing this ?

    Have you heard of Karma?

    1 comment(s)
  • 21 Jun 2011 - 13:38
    SILLY's picture
    I was shocked to find my blog of 26th May this year appears on the net. If you google adenoid cystic carcinoma in lacrimal duct my blog from this site appears. I don't know how or why this happened. I don't know how to remove it.
    2 comment(s)
  • 20 Jun 2011 - 17:30
    sandy1960's picture

    i hate that look everyone gives you when they know you have cancer I live in a small coastal town and own a business here, people that would normally stop and say hello now put their heads down or just give the look and walk away hey people i am not dead yet and dont intend to be for awhile there is plenty of fight in this old girl i tell you. i have only just been diagonised maybe the novelty will wear off

    4 comment(s)
  • 20 Jun 2011 - 08:08
    Deb1960's picture

    1. It is open 24/7, no appointments necessary.

    2. It never says, sorry our time it up for today, esp when I have just got onto the subject that's really bugging me.

    3. It does not have eyes, never gives you any "looks" if you have not had the look yet it will happen.

    4. The people from Cancer Connections (staff) I have spoken with so far have been the nicest, most open to helping people you can wish for at this time in your life.

    5. The more I read other peoples thoughts & stories the more I know I am normal, this is what really happens in our heads and lives.

    10 comment(s)
  • 19 Jun 2011 - 19:44
    mightymel's picture

    well this is new to me so i guess ill just tell you a little about me Smile my mum was diagnosed with lung cancer in november 2010 it had already spread to the lymph nodes in her neck by the time she saw the specialist i was with her and they told us that it was terminal and inoperable it was such a shock as i always thought she'd grow old and we would have shopping trips and afternoon tea outings shes only 59 now at first i thought ok lets tackle this head on i researched everything i could on lung cancer treatments and outcomes but it made things worse it wasnt giving me any good news.

    1 comment(s)
  • 19 Jun 2011 - 16:59
    mel015's picture

    Is it normal for me to be worrying more about my dad then my mum who is the victim of this? i worry his not coping, mum is his bestfriend his soul mate, they are the perfect couple, they are all i wanted to be!! working out how to help him and making him realise this is hard and painful but its our battle not just her battle, i just hope he knows how much i love him and how much i will be there for him good days and bad!

    2 comment(s)
  • 19 Jun 2011 - 12:22
    Loulou's picture

    There is so much to take in and so much going on in my head. Trying to stay positive, but also worrying about the worst. The ticking of that time bomb clock seems to get louder at night. It's often a see-saw from one emotion to the other. Your perspective on what is important in life can change so quickly. At least on here we can relate to each other on how you feel, and I know myself with sleep issues someone saying to you "you just need to relax" really doesn't help, it just makes you scream inside.

    3 comment(s)

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