Latest Blogs

  • 17 Dec 2010 - 18:27
    Vicki Anne's picture

    My daughter went home interstate today. I cant believe the incredible feelings of sadness that have overwhelmed me this afternoon. I cry at the drop of a hat. I miss her already. this is not a normal reaction. Although I did feel a bit over emotional earlier in the week as well. I think I have just had enough of the chemo. fingernails are starting to look ridgey (is that a word) and red also.

    6 comment(s)
  • 17 Dec 2010 - 09:59
    <none>'s picture

    Hi All,

    Saw the Onco yesterday and all things seem to be going OK,3 monthly visits for the next year, He is happy with the free flap and i have to manage the Lymphedema with my good massaging techniques, hopefully softer than his hands as he nearly choked me.

    Now all i need is some calm weather so i can get my RC heli in the air and hopefully keep it there.

    Xmas wishes to you and your families.

    Dave

    3 comment(s)
  • 16 Dec 2010 - 20:17
    Vicki Anne's picture

    I have 2 weeks to go with chemo. yahoooooooooooo......
    I finish on 30th December. Not quite in time for Christmas but certainly in time for New Year. PICC line comes out and I will be free to a certain point for new year.
    The tumours have not gone away completely and probably never will, but they are shrinking. So it should be contained for a while. I think they were a little surprised at how well I am going at this stage. Fingers crossed it will go even better in the January scans.

    2 comment(s)
  • 16 Dec 2010 - 19:58
    Vicki Anne's picture

    Well I am still going with the 365 day project. I haven't missed a day yet although some days I have got to the end of the day and remember I haven't done the photo. I have had my daughter home from interstate this week. She is getting married here in March so the week has been full on with wedding arrangements and finalising bookings on some of the things for the day.

    3 comment(s)
  • 16 Dec 2010 - 06:29
    harker's picture

    Yeah, I know. It is 6.04am. But I am up early and have a cup of coffee in my hand and don't have to do anything at all today.

    I just wanted to say how useful I found the list of hints for handling the holiday season. It's on the home page here.

    I constantly grapple with the energy in-energy out equation. Some days I am way out and it takes many days to recover. Other days I get so much done because I have decided to do nothing. It's very strange and kind of hard to get used to. But there it is. There I am. Here we are.

    7 comment(s)
  • 14 Dec 2010 - 18:15
    Bluejandaling's picture

    I ate something bad this morning and puked it up. I know it's just had food but after the last 6 months, this feeling is a little scary.
    A friend of mine in the US got through treatment completely stoned. It's been 10 years for him and I often winder whether or not it's better to be high through it all.
    I'm still bald. It's only been 2-3 weeks since the last chemo.
    I've pretty much distracted myself with bad DVDs ... Or at least they feel bad now that I'm sick... Which is ok.
    I know that this is just bad food.

    3 comment(s)
  • 13 Dec 2010 - 21:38
    Bluejandaling's picture

    I haven't spoken to anyone since I finished treatment about much.
    I obviously have a lot on my mind or else I wouldn't be here as an anonymous blogger. I'm due to see a CBT psych next week. She's a woman who has an ideal way of being for you to work towards.

    I'm at the stage where I'm too tired to live in fear. It's unsustainable.

    I've spoken to 2-3 young survivors of lymphoma. One who went through it 10 years ago.
    It really helps to meet other young adult survivors. I'm still young medically speaking.

    2 comment(s)
  • 13 Dec 2010 - 21:22
    Bluejandaling's picture

    When I was first diagnosed, I didn't know how I'd cope. People said I was really brave, positive and strong. I really had no option but to be. I had to be open to everything including the idea one's frame of mind plays a role in survival.
    I took a lot of lorazepams to deal with my anxieties, but I did meditate and force myself to look at what I still had going for me.

    0 comment(s)
  • 13 Dec 2010 - 19:31
    Bluejandaling's picture

    I've just come out of treatment for Stage 4 Primary Mediastinal Diffused B Cell Lymphoma (PMBCL). It falls under Non-Hodgkins, but is it's own little category of lymphoma as the histology of the disease isn't strictly NHL. The prognosis is good and I'm learning to live without fear, and to make the most of the second chance my doctors gave me.

    It's been less than 2 weeks out from my discharge from hospital following a week long stint post final cycle due to febrile neutropenic state. I was actually cytopenic - all the cells were down.
    Penic.
    I like that word.

    3 comment(s)
  • 10 Dec 2010 - 16:44
    Sailor's picture

    The Following came through from the Health Issues Centre weekly Bulletin. some of you may already receive it so I apologise of you have it already. However, for those of us who appreciate slightly dark humour, I thought this would add to the collection.

    Effective immediately, the following economy measures are to take place in the "Twelve Days of Christmas" subsidiary:

    • The partridge will be retained, but the pear tree never turned out to be the cash crop forecasted. It will be replaced by a hanging plant, providing considerable savings in maintenance.

    2 comment(s)

What is a blog?

A blog is a shared on-line journal where people can post diary entries about their personal experiences. You can post a new blog entry using your "My stuff" box on the right side of this page. The list of latest blog entries can be found here. For general discussions please use our forums.

Introduce yourself!

New to Cancer Connections? Introduce yourself to the Community HERE

Information for Carers

INFORMATION FOR CARERS: tips and strategies about Emotions, Communication, Practical Issues, Death and Dying and Grief, Loss and Bereavement.

Partners, Family & Friends (Carers)

CLICK HERE to connect and share your experiences with other people caring for someone living with cancer.

Survivors

Finished cancer treatment? Check the latest survivors discussions and blogs or come and share your own experiences at our online forum for cancer survivors and their carers, family, friends and workmates.

Young Adults

Young Adults affected by cancer can face a range of challenges, including career & finances, body image, fertility & sexuality, personal relationships and family & friends.

Check the latest Young Adults Discussions .

New to the Cancer Connections? Introduce yourself to the community HERE

Member Search

Connect with others like you. Search the Cancer Connections Member Community by AGE RANGE, CANCER TYPE or USERNAME.

It's quick & simple!