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  • 13 Dec 2010 - 21:38
    Bluejandaling's picture

    I haven't spoken to anyone since I finished treatment about much.
    I obviously have a lot on my mind or else I wouldn't be here as an anonymous blogger. I'm due to see a CBT psych next week. She's a woman who has an ideal way of being for you to work towards.

    I'm at the stage where I'm too tired to live in fear. It's unsustainable.

    I've spoken to 2-3 young survivors of lymphoma. One who went through it 10 years ago.
    It really helps to meet other young adult survivors. I'm still young medically speaking.

    2 comment(s)
  • 13 Dec 2010 - 21:22
    Bluejandaling's picture

    When I was first diagnosed, I didn't know how I'd cope. People said I was really brave, positive and strong. I really had no option but to be. I had to be open to everything including the idea one's frame of mind plays a role in survival.
    I took a lot of lorazepams to deal with my anxieties, but I did meditate and force myself to look at what I still had going for me.

    0 comment(s)
  • 13 Dec 2010 - 19:31
    Bluejandaling's picture

    I've just come out of treatment for Stage 4 Primary Mediastinal Diffused B Cell Lymphoma (PMBCL). It falls under Non-Hodgkins, but is it's own little category of lymphoma as the histology of the disease isn't strictly NHL. The prognosis is good and I'm learning to live without fear, and to make the most of the second chance my doctors gave me.

    It's been less than 2 weeks out from my discharge from hospital following a week long stint post final cycle due to febrile neutropenic state. I was actually cytopenic - all the cells were down.
    Penic.
    I like that word.

    3 comment(s)
  • 10 Dec 2010 - 16:44
    Sailor's picture

    The Following came through from the Health Issues Centre weekly Bulletin. some of you may already receive it so I apologise of you have it already. However, for those of us who appreciate slightly dark humour, I thought this would add to the collection.

    Effective immediately, the following economy measures are to take place in the "Twelve Days of Christmas" subsidiary:

    • The partridge will be retained, but the pear tree never turned out to be the cash crop forecasted. It will be replaced by a hanging plant, providing considerable savings in maintenance.

    2 comment(s)
  • 10 Dec 2010 - 09:21
    Lizd's picture

    I am not even sure this is where one writes but I wanted to join as a friend but am obviously techno challenged. Have enjoyed you on In touch group.
    Won't say much here as I am not sure where to place a message
    Liz

    2 comment(s)
  • 9 Dec 2010 - 21:24
    chris martin's picture

    My beautiful dad and my best friend passed away 12 weeks ago and I just want to thank all you great people who have helped me along this difficult road. But now that he is gone I'm finding it even harder to cope. Just don;t know what to do as I am missing him SO SO much. I know he is around me and I should be thankful for that but some people have been telling me "he has been gone 12 weeks so get over it" but it is not that easy for me and I don't think I will get over losing him- he was my dad and my best friend!!!

    6 comment(s)
  • 9 Dec 2010 - 21:12
    bev's picture
    3 comment(s)
  • 6 Dec 2010 - 22:06
    Jewel and Mark's picture

    Yep, I am still in limbo land....thinking of getting a job as a limbo dancer now....

    Nothing has changed,and I mean nothing at all....it has not got easier, despite all the words of wisdom from many in the early days.

    I still feel like I am having a heart attack every week...some days the pain is so bad I feel it radiate down my arm and into my wrists , to the palms of my hands into my fingers.....some days so bad all I can do is cry and hold my hands under cold water to get the cirulation back....however the doctor is still adamant it is all in my mind....

    5 comment(s)
  • 6 Dec 2010 - 15:33
    maddie86's picture

    its been 6 months now since my bf has been told he has cancer, and one thing ive noticed is how many friends dont talk to me anymore.. one of my 'close' friends has 'barred' me (stoped talking) to me over something sooo stupid its not even worth typing.. ud think your friends would be here for you in a time of need but their not? it makes me so angry and i feel sad because id be there for them if this happend..
    my friends all go out to nightclubs all have fun and never invite me anywhere.. its so hard :(i just wish that for one day they knew exactly how i felt..

    1 comment(s)
  • 6 Dec 2010 - 13:57
    masupe's picture

    after Peter my husband was diagnosed with Acute Myeloid Leukemia type M2, our dreams of have a holidays became a bad dream. We can't afford this. We live from centrelink payment. I am a pensioner, and we have a lovely son 6 years old. Peter is in remission for the moment, but you can imagine how he became after the bombs of chemotherapy in his body. He became with a heart attack during the chemio, and plus his energy became funny. someday he have lot of energy and sometime he need bed all day.

    1 comment(s)

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