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  • 10 Feb 2015 - 08:28
    GeeGee's picture

    Daz finished his treatment 5 weeks ago and is still suffering fatigue so bad he can't hardly move, he sleeps most of the day and all night, is so grumpy and has quit smoking because he can't get up to go outside to smoke. Thank god for for that, properly the only good thing that has come from this.

    4 comment(s)
  • 6 Feb 2015 - 20:14
    nello's picture

    I was treated for anaplastic large cell non-Hodgkin lymphoma about half way through 2013. I endured 6 cycles of CHOP. Nausea and vomiting were a huge issue. I did get good control once I was on the right antiemetics but I was still sick on chemo days. It was like having a terrible hangover but I remembered what I did the night before. Haha.

    1 comment(s)
  • 2 Feb 2015 - 13:35
    little stitcher's picture

    My husband was diagnosed with stage 4 follicular nhl in 2011. He went into remission after 3 months of chemotherapy, and has been doing brilliantly- up until now. He is due for a check up in 2 weeks, and we just got his blood test results today- his lymphocytes have been dropping over the past 12 months (he has 6 monthy blood tests). The thing that worries me the most is that they have been dropping at a steady rate- 0.3 every 6 months. They are just borderline normal, but it's the trend that I'm really concerned about.

    1 comment(s)
  • 2 Feb 2015 - 10:18
    d s g's picture

    After suffering with Lichen Sclerosus I have now been diagnosed with Paget's disease. It is a very rare pre-cancerous condition. I have elected not to undergo surgery & am using a cream caller Aldara. I am wondering if there are any other women with the same. It is not Extra-mammary Paget's. I am feeling alone as there may be only a couple of hundred women in Australia with this condition.

    8 comment(s)
  • 25 Jan 2015 - 23:35
    Kathleenbrez's picture

    It has been 21 years since my dad has past away from leukaemia, and as much as I can say that 21 years is along time and that time moves forward and our lives are getting busier it doesn't change the fact that he was taken away tooo soon.
    I will always miss my dad and the man he was I hope one day to be the person he was.
    Leukaemia maybe a disease that takes away our loved ones but we can all feel normal in our grief and treat everyday as beautiful as we can.

    0 comment(s)
  • 24 Jan 2015 - 22:32
    Kathleenbrez's picture

    This is my experience with acute myeloid leukaemia it was on another blog name but I changed my account.

    0 comment(s)
  • 23 Jan 2015 - 02:45
    Play Misty 53's picture

    My daughter has anaplastic oligodendroglioma with no co-deletions, after two craniotomies the only further treatment is the possibility of more surgery. I feel desperate and dont know where to turn. Life can be cruel! If any-one has some sort of survival mechanism I would love to hear from you! God Bless!

    0 comment(s)
  • 14 Jan 2015 - 16:17
    Shoonyananda Saraswati's picture

    Good afternoon to everyone.

    Sometimes we can overdo the appointments and arranging to "appease the disease".

    God knows how I made it through my breast cancer treatments.

    It's eight months since my last radiotherapy zap and I am having to cancel medical appointments. Accupuncture and appointment with the breast care nurse.

    Was re-prescribed the 12 morphine patches by my favorite chemo registrar, Tristan. This has made the pain-killing accupuncture redundant and not necessary.

    It was an easy choice not to go to see Dr Oh, rather to say "No!!".

    1 comment(s)
  • 30 Dec 2014 - 10:20
    GeeGee's picture

    It's day 2 of radiation today, it was an early appointment so Daz said his Mum will take him but when it was time to leave she refused to drive him and he went on his own. Not sure why she didn't take him but could be because we went to see his sister last night and they talked about his Mum, so Kym must have called her when we leaft their place. Who knows but it a lousy thing to do I think. I wish Daz had of let me know and I would have taken him. poor Daz dosn't need that sort of thing, he has enough to cope with. So far no side affects. Let's hope it stays that way.

    0 comment(s)
  • 6 Dec 2014 - 19:53
    GeeGee's picture

    Darryn was told yesterday that he has to stop the drug trial and have radiation therapy. They have found 2 spots in his brain and 2 in his lung. It's so frightening to be facing this I can only guess how poor Daz is feeling. He is so down I am worried about him. He started taking steroids and is sick and is so tired, I hope these side effects go away soon. Don't have much else to say, just trying to get my head around this and be there for poor Daz.

    0 comment(s)

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