Latest Blogs

  • 2 Dec 2015 - 22:16
    Free's picture

    I am glad my mum is home. I am grateful that she has access to highly respected specialists, that she lives in an area with excellent medical facilities, that she has caring friends and strong faith, that she still makes a great latte, takes pleasure in her garden, finds peace in her music, speaks wisdom and love to her grandchildren. I am grateful that she is braver than I am as she faces more treatment.

    1 comment(s)
  • 30 Nov 2015 - 00:09
    SILLY's picture

    A family member has been diagnosed with this cancer . It's rare and if past Stage 1 it has a poor prognosis . Does anyone here have this cancer or do they know of anyone who has been diagnosed with it ? Any feedback will be appreciated .

    0 comment(s)
  • 23 Nov 2015 - 21:38
    Free's picture

    Today is Mum's eighth day in hospital following her most recent surgery. Hard to believe that this time last week she was in incredible post op pain. Now she is back to so much of what she could do before. Hoping she will be home and back in her own bed soon.

    1 comment(s)
  • 21 Nov 2015 - 18:43
    Free's picture

    Mum's cancer has been like a rollercoaster, so many twists and turns, so many sudden, terrifying jolts. As her daughter,I emotionally ride the front carriage with her, but physically, I watch as helpless bystander as she goes through more than I could ever imagine having to endure. This week she had her third cancer surgery in three years, an emergency procedure that was totally unexpected. What was also unexpected were the horrendous medication side effects she had following the surgery.

    0 comment(s)
  • 20 Nov 2015 - 06:36
    lawman's picture

    Well...the journey has now really begun. I've had the PSA tests, the biopsy, the scans and the revealing one-on-one consultations. I've had the uncertainty. I've had the sleepless nights.

    I have cancer. Wow. How cold those words look on a page. How emotional those words make me feel. Yet, in being able to say it, there is a calm freedom. Now that I know. Now I have to act.

    Yesterday I met with the radiologist at the hospital. He was a calm, focused and friendly man. He gave me hope...

    20 comment(s)
  • 19 Nov 2015 - 16:56
    smartyaligatorpants's picture

    time heals - not for me. time just makes my lonliness more prevelent and more isolating. i feel cheated and so alone. i hate it!!! there is no one, nobody and nothing to fill me.

    2 comment(s)
  • 10 Nov 2015 - 10:35
    luckiestgirl's picture

    After twelve months recovery myself, yesterday my husband was diagnosed with a superficial spreading melanoma stage 1A Clarks level 3 mitotic rate <1 and a nodular melanoma stage2C Clarks level 4 mitotic rate 10>. Referred to melanoma clinic. Waiting for phone call for appointment.

    11 comment(s)
  • 23 Oct 2015 - 15:36
    MARGNI's picture

    Sorry, this might be a bit of a ramble. I should have written this kind of thing before. Hopefully it will give some hope to anyone with cancer - specifically locally advanced nsclc (advanced to lymphs in neck). I was first diagnosed in November 2013 after developing a cough on holiday. X-ray revealed enough for my GP to call it asthma. I thought no way, and asked for a CT scan. That told a very different story. Anyway things happened very quickly. 6 weeks of radical chemo-radiation therapy (concurrent - the best way, if you can stand it).

    6 comment(s)
  • 5 Oct 2015 - 19:03
    lɛftəʊvə's picture

    PSA today is 4.4 same level as a year ago after the biopsy was carried out. Dropping slowly and Doctor is happy with it. Whereas I would like to see it well below 2.0. so it's all too slow for me to accept remission is here.

    Weight loss to date is 10 kilos for no apparent reason. Blood tests were clear on anything abnormal. Have not bothered to buy new clothes so jeans look too big and I have progressed to a smaller belt and already gone down 3 holes sizes in that belt. I think the weight loss has stopped though as 74 kilos has been my weight for the last 3 weeks now.

    0 comment(s)
  • 29 Sep 2015 - 17:32's picture

    I have been diagnosed with cancer cells in the oesophagus I was to have an operation to remove them only to find out at the last minute that they were also in my upper oesophagus so now I'm waiting to have another dye test to find out if an operation can go ahead having second thoughts and maybe like to look at other ways of dealing with this.

    0 comment(s)

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