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Small Bowel Cancer - April 2014

joybell16's picture

CA19-9 now 14000. No decrease at all during chemo. Husband has decided to cease chemo as the last 3 weeks have not been kind. Extreme fatigue, abdominal pain and DVT pain in right calf. Not sleeping very well at all. One benefit - farting has decreased dramatically!! Handing it all over to our Creator and Lord, Jesus Christ. Smile Hopefully the effects of chemo will go (if it is the effects of chemo being observed) and there might be some improvement in the short term.

Cancer, Work & You: Webinars - Has Cancer Changed Your Work Life?

felixr_cancercouncilnsw's picture

Hi All,

Has Cancer Changed Your Work Life, or you are just interested in the effects of cancer and work?

Would you like to find out and talk more about it?

We invite you to join us and to share your experiences in our new series of (free) interactive Webinars.

'HOW WILL RETURNING TO WORK AFFECT ME?'

Thursday 10 April 2014 – 7:00 – 8:00pm AEST

For more INFO and Registration please visit: http://goo.gl/9ATgA0

Any questions? please email: helplifegetbetter@nswcc.org.au

Mark has a brain tumour. Tracking and discussing my experiences with glioblastoma.

Mark Ingham's picture

Hi. My name is Mark. I am 43 years of age. I live in the inner suburbs of Melbourne, having moved from Sydney around 8 years ago. My partner’s name is Nat, and we have no children. For the last 10 years I have worked for a major health insurance company in and around their call center in lower level management and organizational roles.

6 months...

smartyaligatorpants's picture

6 months of lonliness. The days pass with exhaustion, anger, regret and fear. Time stops, speeds up and all throughout I feel lost. At times, abet few, I feel 'myself', then I am hit with the loss and am taken aback by the grief. I am frightened that time passing will take me away from this and that memories will fade.
I am just so angry with all of this!

Small Bowel Cancer - 27 March 2014

joybell16's picture

Just complete 4th treatment of 12 treatment cycle. CA 19-9 result is 9600 Sad Was 1200 at diagnosis (mid Nov), 2062 at post op check up (mid Jan) and 6050 2 weeks ago (10 March) Sad Not sure what is going on but as the tumour was inoperative and has metastisized... does this mean the chemo is having no effect? Two gastric bypasses performed instead of a Whipple.

is it normal to feel numb?

Star's picture

its been over a year since mum passed away. in the past few months i cant even look at her pictures. when i feel sad i push it out of my mind. i feel numb when it comes to thinking of mum. is this normal to feel numb? i feel scared that if i let my self go and really feel my pain i wont handle it...am i not letting myself grieve?

OMG it is cancer

wasdedye's picture

Well today I got a reality check for myself and it is only just sinking in.

I had a lump in my neck which took over 6 months to diagnose to finally have it operated on the 5th feb removing my left thyroid. Turns out its cancer so have to have the other side removed on the 5th march as well but its ok as thyroid cancer is the best type to have as the prognosis in 10 years where others are about 5.

why i'm here..

britt-j's picture

every day seems to get harder and harder, I'm finding it tougher to cope with what has happened.

he has upset me.

GeeGee's picture

My boy friend has upset me so much today I am typing this with tears running down my face. He is at the hospital today and I got all ready to go with him so I can hear what the doctors have to say but he told me he didn't want me to go with him. I was stunned, all I could do was go into my room and close the door. He left without me. I feel he has shut me out completely. I get that he doesn't want to know results of his ct scans ect. but he has to know I want to know. He said he doesn't want to know results because it doesn't change anything. I disagree with that, it changes everything.

Small Bowel Cancer

joybell16's picture

My husband was diagnosied in mid November with small bowel/duodenal cancer (poorly differentiated) which has infiltrated into head of pancreas also. Whipple was to be undertaken 9 Dec but laparoscope revealed metastises to retroperiteneal tissue and a couple of spots to outside of stomach lining so 2 gastric bypasses performed as palliative treatment. Now on 2nd cycle of chemo (of 12 planned). Oxaliplatin/Leucovorin by IV and then Fluorouracil for 2 days by pump at home.

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