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Motivation

deniseberry's picture

I am extremely lacking in motivation right now, and I am not the one with this insidious disease festering inside me. Whats it matter if the house is messy, grass is too long and there is no food in the fridge.

Guessing games

Melanie's picture

Yesterday was a bit of a blow
I have hurt my knee, and am trying to rest as much as possible as I have to put down mulch next week before our house goes on the market.
My mum took my eldest for the night, & Ben kindly offer to watch our youngest in the bath whilst I took 10 mins to lay down.

Ben dried her & bought her into our room (which was a little unusual) he placed her on the bed, and went to his wardrobe. Without placing much thought, I laughed & said "ah hun, I don't think you'll find anything small enough in there for her"

So, here we are......

jobeth's picture

March 7, surgery to respect two tumours, one in the basil ganglia the other in the frontal lobe ( this one was respected last August). Post op, doctors happy with debulking result.

MRI day 1 post op, tumour cells on the move, discharge from hospital, prn panadol.

Re-admission 2 days after discharge, massive headaches, now on morphine. Discharge, this time on Endone. Prognosis, very poor.

Head spins

abs's picture

HI Everyone
I do hope everyone is well or as well as can be at this time, i was wondering if those who had head and neck cancer, if anyone has suffered from head spins, when laying down and lately when sitting, my GP thinks it could be a virus my oncologist says it could be fluid in the ear, either way i am not convinced just wondered if anyone else has suffered the same and should i be worried.
I do hope everyone has a happy easter as best they can and hope the easter bunny brings way more to you all than chocolate eggs.
abs

The New Normal

deniseberry's picture

I think I understand now when everyone talks about this new kind of normal...we are slowing starting to adjust and accept what is now normal. Except I want to scream NO I do not accept this at all...Cancer sucks arse and I just want to punch it right in the face!!!!!

The waiting is the worst....waiting for tests, waiting to see the doctor, waiting for results....always waiting. Sad

I have finished my rant....now I will go have a coffee....and smile like everything is ok.

Third round completed!

Melanie's picture

So, the third round of chemo has been completed. His next scan is in less than 2 weeks.
I feel sick just thinking about it.

His tremor his increased to his leg, so now his whole left side tremors. He has weaned off the dex again- this is the first week on zero tablets, to be smashed with the worlds largest headache which has sent his straight back to bed. Better to sleep through it, than to suffer through it!

We finally received our insurance money, which is a blessing, we have purchased a more suitable home for him & us.

GBM wins

exhausted's picture

Stuart died early Tuesday morning, 19/03/2013.
The beast cruely took its time and the last few weeks were horrendous.
I miss the old Stuart terribly but am glad the GBM Stuart has found peace.
Deep breaths and lots of tears, I hope I still have the courage to face this new normal.
Hugs to all Terese.

Phew....

Peta Kaye's picture

MRI Scan - GBM 4

Trish's picture

We have just arrived home from a review with our surgical team in Melbourne. Nigel had his scan on Monday which has shown a 15% increase in the tumour since Feb 13.

Chapter 6. Holidays in Burma

gn21's picture

Our Burma trip in September last year was fantastic. We did a 10 day river cruise through a company called Pandaw, who we also travelled to Cambodia and Vietnam with. Climbed pagodas, went to villages, witnessed the monks procession for alms etc etc. but I was getting weaker and weaker, and not eating. Figured it was the heat.

On return had a scheduled visit to Peter Mac for a scan and went there straight from airport. We were then staying in Melbourne overnight for oncologist appointment the next day.

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