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Well the anxiety has finally settled in for good.

jsbach's picture

This week has not been overly good. It turned out my anxiety levels had been rising since Saturday. Things got gradually work on the Sunday and then calumniated with a major anxiety attack on Monday night. I hadn't been that scared for a ver, very, very long time. Thankfully my wife was around and she called that ambulance service who turned up very quickly.They quickly plugged my up to all the machines to monitor vitals and while they were there things began to retune to normal. When the finally left everything was back to normal.

Last tube out today hopefully

kasianne's picture

It is 6 weeks since my Ivor Lewis oesophagectomy and although still suffering a few aches and pains from the op and very positive histology results with 15 clear lymph nodes and no cancer outside the tumour area.
The only legacy from all the type of cancer I have endured is the J tube ( feeding tube) into my intestines and I have been nursing along since September although it has only actively been in use for approximately 6 weeks of this period and I cannot wait to have my stomach area back to myself without worrying about it pulling.

back to work

Andrea has a heavy task's picture

Back to work I go on Monday to lots of questions I can not answer.

Got a letter from the hospital the other day, said an appointment will be made for me in about 3 weeks time my case is going in front of a board to see what happens next.

My Dad

Sunshine006au's picture

Feeling very excited at the moment, we are bringing dad home from hospital tomorrow, I pray that things will go smoothly & dad will keep getting stronger each day.....
I also hope that some of dads mates will feel comfortable coming to visit him at home, they would call by & see mum & ask about dad but they couldn't face seeing him in hospital...
Will keep updating on dads progress.
I think I can finally see that light at the end of the tunnel Smile
Big Smiles
Alison Smile

Folfirinox - what should i expect

jsbach's picture

Hi all,

I was moved onto Folfirinox today after show no signs of responding to the Gemcitibine. Having gone through what's involved and the possible side effects with the oncologist, I was wondering if people could share their experiences.

One of the big questions I have, is how do you sleep during the 46hr iv period.I am getting the port fitted. I have this worry sitting in the back of my mind that I will toss and turn and rip everything out.

Thymic Carcinoma stage ii a and Microadenoma in Pituitary Gland

Jax's picture

Hi,

I was diagnosed with Thymoma in November 2011. This was incidental as i had my gallbladder removed in September 2011 and was having difficulty breathing.

Thankfully my Dr had a chest xray done which showed "something" in my heart.

I was then referred to a Cardiologist and after further investigation it was shown that it was a thymoma and had nothing to do with my heart (thank goodness). I was then sent for a biopsy which came back as benign (another phew).

Nerves

mazsa's picture

Has anyone found out the best way of coping with peripheral nerve damage, mine is chemo induced and is affecting my feet & lower legs & it hurts like hell. I started taking amino acid tablets & saw an acupuncturist today. Just trying to walk hurts so if anyone has discovered something else that helps I would love to know.

Mazsa

Dammed if we don't

Gypsy1946's picture

Well have not had a lot of time to respond to messages or update blog lately as quite a few things have happened since Christmas, on New Years Eve I had to get an Ambulance to take my husband to hospital as his temp.shot up to nearly 39 degrees, they took him to our nearest hospital as the hospital he is treated at usually is too far away.

bad news but theres still a positive

jsbach's picture

well I had my unscheduled ct scan this morning. The results came back showing a few more lesions in the liver. The main tumor on the pancreas hasn't changed. To say that this was hard to hear would be an understatement. To then get told that I wasn't responding to the gemcitibine was harder still and as a result that avenue of treatment would now stop. BUT talking to my oncologist, it's not the end of the world. Apparently all it really means is that I am now part of a group who don't responsd to gemcitibine.

specialists...

jsbach's picture

does anyone else hate it when a specialist books you in for a test without giving you any reason?

today, at about 4pm, mine booked me in for a ct scan tomorrow morning at 9.15. as she did not inform me herself (someone from her office did) it is a bit of a mystery to me as to why. I am trying not to let myself think that it as a result of a blood test with high markers or some other reason, but it would have been nicer to be told something.