We are still waiting for an appointment at the melanoma clinic. I have told Darryn he should ring the hospital but he is happy to wait. I think its a case of no news is good news or at least he has convinced himself of that, I just hope that's the case. I am finding it hard to wait patiently unlike he seems to be doing. All is good with our relationship at the moment, he is starting to open up to me about his feelings a little so I guess I am doing the right thing in letting him come to me instead of asking him how he is.

Coming out the otherwise of teatment is a hard time filled with confusion, frustration, extreme emotions, reflection and sometimes just plain chaos...... We cannot label our emotions and filter out thoughts to make sense.
Sense in itself is lacking and we reflect and dissect to make it understandable when sometimes we cannot.

I'm writing today as I think it's easier sometimes to cope. I got told a month ago that there is nothing more the doctors can do so I'm now classed as in curable. I'm undergoing Pallative treatment as my cancer has now spread to my liver, bones and lungs. How do you fit a lifetime into a few months? I have only had a few meltdowns as I'm actually angry that my life is going to end. I'm still young and have so much to look forward too. I look at my children and of course you do the whole 'Why do I have to be so lucky'.

In 2012, I developed Radiation Induced Fibrosis (RIF) or Radiation Fibrosis Syndrome (RFS), more specifically sudden Late Onset Radiation Induced Fibrosis; Velopharyngeal Incompetence & Severe Dysphagia (fibrosis from the Soft Palate down to the Upper Esophageal Sphincter, inclusive).

My Current Treatment: SLP exercises, "Smooth Pureed" diet plus Resource Plus medical drinks and Pentoxifylline & Tocopherol (Vitamin E) antioxidant therapy.