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  • 26 Aug 2011 - 10:49
    bev's picture

    Just a message to everyone to wish them a Happy Daffodil Day 2011.

    Thinking of all of you today, and hope that the brightness of the daffodil makes your day a lot better.

    My new profile photo is the colour for uterine cancer, September is the month to recognise this.

    4 comment(s)
  • 26 Aug 2011 - 04:09
    johnrp1964's picture

    After reading some of the stories by others on this forum it made me realise just how fortunate I am. I had really never stopped to think about others who are in the same boat as I might be. People who are still children and others in their 20's being diagnosed with brain cancer. So sad to see people that young being robbed of the life that they may have had in front of them Sad

    3 comment(s)
  • 26 Aug 2011 - 03:11
    johnrp1964's picture

    Hi there, am going to use this as a diary so that I can record my journey for others to see, hopefully it will give others some hope and make them smile in times that are tough.

    Back in late june I was quite ill. The doctor thought I had a kidney infection but it didn't turn out to be that so they thought it might be a chest infection so off i went for an xray. The xray showed up a white opacity in my right lung. Doctor said wait a couple of weeks and then go back to make sure it had cleared up. After two weeks it hadnt.

    3 comment(s)
  • 25 Aug 2011 - 10:29
    benbravery's picture

    I completely missed a fundamental piece of ground-breaking research into colorectal cancer in June.

    I need to get married

    I already drink foul potions and avoid a long list of 'bad' foods. I exercise, meditate, listen to classical music and watch comedies. I keep a journal and am part of a support group. I guess there is only thing left that could save me: marriage.

    14 comment(s)
  • 18 Aug 2011 - 23:43
    <none>'s picture

    To friends that I have not yet met and those that I have, but dont know me that well, I would like to tell you a bit about myself and why I'm setting up this group.

    My journey started when I was 20 and in my second year of uni - doing a Bc Science at usyd. Life was pretty normal and I loved it: I was living in they city, working at a bar and partying most weekends. After taking a shower one morning (and feeling slightly hungover) I noticed a mole bleeding on my back as I dried myself off with a towel. The skin specialist cut it out later that week and it came back as a melanoma.

    4 comment(s)
  • 18 Aug 2011 - 19:53
    benbravery's picture

    The term 'young' in cancer circles usually refers to people with cancer under the age of 50-60. For me, I prefer the term 'really young', but that would confuse me with the kid or young adult cohort (normally up to the age of 25). The labels and grouping are important because people my age face unique issues when we meet cancer.

    One of those issues is becoming a child again

    6 comment(s)
  • 15 Aug 2011 - 16:36
    Jules_68's picture

    Why....Why.....Why.....People don't understand. They say "pick yourself up and get back to work" work will solve everything. I have been so positive, affirmations, meditation, yoga and then all of a sudden..the rug goes out from under me......If it was just cancer I could deal with it....but renal failure on top of it......well I'm giving the bird to the universe.......I thought I was doing well 5 mths on.....thinking geez I have really got a grip on this and quite proud of myself........when does it stop? NEVER......

    7 comment(s)
  • 14 Aug 2011 - 09:24
    Maorey's picture

    Hi: Im Maurice, Im 41 and I was diagnosed with carcinoid syndrome last week. Wife and two kids , 6 months and 2 1/2 years.I would like to know tips to keep myself healthy even with this disease. At the moment Im practising meditation, Im doing visualizations and affirmations as well as initiating a treatment to eliminate tumors of my body. Im looking for special diet and excersing more and people who have this disease to talk about it.



    0 comment(s)
  • 12 Aug 2011 - 09:30
    benbravery's picture

    See the original post and images at:

    I studied some human anatomy and a bunch of non-human animal anatomy as part of my science degree. But that didn't help me when the surgeon first mentioned removing my seminal vesicle: I pretended I knew exactly where it was and then raced home and checked a textbook.

    9 comment(s)
  • 11 Aug 2011 - 18:40
    Jules_68's picture

    Have been doing really well with meditation, acupuncture, yoga and positive affirmations.

    My cancer was contained however with removal of right kidney this has left me with CKD stage 3/4. My cancer took my healthy kidney and left me with a damaged kidney due to childhood reflux.
    My eGFR is 33%. I have been dealing with my cancer diagnosis however yesterday at GP he used the words "Renal Failure".

    I am doing my best to say "Renal Failure" is your word Dr, not mine. I will not need dialysis until i hit a eGFR of 10%. Transplant is not an option due to cancer relapse.

    3 comment(s)


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