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To blog or not to blog - that is the question

19 Feb 2013 - 15:20

Well, I'm 4 years in with Stage 4 lung cancer. And we all know there is no stage 5.

I have been tempted a number of times to start a blog but it always seemed too hard. Plus I wondered whether I had anything useful to say. But this site seems to make it easy, and I guess after 4 years, heading into my 5th, I must have something useful to say surely!

But what are my motivations I wonder? I guess like all of us I have a story to tell. And the need to reach out to others who understand that this new 'normal' can be a very strange place.

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My brother

19 Feb 2013 - 11:09

My brother has Leukemia and is undergoing bone marrow cell
transplant this coming week. I do not live close to the
Hospital (VGH) BC. My other brother is coming from Thailand
as a donor.

I have tried my best to keep in touch via email, and phone and
visits but I seem to be the one in the family that he projects
all his anger upon. We have a diverse family of 5 siblings who
do not get along at the best of times so this is a very stressful
time interacting with any of them. It has become so difficult I
have pulled out of the family dynamics and am trying to cope with

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Dreams

18 Feb 2013 - 21:25

I keep having dreams about my husband... husband... sounds weird when i say it because he is no longer... yet was only mine for a month... in my dreams he is talking and acting so normal, yet i know he isnt supposed to be there... i miss him so much it hurts. I feel like he was just supposed to go away for a little bit and come back.. is this normal? I sit here in disbelief at times and think 'did i just get through that?'....

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GBM - MRI Coming Up

18 Feb 2013 - 12:21

I hate the week leading up to an MRI. Every little thing takes on new meaning.

A stumble, "is that a new tumour"?, a headache, "has it grown back'? My husband is living on Zanex and I'm on a razor's edge with fear.

How long do we have to live like this? Why cant a cure be found?? I read the stories of GBM spouses and I hate the pain and suffering they have to endure. Watching their loved ones slip away and, I know it will be me some time in the near future who will sit helpless as my husband is taken from this world years before he should be.

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A new kind of living

16 Feb 2013 - 20:41

Its been a while since I last posted, life has been super busy and I have been adjusting to a new kind of living.... Living and coping after cancer treatment and returning to some level of normalcy.

Firstly I have gotten off all the pain medications and I am feeling much better for it. Although I still experience pain I am grinning and bearing it, managing on panadol, hot showers and bedrest. Its a new kind of living which Will take a lot to adapt to.

Secondly I have returned to work part time. I have been back for about a month, its exhausting me however its nice to be back.

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Need to vent about a whiny friend.

16 Feb 2013 - 18:32

Hi everyone, I just need to vent here, because if I do it anywhere else I could hurt some good friends.

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So many Rants not enough time

16 Feb 2013 - 00:13

Let me start by saying that my Son is (just turned) 2 years old and we found a Wilms tumour on his left kidney (886g).
RANT #1 Diagnosis
We only found it because he fell on a slip and slide and that traumatised the tumour so blood came out of his urine. I thank my lucky stars (not god I am too mad right now) that his older sister (4yrs) was being a cow and pushed him over so this ordeal began.

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liver cancer stage 4

15 Feb 2013 - 13:25

Hi there;
I'm looking for diets to give to my mother. She refused to eat, or drink so far I'm do my best but its so hard. Please if someone knows anything ....thank you/

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Another fall...

14 Feb 2013 - 10:47

Marty had another fall in the early hours of this morning. He still tries to do things himself, but it usually ends up with him crashing to the floor (or this morning head butting the wall).

I don't remember the last time I had a full night sleep.......

He woke for breakfast, but has fallen asleep again. He probably won't wake again until lunch time now. This has become our routine.

It's getting harder to pick him up when he falls, to the point where I have hurt my back, and my left shoulder and arm is in constant agony.

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My first ever blog post

13 Feb 2013 - 18:16

My husband (Marty) was diagnosed with an inoperable tumour on his brain stem on the 15th of May 2012. They were unable to biopsy it due to its location, but we were told it was aggressive and he would have less than 2 years to live.

He started a 6 week (30 treatment) course of radiotherapy in June/July 2012, and had MRIs every 6 weeks to check the progress. Our oncologist put him on chemo tablets and he completed his first and only round in December 2012. He got so sick from it that he decided to cease all treatment and let nature run its course.

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