Latest Blogs

  • 6 Feb 2013 - 14:35
    PaulaS's picture

    My dad was diagnosed with Bowel Cancer in April last year, and went through treatment of Radiation and Chemo and then surgery, he now has a colostomy bag and initially the results were that they had " got everything " and we were so relieved !! He just had a scan 2 weeks ago and something is showing in his stomach.. after an endoscopy they have now told him that there is a tumor that needs to come out, so there will be more surgery and possibly more treatment. We are all so scared for him... and there's nothing we can say that can take the fear away of not knowing what will happen next.

    5 comment(s)
  • 6 Feb 2013 - 13:35
    Sailor's picture

    Hi Everyone

    It is a while since I blogged. I have been on the site regularly and responded to a few other blogs, but I haven't said much about my current situation.

    1 comment(s)
  • 5 Feb 2013 - 16:24
    cremm's picture

    Its been a while since ive been on here. I wrote a blog nearly 6months ago now about my partner who had GBM. He turned 25 on July 5th 2012 and we lost him on 15th Aug 2012.

    Ive never lost anyone so close to me. Everyday i think about him, and wish that he was with us. i go about my daily routine just like normal, but hes always there in the back of my head...
    Does this get any easier?

    1 comment(s)
  • 3 Feb 2013 - 20:33
    louie3754's picture

    Hi anyone,
    My name is Linda and less than 2 weeks ago, my brother was diagonosed with bowel cancer, it has spread to his liver, and after having surgery last Thursday to remove the bowel tumour and some of his liver, the surgeon also found "something" in his abdominal cavity- wonder what that might be? Surprisingly, one of my friends kindly said that she could tell me what it would be, Duh, how stupid does she think I am?

    1 comment(s)
  • 3 Feb 2013 - 12:07
    Trish's picture

    Nigel has his first MRI scan tomorrow since he finished radiation & chemo Dec 12. Meeting scheduled with the review team on the Tuesday to review the scan. Fingers crossed all goes well.

    I have noticed over the last few weeks a decline in Nigel. Not sure if this is still a hangover from the radiation. Nigel is weaker, his short term memory is bad and generally tired more . One positive is that I can still hold a good conversation with him.

    Trying to reduce Dex down to 4mg, but oncologist and endochronologist disagree with one another. The joys of doctors.

    Cheers Trish

    4 comment(s)
  • 3 Feb 2013 - 11:10
    Schemma's picture

    Hi everyone, my name is Susan. I am 33, a wife and mother of 2. I recently met with a breast surgeon at Peter Mac to start the ball rolling on my decision to have a double mastectomy and reconstruction. My decision to go down this path is due to a number of factors, these being that my mother passed away from breast cancer 6 years ago, I carry the brca1 gene and I have 2 beautiful children that I want to see grow up. The decision for me has really been quite easy, I don't want myself or my family to have to go through what mum went through and if it means getting new boobs then so be it.

    0 comment(s)
  • 1 Feb 2013 - 22:14
    Lynnedk's picture

    Hi everybody,

    Some people have asked for the full story, and I'll do it as soon as I feel up to it. This isn't it. Should be watching cricket, but they let me down. We won, really quickly. Vale, West Indies.

    18 days since Ray died, and I have only just cried. Buckets. No, really, it's true. I haven't been able to shed more than a couple of tears at a time. People are trying to be helpful but they say "Don't cry", so I don't, but I need to ....

    2 comment(s)
  • 29 Jan 2013 - 17:50
    jobeth's picture


    I'm Jo, my husband has grade 4 GBM. His original tumor was found in July 2009. It was a grade 4 methylated tumour. His surgeon achived a 95% resection although its location in the ocipital lobe and its size left him with some disability around numbers and direction. His short term memory has also been effected.

    20 comment(s)
  • 29 Jan 2013 - 15:50
    Pennygirl1968's picture

    Hi, I'm about to start radiotherapy. It seems weird as this cancer issue comes in and out for me. Huge stress upon diagnosis, then operation/recovery then back to work. Back at work, the whole episode seems like a dream. Now back in hospital system has brought anxiety back again. I feel like I shouldn't be nervous as I've had such a good prognosis compared to other ladies who require chemotherapy and have a much higher grade than me. I didn't know whether to tick "I have cancer" or "I'm a survivor" as I'm not sure when you become a survivor.

    1 comment(s)
  • 28 Jan 2013 - 21:08
    pimbok's picture


    I'm not sure if anyone else is from Tassie, particularly the Hobart area, but I was wondering if anyone knew of a decent physio down here who deals with radiation damage? Please feel free to send me a PM if you know of anyone.



    2 comment(s)


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