Latest Blogs

  • 1 Jul 2013 - 12:19
    Travel Bug's picture

    Hi, I was diagnosed with Glioblastoma (GBM)Dec 2012. Diagnosis and prognosis was a huge shock as I have always been fit, active and healthy. It was the most horrific Christmas for my family and friends. The whole experience was so surreal, "this happens to other people not us". We are now coming to terms with our situation through the support and positive attitude of family, friends and medical staff.

    1 comment(s)
  • 28 Jun 2013 - 19:44
    nicole's picture

    I'm 23 years old - last month I was diagnosed with TCC in the bladder and had it removed.

    It was Stage 1 and my future treatment is thankfully only a cystocscopy (spelling might be off on that one!) in 3 months to check if it has returned, then at 9 months, then every 12 months.

    4 comment(s)
  • 25 Jun 2013 - 19:44
    JJ's picture

    I was recently diagnosed with Stage 4 kidney cancer and still really don't know what to expect? 12 months ago I didn't know I had cancer until my tumor ruptured and within days I had lost a kidney. With no chemo or radiation as an option for treatment I was holding on to the hope that the surgeon had been able to successfully remove all traces of the cancer. Unfortunately this was not to be and now it has spread to both lungs. Wanting to know as much as possible about what I had and after doing my own research I got fairly depressed and confused.

    9 comment(s)
  • 24 Jun 2013 - 13:27
    pete j's picture

    I got a rash from head to toe and started shredding like a snake and then i got a massive fever and got hypothermia and was vomiting,i went to hospital and got admitted and started running a million tests on me.i had allergic reaction to the antibiotics,they controlled that and i was get better but still waiting on other results to come back,ten days later results where coming back all where good was waiting on one more .next morning the doctors came in with final results and told me to sit down and started doing a spill about the reasons they where running heaps of scans and tests,well the en

    1 comment(s)
  • 22 Jun 2013 - 22:37
    dunnc's picture

    Recently diagnosed with duodenal gist tumour. Anyone
    In Australia with this?

    3 comment(s)
  • 20 Jun 2013 - 13:24
    gn21's picture

    One of my long bucket lists items was a river cruise in Europe. We have previously done river cruises in Russia, Cambodia/Vietnam, and Burma. We are not keen on big cruise liners, but river cruises, with < 150 people are great.

    1 comment(s)
  • 20 Jun 2013 - 11:50
    Sailor's picture

    Hi Everyone

    Well here I am in hospital since last Monday and here for some time while things get sorted. It turns out that I had developed septicaemia due to a pseudomonas infection as well as having the ureteral stent blocking. The only problem was that instead of going up my blood pressure went seriously down, and my temperature remained normal. So I am proposing three suggestions for medical people, particularly nurses.

    1. Observe your patient
    2. Listen to your patient - they know far more about themselves and their symptoms than you do.

    2 comment(s)
  • 17 Jun 2013 - 09:34
    Josh Bonello 88's picture

    Hi everyone. It has been such a long time since I have written any new blogs. Things have been going pretty good. 2013 has seen a great deal of changes I think you will all agree. And rather than say what a bad year it has been so far, I am just embracing everything. One of my friends who had throat cancer has just been diagnosed with lymphatic cancer and it doesn't look good. I thought I would write about it and how my perspective on it is different considering I have survived TC myself.

    0 comment(s)
  • 17 Jun 2013 - 04:29
    Shennanigans's picture

    Where to begin... So much has changed in the 10 months since i lost my dad. but its still so heartbreaking to think about and its something i often think of.

    Im back in the USA, have been here now since November 2012. initially i was only coming back for 3 months to get some relaxation and quality time with Nick after the dramas that came with executing a will and all that.

    0 comment(s)
  • 16 Jun 2013 - 10:40
    holysmoke's picture

    g'day everyone, I was told four days ago that I have lung cancer. I have a large support group of family and friends but although they are trying to say and do all the right things they are not in our boat. I feel that I have no hope and all I can think of is death and the fact that my mother died at my age, that is 57. I am having a hard time believing that God could be repeating history with me. Mum had just done up her house (I have also) and got it beautiful (me too).

    4 comment(s)


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