Latest Blogs

  • 1 Feb 2013 - 22:14
    Lynnedk's picture

    Hi everybody,

    Some people have asked for the full story, and I'll do it as soon as I feel up to it. This isn't it. Should be watching cricket, but they let me down. We won, really quickly. Vale, West Indies.

    18 days since Ray died, and I have only just cried. Buckets. No, really, it's true. I haven't been able to shed more than a couple of tears at a time. People are trying to be helpful but they say "Don't cry", so I don't, but I need to ....

    2 comment(s)
  • 29 Jan 2013 - 17:50
    jobeth's picture

    Hi,

    I'm Jo, my husband has grade 4 GBM. His original tumor was found in July 2009. It was a grade 4 methylated tumour. His surgeon achived a 95% resection although its location in the ocipital lobe and its size left him with some disability around numbers and direction. His short term memory has also been effected.

    20 comment(s)
  • 29 Jan 2013 - 15:50
    Pennygirl1968's picture

    Hi, I'm about to start radiotherapy. It seems weird as this cancer issue comes in and out for me. Huge stress upon diagnosis, then operation/recovery then back to work. Back at work, the whole episode seems like a dream. Now back in hospital system has brought anxiety back again. I feel like I shouldn't be nervous as I've had such a good prognosis compared to other ladies who require chemotherapy and have a much higher grade than me. I didn't know whether to tick "I have cancer" or "I'm a survivor" as I'm not sure when you become a survivor.

    1 comment(s)
  • 28 Jan 2013 - 21:08
    pimbok's picture

    Hi,

    I'm not sure if anyone else is from Tassie, particularly the Hobart area, but I was wondering if anyone knew of a decent physio down here who deals with radiation damage? Please feel free to send me a PM if you know of anyone.

    Thanks,

    Kim

    2 comment(s)
  • 28 Jan 2013 - 07:53
    <none>'s picture

    So I'm looking for some advice My name is Randi Parker. My husband Is Cody Parker. We recently got married in the hospital. When we found out that the cancer he had fought for a entire year "that 2 months ago we were told was gone" is back and worse then ever. We are 25 and have been together since we were 15. We have two sons one is 9 and one is 4. He has primitve neuro ectodermal tumors taking over his brain. He has already undergone. 3 brain surgeries, 30 rounds of radiation, and 4 rounds of agressive chemo. Now that it's back they are saying there is nothing we can do to help him.

    3 comment(s)
  • 27 Jan 2013 - 10:34
    tfox64's picture

    I just wanted to say something, especially to the people who stand with us cancer hosts - we love you and appreciate everything you do for us.
    Everyone asks how I am, no one ever asks how my wife is doing ... we know you are coping with at least as much as we are if not more (I dont have to deal with it and watch my spouse go through hell as well ...)
    Dont think that it you are ever over looked by us. From the day we are burdened with this to the day of it's eventual outcome, we know you are there with us sharing and supporting and we love you for it.

    8 comment(s)
  • 26 Jan 2013 - 00:42
    netty's picture

    Hi,
    Its been awhile now since I have been on , I think since xmas as the kids used up our downloads and it being taking an hour or more to load a page so i gave up. All good in that department now. Many thanks from Therese for phoning me as she had noticed i hadn't been in contact..such is the wonderful nature of this site.

    1 comment(s)
  • 25 Jan 2013 - 21:56
    maddie86's picture

    its been eight weeks now and i miss him more than ever... its different now. Instead of waking up daily crying and not being able to do basic things, i get up, feed myself do what i do for the day (not back at work yet) and get on with it... the only thing is i find myself having these flashbacks of stuff... his death, his sickness.. the happier memories. I'l just stare in to space and think of him. I miss him so much.. his smell, the way he'd play with my hair until id fall asleep, the way he'd hug me and id feel as if all my problems have been taken away....

    4 comment(s)
  • 24 Jan 2013 - 13:29
    dazza2010's picture

    Hi, its been awhile since i have posted a blog here. After a 6 month battle with cancer my wife passed away on the 3rd November 2012. I have moved in with my parents for awhile for added help with my 7yr old son.Now my son is relatively settled and enrolled in a new school, I have been able to start focusing on myself.It is becoming more and more obvious to myself that I am not coping with the loss of my wife.I have made an appointment with the doctor to get a care plan done so i can hopefully get to see a counsellor to help me through.

    4 comment(s)
  • 22 Jan 2013 - 02:04
    Melanie's picture

    Well, after my last blog about fatigue, we got some answers. Good- but bad at the same time.

    I knew something was wrong, doc's put him back on the Dex- and there is a huge improvement. My dear best friend is back, and talking my ear off about random facts, and of course garden tips.
    The oncologist called us the day of the bloods & MRI, and advised nothing was out of the ordinary, so start dex & see how you go.
    Appointment booked with him for 5 days time.

    0 comment(s)

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