Latest Blogs

  • 11 Mar 2013 - 14:05
    Mrs Murt's picture

    Well this is the first time for me since diagnosis to actually write down my feelings. Being diagnosed on the 23rd of December 2011 wasn't the best of Christmas presents and everything since then has been a whirlwind. Two rounds of Radiotherapy as after the first treatment it came back and that just happened to be my birthday present. Christmas 2012 wasn't much better as the second round of Radiotherapy wasn't successful and I had to go for surgery. Neck dissections aren't much fun. I had to have my surgery on the anniversary of my stillborn son and in the same hospital.

    4 comment(s)
  • 10 Mar 2013 - 17:19
    louie3754's picture

    Geoff started his chemo last Wed, and touch wood, so far he is only tired. As he keeps saying, he is waiting for the storm to begin but maybe this time it has given him a miss. There was one medication that he couldn,t have on Wed, something to do with his heart meds, so whether that has made a difference this time, I suppose he,ll find out next time. None of us are complaining though!!!!!!!

    0 comment(s)
  • 7 Mar 2013 - 15:43
    Minx's picture

    Yesterday was our 1st oncology visit since radiation finished 3 weeks ago, we are about to start on a new course of action with Temodal and Procarbazine. Feeling very anxious with the thought of all the foods and drinks that he can't have for the next 3 weeks. I am hoping that it really doesn't set him back emotionally as he has always had such a great attitude. May seem insignificant to others but the fact that he has still, up until now, been able to enjoy a couple of his homebrews has kept some normality to his life.

    0 comment(s)
  • 7 Mar 2013 - 12:32
    David Robertson's picture

    I am grateful for getting cancer.

    My cancer journey was tough. I look back on my journey and am thankful for the experience. It is a tough thing to be able say “I am grateful for getting cancer”.

    Being able to say it has helped me move past it and enriched my life, I haven’t let something hang over me and hold me back from experiencing anything.

    It may be controversial but I wouldn’t have my life any other way.

    The journey I went through has moulded and shaped me into who I am today.

    Being diagnosed with cancer has helped me develop to be

    an inspiration

    4 comment(s)
  • AML
    5 Mar 2013 - 23:58
    apples123's picture

    Has anyone heard of any treatment for Acute Myeloid Leukaemia other than chemo? I've been told my mother is too old to have chemo ...but want to se if there is anything we can do for her?

    0 comment(s)
  • 5 Mar 2013 - 12:06
    gn21's picture

    So there was no sign of side effects and away I went to Canberra at Easter. The weather was wonderful and I delighted in the sun. Plus the 18 music venues with music 18 hours a day.

    There were lots of logistical complications about the trip including needing to do a return flight to Melbourne to have scheduled scan. But after that we had 3 days of relaxation, travelling down the east coast back to Melbourne.

    1 comment(s)
  • 5 Mar 2013 - 12:03
    missbrookie's picture

    My heart is breaking, I lost my Mum 11 days ago after nearly a 12 month battle with pancreatic cancer. I dont know how to cope and am finding daily jobs impossible. I have to go back to work tomorrow and am not looking forward to it at all. My girls went back to school today and my 11 year old cried all morning getting ready.
    I feel so empty and nothing feels right. People keep telling me it will get easier and that at least mum is not suffering anymore. I just want the pain to stop Sad

    3 comment(s)
  • 1 Mar 2013 - 01:13
    Mango's picture

    Have missed every other one because we didn't hear about them until afterwards, so taking a big step to attend this one and hopefully meet some fellow travellers and get a bit more hope for a future without deadly brain tumours.

    See some of you there!

    2 comment(s)
  • 1 Mar 2013 - 00:42
    glenys48woods's picture

    Would someone help me out after having a mastectomy and not having a recontruction with a false breast? This is what I have, being flat on my right side after a mastectomy in 2010.

    I don't like my false breast as I don't want to accept it. Why? It is because I lose when I take my bra off and gain the weight when I put my bra on. This to me is annoying.

    I find also when I lay in bed it is OK to be on my right side as the left breast is heavy and satisfying to me. Then if I lay on my left side it is upsetting as my right breast has gone. I can't cope with what I have said to you.

    9 comment(s)
  • 28 Feb 2013 - 11:22
    Peta Kaye's picture

    I was diagnosed exactly one week ago today. Triple negative breast cancer. My appointment with the surgeon booked for twelve days later.
    TWELVE days. I don't know if my days have passed so slowly as these last seven have. I have two small kids. Samuel has just turned 6. In fact his birthday was the day after my diagnosis. And Elizabeth is 3, turning 4 in April. So with just these two I'm busy. I have a wonderful husband, we've been married 13 months.

    3 comment(s)


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