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  • 1 Jan 2013 - 15:02
    Lynnedk's picture

    This is my first time. I'm hoping that someone out there who has been through a similar experience can help.

    8 comment(s)
  • 1 Jan 2013 - 12:27
    Melanie's picture

    I AM SO OVER FATIGUE!!!!

    I just wish that he could get out of bed for more than an hour!

    We have an appointment with the GP tomorrow to get blood work done- I'm starting to wonder if the rad has done damage to his pitutuary gland?

    Really, I have no idea, but I am researching and researching and studing and learning as much as I can because to be honest the doctors are bloody useless sometimes! They are happy to not monitor him, to just let him carrying on sleeping 24/7 without a question.

    0 comment(s)
  • 1 Jan 2013 - 10:37
    SILLY's picture

    I receive emails with comments from this site but on rare occasions get some that are annoying . One about internet marketing and one about plastic plumbing were recent . They are not cancer related at all . What kind of person advertises on a cancer site ???

    2 comment(s)
  • 31 Dec 2012 - 08:56
    Rubes1984's picture

    Well today marks the end of 2012- what a f@#king trying yr!!!

    We have been stressed beyond relief, terrified beyond words, heartbroken on many levels, absolutely pov, been through things I would never wish on my worst enemy, we've hard to ask way too many of our loved ones/friends for help and my dream of becoming a bikini model is over (too many scars for that now lol).

    We have been blessed with survival, love, faith, wonderful family and friends, many visitors and our lovely wedding (without my sister + her husband and my parents this would never have happened)!

    5 comment(s)
  • 30 Dec 2012 - 00:49
    maddie86's picture

    So its been one month since my beautiful man earnt his wings early... and to be honest ive been feeling ok considering. Its almost like i feel like im doing something wrong because i have been ok.. dont get me wrong im not runing along picking daisys but im not in bed crying my eyes out every single day... i do still have those days but i feel like i want to see life now.. if anything he taught me to stop moping around and start living. I feel so sad when i see his photo or soo very sad seeing our wedding pictures but then i can hear him say 'come on you'l be ok'..

    7 comment(s)
  • 28 Dec 2012 - 21:46
    stargazer's picture
    1 comment(s)
  • 28 Dec 2012 - 21:46
    stargazer's picture
    0 comment(s)
  • 27 Dec 2012 - 21:50
    Rubes1984's picture

    Been a hard day and just feel like I need to scream!

    Withdrawal sucks sucks sucks! I've just gotta keep going..... I've already gotten off endone, dexamethasone, prednisone. Down to 5mg of oxycontin at night.......

    Had a fight with my hubby..... Sucks as we don't fight often! Through this while process we have been so supportive of each other. But today I let him down, I made a stupid decision that affects him too and I didn't even consider his needs! I'm disappointed in myself for being so selfish :'(

    1 comment(s)
  • 26 Dec 2012 - 17:51
    Melanie's picture

    Its been a month or so since I last updated, Ben has had his follow up appointment with the oncologist & is now medication free.
    No sleeping tablets or dex.
    The doc advised no growth, which is awesome news but Ben has gone the complete opposite.
    About a week before the doctor appointment he started to sleep more, and be a bit dizzy. We mentioned this to the oncologist but he didn't seem to worry- just mentioned to me to watch for him acting strange, and drunk like. If that is to occur, he would have to have a shunt put in his brain.

    2 comment(s)
  • 24 Dec 2012 - 12:09
    maddie86's picture

    Its my birthday today... and im sad Sad my first birthday without my beloved husband... he wouldve woken me up with kisses and cuddles and made me breakfast in bed... this time last year we were in new york having the time of our lives.. now im alone and missing him so badly... :'( its been four weeks... still so raw and fresh... i just want to get this week over and done with... i hope this time next year i will be typing a different blog...
    Sad

    5 comment(s)

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