Latest Blogs

  • 2 May 2013 - 12:45
    gn21's picture

    Last blog entry took me up to where I finished my last clinical trial in December 2012. So, since then.......

    Over the Christmas period I had, for the first time, a lot of issues with pain management. Prior to that all my symptoms for the past 4 years related to treatment, rather than the cancer itself. So we spent most of January getting the pain under control, finally settling on 20mg OxyContin morning and night. I have no idea whether this is a small or a large dose - but it worked.

    2 comment(s)
  • 2 May 2013 - 07:18
    jobeth's picture

    Last Friday Brent had his first seizure, it was awful. He was on the balcony at home and I was alone. Holding him up so he didn't fall and hurt himself while trying to get help was a challenge. Thankfully, a stranger at street level call the ambos and when he finally came round a little bit, I was able to lower him to the ground and get to answer the door for them. Thank you stranger.

    2 comment(s)
  • 1 May 2013 - 19:50
    box6's picture

    it can only be tolerated by not commenting and moving away straight away plus no contact for a while. try to find someting positive and latch on.

    0 comment(s)
  • 1 May 2013 - 19:47
    box6's picture

    to hear that the medical went positiv is my greatest gift of that day, it seams reward and one can move forward.

    0 comment(s)
  • 30 Apr 2013 - 16:01
    Faith_n_hope's picture

    I am 27, he is 28 . . We were seeing each other for a couple of months n then he was diagnosed
    With Lymphoma cancer. currently undergoing chemo. . No response from him for over a month now.
    What do I do.?

    4 comment(s)
  • 30 Apr 2013 - 12:18
    GeeGee's picture

    I have found out this morning that my boyfriends daughter is in hospital, she is 24 weeks pregnant and in hospital indefinitely with premature rupture of her membranes, they are trying to keep her out of laoubor for as long as possible and giving her steroids for the babies lungs for his best chance if he is born, so she is high risk! Very scary don't know what to think. I would like to be able to suport her through this but my bf dosn't talk to either of his daughters so I don't think there is much I can do. I don't know them much at all and have only met they both a couple of times.

    0 comment(s)
  • 29 Apr 2013 - 21:51
    daddysgirl's picture

    Dad passed away last night.

    It was actually like what people say - it was peaceful. We were all there in his room and his breathing stopped and he turned white.

    I tried to find a nurse and when I came back to the room he breathed again.

    I got the nurse. He took his last breath and she took his pulse. He was gone.

    I'm so sad. But I'm glad he's not lying there anymore. But part of me doesn't believe it.

    I miss him already.

    4 comment(s)
  • 29 Apr 2013 - 19:13
    Kylie Cameron's picture

    Hi All,

    I'm new to blogging and to this site.

    I'm hoping to learn about anyone out there diagnosed with Adrenal Cancer. It's very rare and is basically tumors on the lungs.

    My sister-in-law was diagnosed 2 years ago while pregnant with their second child. My little niece was born by c-section at 27 weeks and 4 days after her being born my sister-in-law had surgery to remove a tumor off her adrenal glad. 6 months after that she was told it had spread to her lungs and now her liver.

    Has anyone ever heard of this type of cancer before and can anyone offer any advice??

    1 comment(s)
  • 29 Apr 2013 - 16:11
    greiv55's picture
    I have recently been diagnosed with breast cancer,i have had my mastectomy and I am receiving chemo at 3 week intervals my 2nd last course is on Friday this week. I have had quite a few stays in hospital due to the effects of the the chemo and infections etc., I am finding that the depression and anxiety has taken over and has become quite debilitating. I can no longer drive my car, I cannot stay in the house on my own, i find it very hard to relax. I am under my local GP's care for this but would help to speak to someone who is experiencing the same
    3 comment(s)
  • 29 Apr 2013 - 14:47
    GeeGee's picture

    Today I am reading posts by other people on here and the tears are rolling down my face. I wish I knew what to say to these poor people but I have no idea. I have just been watching the doctors on tv and they talked about a guy who had melanoma under his toenail and hadn't been sick and was already at stage 3. He died 15 months later. OMG this is so scary. I wish the hospital would check Darryn over because I am going nuts not knowing anything. Why do I watch these shows?

    0 comment(s)


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