Latest Blogs

  • 26 Mar 2013 - 00:51
    Melanie's picture

    So, the third round of chemo has been completed. His next scan is in less than 2 weeks.
    I feel sick just thinking about it.

    His tremor his increased to his leg, so now his whole left side tremors. He has weaned off the dex again- this is the first week on zero tablets, to be smashed with the worlds largest headache which has sent his straight back to bed. Better to sleep through it, than to suffer through it!

    We finally received our insurance money, which is a blessing, we have purchased a more suitable home for him & us.

    2 comment(s)
  • 23 Mar 2013 - 23:28
    exhausted's picture

    Stuart died early Tuesday morning, 19/03/2013.
    The beast cruely took its time and the last few weeks were horrendous.
    I miss the old Stuart terribly but am glad the GBM Stuart has found peace.
    Deep breaths and lots of tears, I hope I still have the courage to face this new normal.
    Hugs to all Terese.

    8 comment(s)
  • 23 Mar 2013 - 13:24
    Peta Kaye's picture
    1 comment(s)
  • 20 Mar 2013 - 16:57
    Trish's picture

    We have just arrived home from a review with our surgical team in Melbourne. Nigel had his scan on Monday which has shown a 15% increase in the tumour since Feb 13.

    1 comment(s)
  • 18 Mar 2013 - 17:24
    gn21's picture

    Our Burma trip in September last year was fantastic. We did a 10 day river cruise through a company called Pandaw, who we also travelled to Cambodia and Vietnam with. Climbed pagodas, went to villages, witnessed the monks procession for alms etc etc. but I was getting weaker and weaker, and not eating. Figured it was the heat.

    On return had a scheduled visit to Peter Mac for a scan and went there straight from airport. We were then staying in Melbourne overnight for oncologist appointment the next day.

    1 comment(s)
  • 18 Mar 2013 - 06:28
    Skylarbug's picture

    Hey everyone Smile)) I have been diagnosed with stg 2 oigioastrocytoma 2 weeks ago and just finished cycle one of oral chemo with success. I have 4 tumors that are infiltrative and are inoperable. Can t do radiation because it would be whole brain radiation. Sad(( Im hoping i have positive results with the chemo i'll be on for up to 12-18 mos. Anyone have the same type of tumor as me, and what treatment are you currently on ?

    2 comment(s)
  • 16 Mar 2013 - 07:17
    stargazer's picture

    I have'nt been on here for awhile so here I am.Last time I wrote my story of my son going through his cancer in 2011 and how we got the all clear with him only to find out my husband was diagnosed two weeks later with cancer.

    2 comment(s)
  • 13 Mar 2013 - 09:24
    Mrs Murt's picture

    Well I'm off to the doctors once again today. Trying to keep life as normal as possible seems to be changing to doctors, treatments and those lovely needles. Apart from that the sun is finally shining and that boosts everyone's spirits. I might do some baking today. My wonderful mother-in-law gave me her bread maker so the fresh smell of home made bread is already wafting in the air. Yummo!

    0 comment(s)
  • 12 Mar 2013 - 06:53
    KazPlus2's picture

    I can't believe I haven't posted here since August last year. No news was good news! I am thankful that Mum's weight loss slowed down and she has enjoyed celebrating both my kids birthdays in the latter half of last year, my husband's birthday, just before a quiet Christmas and then her own birthday in January. She was even well enough to go and see Les Mis with my hubby (her son) So much to be thankful for.

    2 comment(s)
  • 11 Mar 2013 - 14:05
    Mrs Murt's picture

    Well this is the first time for me since diagnosis to actually write down my feelings. Being diagnosed on the 23rd of December 2011 wasn't the best of Christmas presents and everything since then has been a whirlwind. Two rounds of Radiotherapy as after the first treatment it came back and that just happened to be my birthday present. Christmas 2012 wasn't much better as the second round of Radiotherapy wasn't successful and I had to go for surgery. Neck dissections aren't much fun. I had to have my surgery on the anniversary of my stillborn son and in the same hospital.

    4 comment(s)


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