Latest Blogs

  • 18 Feb 2013 - 13:21
    jobeth's picture

    I hate the week leading up to an MRI. Every little thing takes on new meaning.

    A stumble, "is that a new tumour"?, a headache, "has it grown back'? My husband is living on Zanex and I'm on a razor's edge with fear.

    How long do we have to live like this? Why cant a cure be found?? I read the stories of GBM spouses and I hate the pain and suffering they have to endure. Watching their loved ones slip away and, I know it will be me some time in the near future who will sit helpless as my husband is taken from this world years before he should be.

    2 comment(s)
  • 16 Feb 2013 - 21:41
    Rubes1984's picture

    Its been a while since I last posted, life has been super busy and I have been adjusting to a new kind of living.... Living and coping after cancer treatment and returning to some level of normalcy.

    Firstly I have gotten off all the pain medications and I am feeling much better for it. Although I still experience pain I am grinning and bearing it, managing on panadol, hot showers and bedrest. Its a new kind of living which Will take a lot to adapt to.

    Secondly I have returned to work part time. I have been back for about a month, its exhausting me however its nice to be back.

    0 comment(s)
  • 16 Feb 2013 - 19:32
    little stitcher's picture

    Hi everyone, I just need to vent here, because if I do it anywhere else I could hurt some good friends.

    4 comment(s)
  • 16 Feb 2013 - 01:13
    Cara and Jake's picture

    Let me start by saying that my Son is (just turned) 2 years old and we found a Wilms tumour on his left kidney (886g).
    RANT #1 Diagnosis
    We only found it because he fell on a slip and slide and that traumatised the tumour so blood came out of his urine. I thank my lucky stars (not god I am too mad right now) that his older sister (4yrs) was being a cow and pushed him over so this ordeal began.

    4 comment(s)
  • 15 Feb 2013 - 14:25
    tecahuini's picture

    Hi there;
    I'm looking for diets to give to my mother. She refused to eat, or drink so far I'm do my best but its so hard. Please if someone knows anything ....thank you/

    1 comment(s)
  • 14 Feb 2013 - 11:47
    Tammy Woods's picture

    Marty had another fall in the early hours of this morning. He still tries to do things himself, but it usually ends up with him crashing to the floor (or this morning head butting the wall).

    I don't remember the last time I had a full night sleep.......

    He woke for breakfast, but has fallen asleep again. He probably won't wake again until lunch time now. This has become our routine.

    It's getting harder to pick him up when he falls, to the point where I have hurt my back, and my left shoulder and arm is in constant agony.

    1 comment(s)
  • 13 Feb 2013 - 19:16
    Tammy Woods's picture

    My husband (Marty) was diagnosed with an inoperable tumour on his brain stem on the 15th of May 2012. They were unable to biopsy it due to its location, but we were told it was aggressive and he would have less than 2 years to live.

    He started a 6 week (30 treatment) course of radiotherapy in June/July 2012, and had MRIs every 6 weeks to check the progress. Our oncologist put him on chemo tablets and he completed his first and only round in December 2012. He got so sick from it that he decided to cease all treatment and let nature run its course.

    0 comment(s)
  • 10 Feb 2013 - 20:35
    louie3754's picture

    Geoff finally came home from hospital yesterday, now on warfarin so has to go to his gp tomorrow and have an INR, just another hurdle to deal with I suppose. I went down to see him today, took Mum but have only told her a very shortened version of the real story, at 92 and being in a nursing home I doubt that she could cope with the cancer part. Geoff looked really pale, and is really thin, is thin anyway but after 2 1/2 weeks of either no food or fluids I suppose it,s only natural that he would lose weight,just was a bit shocked when I saw him.

    5 comment(s)
  • 9 Feb 2013 - 12:52
    cmclc's picture

    Its been 11 days since I lost my husband of 35 years to pancreatic cancer that spread to the bones, we've been together for 42 years, we were high school sweethearts. I don't know how to go on without him, He fought so hard to stay alive, I know he did it for me, he was worried that I wouldn't continue to live, I promised him I would take care of myself and I would be okay. I lied, I did that so he could pass and the suffering he endured would stop.

    2 comment(s)
  • 8 Feb 2013 - 17:43
    kate_cancervic's picture

    Hi All,

    I have some news to share, which many group members will already be aware of - after much thought, I have made the decision to return to the world of clinical cancer nursing and have accepted a position in a cancer care unit close to my home. I will thus be finishing up my role with Cancer Council and the Internet Support this afternoon.

    Working with this remarkable community has been an absolute privilege – thank you for sharing your experiences, thoughts and feelings so openly – I have learnt so much from you all.

    1 comment(s)

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