Latest Blogs

  • 2 Nov 2013 - 08:15
    maggie ganderton's picture

    Hospital check up (radiation clinic) left me feeling like I'd been shaken around, chewed up and then spat out again.

    1 comment(s)
  • 29 Oct 2013 - 20:09
    Bluenose's picture

    I had been diagnosed with adenocarcinoma nslc4 last end of August. I goes to Princess Mary Cancer Clinic here in Westmead NSW. i had my scans, biopsy and DNA. I've seen my oncologist but I don't know what is happening because every week we rang them up nothing is progressing. I am very worried and anxious what is going on because it's been nearly 8 weeks to wait this long. My cancer had spread to my limpauge and bone. When I saw my oncologist she has 3 options for me. 1. Chemotherapy - which is the basic. 2. PD1 - which is suited for me. 3. ALK- fusion gene.

    0 comment(s)
  • 29 Oct 2013 - 15:39
    Catherine251's picture

    Hi all,

    11 comment(s)
  • 27 Oct 2013 - 14:11
    Melanie's picture

    It is confronting to watch someone young, strong & capable disintegrate in front of your eyes.

    Today's a bad day, Ben got up to make breakfast (he loves to make food for his family- that's his passion) He cleaned up, went outside for 5 minutes to clean up after the dogs & has limped back inside to go back to bed.
    He's struggling to walk, it's painful to watch.

    It's hard to stay positive, but I am trying! I need to for him.

    I clean, & I clean & I clean
    Distraction keeps the mind free of the "what if's"

    2nd lot of avastin tomorrow.

    1 comment(s)
  • 25 Oct 2013 - 18:38
    pambai's picture

    Hi, my name is Philip and I am married with 4 children. We live in Seymour, VIC.

    My wife's eldest brother (his name's Charles) has been diagnosed with Kidney Cancer (Stage 4) and the doctors in PNG are saying that they cannot treat him or do anything to save him. Only option for him now is to hope in God for a miracle healing.

    2 comment(s)
  • 25 Oct 2013 - 12:11
    missy83's picture

    Hi everyone,I am 30 yrs old and have been diagnosed with cervical cancer approx. 7 weeks ago.I am having a bit of a struggle at the moment.I guess I am looking for people going through the same or similar thing that can relate to what I am going through

    2 comment(s)
  • 15 Oct 2013 - 23:50
    Melanie's picture

    So, we have come to those forks in the road where you have to make life changing decisions with your loved ones.

    We have chosen (or for lack of choice- it has chosen us) to go down the avastin path. First treatment was on yesterday. My bank account will feel substantially lighter after it, although I would give every last cent for his health.

    7 comment(s)
  • 15 Oct 2013 - 00:19
    Carolinejane's picture

    Need to find out where I can get advice to give eldest son to get help dealing with his loss and helping him deal with his sister aged 13 behaviour, she is acting up and they need help so they can learn to grieve together and not fall apart. Mother passed away aged 42 two months ago the only true help they have is from aunt who herself is only 23 please anyone who can give advice they live in the Campbelltown area nsw

    6 comment(s)
  • 14 Oct 2013 - 19:27
    Deni 55's picture

    Couldn't have got through the 2012 without all you wonderful bloggers. Wasn't able to get to counselling so thank you everyone.

    Whether you are caring for your loved one or now grieving, counselling through Palliative Care was amazing and got me on track.

    Remember, you can have Pall Care Counselling when you need it. I wish I had taken it earlier. My Kevin said no and I was happy to go along with that. He didn't fully understand what it was about. They could have also helped with things like filling out forms for Centrelink etc. Make life a bit easier and accept the help.

    4 comment(s)
  • 13 Oct 2013 - 23:48
    Melanie's picture

    We are so very blessed & lucky to have had a small reprieve in our BT journey. But like all things, it never lasts long enough.

    Ben had his scan done last week & we found out on Friday, 2 days before his 36th birthday that it has grown. And unfortunately quite a bit.

    Ben is now suffering a numb left side, it makes walking a little difficult as he struggles to feel his foot until it has made full contact on the ground.

    We go back to the discussions of funeral arrangements & videos for the kids.

    It's a saddening experience.

    3 comment(s)


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