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  • 8 Mar 2015 - 14:58
    GeeGee's picture

    I feel so helpless and anxious with how Daz is right now. He is in so much pain with his headaches and the pain meds are making him sick and aren't really doing much for the pain. He has been in hospital because of his headaches and when he came home he felt a whole lot better but it only lasted half a day, now he is worse than he was before. He is staying with me at the moment because his parents aren't taking his pain seriously. They just leave him in his room and don't check on him so he has to find them if he needs anything, not what he needs at all.

    2 comment(s)
  • 3 Mar 2015 - 20:36
    Paulpwtierney's picture

    Finally met the oncologist and got the news. It is a P something cancer in the tonsils. Treatment will be 7 weeks radiology ( 5 per week ) and chemo on day one of week one , four and seven. A tube will be inserted into my stomach as I will not accept a temporary one in the nose. It will be seven weeks of hell but I need to be positive , certainly more positive than I am now. I was told in no uncertain terms that if I am this positive now and treatment has not even started then how will I cope with treatment. I need to pull my socks up and message has been received loud and clear.

    2 comment(s)
  • 27 Feb 2015 - 12:35
    Paulpwtierney's picture

    Yesterday afternoon and night were particularly bad. I succumbed to a massive headache and shortness of breath. My wife sensed that I am " submitting " and exhorted me to " fight. " I reminded her of her " pledge " to not make me suffer unnecessarily. She reminded me of my responsibility to her and our two young daughters. We agreed to focus on her getting her driver's licence asap as I starting to struggle to drive and almost had an accident this morning.

    3 comment(s)
  • 25 Feb 2015 - 18:03
    Susy's picture

    I am upset today as my husband is exhibiting difficult behaviours,,,
    No matter what I do , he complains,,,,does not want to eat what I cook, says it tastes bad,,,
    Argues about everything I say to him,,, was listening g in to my phone conversation today and shouting out " stop talking rubbish" , and words that would make a sailor blush too,!!!!
    He refused lunch, then complained he never gets anything to eat here,,..
    Called me for everything threatened to sell the house and change his will....
    All because I was on the phone talking to a woman he dislikes,,,,
    ( he dislikes all my friends)

    4 comment(s)
  • 25 Feb 2015 - 18:02
    Susy's picture

    I am upset today as my husband is exhibiting difficult behaviours,,,
    No matter what I do , he complains,,,,does not want to eat what I cook, says it tastes bad,,,
    Argues about everything I say to him,,, was listening g in to my phone conversation today and shouting out " stop talking rubbish" , and words that would make a sailor blush too,!!!!
    He refused lunch, then complained he never gets anything to eat here,,..
    Called me for everything threatened to sell the house and change his will....
    All because I was on the phone talking to a woman he dislikes,,,,
    ( he dislikes all my friends)

    0 comment(s)
  • 25 Feb 2015 - 18:02
    Susy's picture

    I am upset today as my husband is exhibiting difficult behaviours,,,
    No matter what I do , he complains,,,,does not want to eat what I cook, says it tastes bad,,,
    Argues about everything I say to him,,, was listening g in to my phone conversation today and shouting out " stop talking rubbish" , and words that would make a sailor blush too,!!!!
    He refused lunch, then complained he never gets anything to eat here,,..
    Called me for everything threatened to sell the house and change his will....
    All because I was on the phone talking to a woman he dislikes,,,,
    ( he dislikes all my friends)

    0 comment(s)
  • 24 Feb 2015 - 18:19
    Jodii's picture

    And haven't we come a long way in the last 3 weeks! Erik has gone from sleeping 2 - 3 hrs per night to getting the pain management sorted out and sleeping up to 10 hrs at night! What a contrast. We have changed his meds twice in an effort to stop a stuttering that has developed as a side effect to one of the meds. We still don't know which one - but suspect the Lyrica. He is starting to feel quite tired regardless of whether or not he has had a full nights sleep and is realising his limitations now at last.

    3 comment(s)
  • 23 Feb 2015 - 19:36
    Amelia Jane's picture

    My husband had non smokers lung cancer which had spread throughout his body. He was diognosed 2 years ago.
    He passed away 2 weeks ago. I am finding it really hard to cope. We have 4 children. 27, 23, 17 and 15. I am trying to stay strong for them, but all I keep thinking is I want to go with my husband. We met when I was 16, he was all I new. We did every thing together. I would like to know how other people have got through.

    0 comment(s)
  • 22 Feb 2015 - 23:15
    GeeGee's picture

    I am so worried about Daz. He has been feeling so sick and is struggling to eat most of the time and the smell of food when I eat makes him throw up. I feel so sorry for him having to go through this and I feel so helpless, there is nothing I can do to make him feel better. He sleeps most of the time and wakes up with very bad headaches. I am starting to think this is the beginning of the end. I know I should be more positive but I also have to be realistic. He has a busy week of appointments this week and is starting a new trial so I am hoping this will have him feeling a little better soon.

    2 comment(s)
  • 20 Feb 2015 - 14:35
    Jodii's picture

    Two days ago Erik had his usual radiotherapy session followed by an appointment with the Radiotherapist. After discussion it was decided to change some of his meds to find out which one is making him stutter really badly (so much that he can't string a sentence together and has to have time off work). It was decided to change the Tramadol and it was to be substituted with Fentanyl patches instead.

    5 comment(s)

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