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  • 27 Mar 2014 - 21:09
    joybell16's picture

    Just complete 4th treatment of 12 treatment cycle. CA 19-9 result is 9600 Sad Was 1200 at diagnosis (mid Nov), 2062 at post op check up (mid Jan) and 6050 2 weeks ago (10 March) Sad Not sure what is going on but as the tumour was inoperative and has metastisized... does this mean the chemo is having no effect? Two gastric bypasses performed instead of a Whipple.

    1 comment(s)
  • 22 Mar 2014 - 19:40
    Star's picture

    its been over a year since mum passed away. in the past few months i cant even look at her pictures. when i feel sad i push it out of my mind. i feel numb when it comes to thinking of mum. is this normal to feel numb? i feel scared that if i let my self go and really feel my pain i wont handle it...am i not letting myself grieve?

    1 comment(s)
  • 17 Mar 2014 - 22:16
    wasdedye's picture

    Well today I got a reality check for myself and it is only just sinking in.

    I had a lump in my neck which took over 6 months to diagnose to finally have it operated on the 5th feb removing my left thyroid. Turns out its cancer so have to have the other side removed on the 5th march as well but its ok as thyroid cancer is the best type to have as the prognosis in 10 years where others are about 5.

    1 comment(s)
  • 12 Mar 2014 - 19:12
    britt-j's picture

    every day seems to get harder and harder, I'm finding it tougher to cope with what has happened.

    2 comment(s)
  • 28 Feb 2014 - 12:52
    GeeGee's picture

    My boy friend has upset me so much today I am typing this with tears running down my face. He is at the hospital today and I got all ready to go with him so I can hear what the doctors have to say but he told me he didn't want me to go with him. I was stunned, all I could do was go into my room and close the door. He left without me. I feel he has shut me out completely. I get that he doesn't want to know results of his ct scans ect. but he has to know I want to know. He said he doesn't want to know results because it doesn't change anything. I disagree with that, it changes everything.

    5 comment(s)
  • 27 Feb 2014 - 21:36
    joybell16's picture

    My husband was diagnosied in mid November with small bowel/duodenal cancer (poorly differentiated) which has infiltrated into head of pancreas also. Whipple was to be undertaken 9 Dec but laparoscope revealed metastises to retroperiteneal tissue and a couple of spots to outside of stomach lining so 2 gastric bypasses performed as palliative treatment. Now on 2nd cycle of chemo (of 12 planned). Oxaliplatin/Leucovorin by IV and then Fluorouracil for 2 days by pump at home.

    2 comment(s)
  • 27 Feb 2014 - 15:37
    RIDNLO's picture

    ive finally finished radiotherapy and chemotherapy. at last I can properly get on with moving forward without tiring so quick. its been just over a month and a half and im feeling good about myself. I started back at work last Tuesday and Thursday 8 till 12:30 and I feel great. so im pacing myself at work and Im lucky enough to have the full support of the service manager behind me all the way. wow it seems so long ago (this time last year) I had surgery for a brain tumor on the left hand side. it's been a year of hard times getting back to this stage, but hey alls well ends well.

    0 comment(s)
  • 24 Feb 2014 - 15:32
    Kazza155's picture

    It's only been just over 2 months since I was put on the 'watch and wait' approach for Follicular Lymphoma.

    I have been having periodic sensations in my left arm for while. I mentioned this to my GP a few weeks ago but he didn't seem to think it was anything.

    This morning I woke with swelling above my left collarbone.

    I called the cancer care nurses and my oncologist wants an urgent CT, which I have an appointment for tomorrow and then an appointment to see him on Thursday, 27 February 2014.

    2 comment(s)
  • 24 Feb 2014 - 11:46
    felixr_cancercouncilnsw's picture

    Hi All,

    Cancer Council NSW offer a free national telephone support group (TSG) for people who've been bereaved through an adult dying of cancer within the past two years.

    The Life After Loss group is led by two trained facilitators and runs for 6 sessions over a period of three months.

    Dates for the Life after Loss Group in 2014:

    - 10 March - 26 May
    - 30 June - 8 September
    - 15 September - 24 November.

    The next Life After Loss Group commences on Monday,March 10.

    0 comment(s)
  • 21 Feb 2014 - 10:26
    Sidney Williams's picture

    I was diagnosed with Carcinoid Syndrome in February 2012. My symptoms then were severe flushing and severe itching. I have had Liver ablation-partially succesful,Liver biopsy and am on Lanreotide 120 mg every three weeks. Greenslopes Hospital in Brisbane have been very helpful. I now await possible GA Dotatate treatment at the Royal Brisbane Hospital Nuclear medicine dept.
    Apart from flushing and itching I keep well. I am trying a sugar free and carbohydrate free diet at present hoping it may help.

    0 comment(s)

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