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  • 7 Jul 2014 - 17:10
    <none>'s picture

    Hi All,

    Cancer Connections welcomes and encourages the sharing of relevant and cancer-specific resources by community members.

    Cancer Council also have a duty of care to all to ensure that information contained on this website is evidence-based, is not the passing off of a service or product and will not cause harm.

    More information on this policy is available here: www.cancerconnections.com.au/content/how-use-website

    0 comment(s)
  • 27 Jun 2014 - 15:51
    Sailor's picture

    Hi everyone

    It is quite a while since posted on this part of the site. It has been a bit of a traumatic journey over the last twelve months.

    For those new to the site I have advanced metastatic prostate cancer first diagnosed sixteen years ago. So I am one of those who has lived through a lot of treatment and with cancer for a long time.

    2 comment(s)
  • 27 Jun 2014 - 08:46
    Stacka82's picture

    Hi Everyone. I'm 31 years of age and in April I had finished my daily job and attended a dinner with friends and that night woke up vomiting. Of course my partner and I thought I had food poisoning until later that night (2.30am) my partner woke to me having a seizure and I was rushed into hospital. After MRI scans I was told I had a grade 3 astrocytoma brain tumour behind my right eye. I had this operated on within three days and as the surgeon at the Royal Melb told my family she completely cut n cured this out oft brain.

    0 comment(s)
  • 15 Jun 2014 - 05:49
    madmik's picture

    Well now it is happening and i feel like I should not be here right now, writing this I mean, but I am and it is real. There, I have said it and I feel better, I think.
    My 14 year old boy will not talk to me about this and I completely understand, he is a loving and caring son as usual but will not talk about the cancer. My 12 year old is coping well, or is he. I feel so blessed that my boys give hugs and kisses as usual and are making life seem so normal.

    16 comment(s)
  • 12 Jun 2014 - 21:57
    Ratagan's picture

    Hi
    Firstly my apologies for anyone who thinks my contribution to this site is inappropriate. I live in the UK (not a POM as I'm Scottish Smile so I totally understand if you ignore this post and contributions from non Aussies are considered inappropriate.

    I recently started writing a blog about my experience of living with my brain tumour diagnosis and its impact on my family. The blog has been reasonably well received by fellow patienst and their families and in fact has been starting to get hits from Australia, New Zealand, USA etc.

    3 comment(s)
  • 9 Jun 2014 - 23:25
    Cadolp's picture

    Purchased a lot of cards to brighten up my sisters day.....I hope it works.

    0 comment(s)
  • 8 Jun 2014 - 12:08
    Cadolp's picture

    I'm a bit lost. My mum and sister both diagnosed with Breast cancer, two different types. Mum is doing good, clear for the past 18 Months but what do I say to my sister, I live far away and can't just hop in the car to see her, which I really want to do. What do I say...what can I say....any help is welcome.

    1 comment(s)
  • 20 May 2014 - 11:51
    Glenda Ward's picture

    Well everything has moved so fast in the past few weeks and my head is spinning. My brother who I am the sole person who is responsible for all medical decisions has finally been diagnosed with lung cancer and now after PET scan they have found he has throat cancer as well. He lives in a supported accommodation facility and has for the past 6 years after having an acquired brain injury because of alcohol abuse, sad given that he is only 66 this year.

    0 comment(s)
  • 18 May 2014 - 00:50
    NickB's picture

    I saw an orthopaedic doctor following a MRI scan. He thought it was a chondrosarcoma originating in the left ilium pelvic wing and set up core biopsy and PET scans to find out what it was.His treatment plan was to cut it out, taking out the left ilium crest along with the tumor. I asked about how disabled I would be after the surgery and said I would be almost not disabled at all and could walk and mumbling quickly about "with calipers". And when I asked for more info he got angry and said it would kill me otherwise.

    0 comment(s)
  • 15 May 2014 - 13:28
    Sidney Williams's picture

    I am still waiting to be accepted into the Lutate program at RBWH. The program Director has been on sick leave for 7 weeks. I may do the Study trial of LX 1606 (telotristat etiprate)which suppresses the symtoms of Carcinoid Syndrome. I still have 3 weekly injections of Lanreotide. First week I am almost symptom free, then 2nd week just average, then 3rd week symptoms return (flushing and severe itching caused by Histamine emissions from the neuro-endocrine tumors in the liver) However I thank God I am still alive and fairly well after 2 and a half years.

    0 comment(s)

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