Latest Blogs

feeling confused and helpless

17 May 2013 - 14:21

My boyfriend has quit quitting, he is smoking again, I am so worried, he has developed a cough and sniffles a lot, I think its because he is smoking again but cannot say anything to him because he snaps my head off every time I try to say anything to him about it. He seems to think because the cancer removed from his lung turned out to be melanoma that smoking is ok and he has to stay out of the sun and all will be well. How can anyone think it is ok to smoke.

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Life's too short!

17 May 2013 - 10:50

I'm writing today as I think it's easier sometimes to cope. I got told a month ago that there is nothing more the doctors can do so I'm now classed as in curable. I'm undergoing Pallative treatment as my cancer has now spread to my liver, bones and lungs. How do you fit a lifetime into a few months? I have only had a few meltdowns as I'm actually angry that my life is going to end. I'm still young and have so much to look forward too. I look at my children and of course you do the whole 'Why do I have to be so lucky'.

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Tell me it's going to be ok

12 May 2013 - 21:45

Had a great Mother's Day with my husband and family. My husband has had two lots of chemo so far he has a week off then starts again. I go along felling really positive and confident that he is going to beat this, then I hit a low point were you think what if he doesn't. I don't think I could manage without him. I wish someone could tap us on the shoulder and say don't worry every thing is going to work out ok.

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Cervical Dysphagia, Fibrosis

11 May 2013 - 06:54

In 2012, I developed Radiation Induced Fibrosis (RIF) or Radiation Fibrosis Syndrome (RFS), more specifically sudden Late Onset Radiation Induced Fibrosis; Velopharyngeal Incompetence & Severe Dysphagia (fibrosis from the Soft Palate down to the Upper Esophageal Sphincter, inclusive).

My Current Treatment: SLP exercises, "Smooth Pureed" diet plus Resource Plus medical drinks and Pentoxifylline & Tocopherol (Vitamin E) antioxidant therapy.

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Cricopharyngeal Myotomy, Fibrosis

11 May 2013 - 06:52

In 2012, I developed Radiation Induced Fibrosis (RIF) or Radiation Fibrosis Syndrome (RFS), more specifically sudden Late Onset Radiation Induced Fibrosis; Velopharyngeal Incompetence & Severe Dysphagia (fibrosis from the Soft Palate down to the Upper Esophageal Sphincter, inclusive).

My Current Treatment: SLP exercises, "Smooth Pureed" diet plus Resource Plus medical drinks and Pentoxifylline & Tocopherol (Vitamin E) antioxidant therapy.

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Pharyngoesophageal Junction Dilations

11 May 2013 - 06:49

In 2012, I developed Radiation Induced Fibrosis (RIF) or Radiation Fibrosis Syndrome (RFS), more specifically sudden Late Onset Radiation Induced Fibrosis; Velopharyngeal Incompetence & Severe Dysphagia (fibrosis from the Soft Palate down to the Upper Esophageal Sphincter, inclusive).

My Current Treatment: SLP exercises, "Smooth Pureed" diet plus Resource Plus medical drinks and Pentoxifylline & Tocopherol (Vitamin E) antioxidant therapy.

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Pharynx- Esophagus Junction Dilations

11 May 2013 - 06:46

In 2012, I developed Radiation Induced Fibrosis (RIF) or Radiation Fibrosis Syndrome (RFS), more specifically sudden Late Onset Radiation Induced Fibrosis; Velopharyngeal Incompetence & Severe Dysphagia (fibrosis from the Soft Palate down to the Upper Esophageal Sphincter, inclusive).

My Current Treatment: SLP exercises, "Smooth Pureed" diet plus Resource Plus medical drinks and Pentoxifylline & Tocopherol (Vitamin E) antioxidant therapy.

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Late Onset Radiation Induced Dysphasia

11 May 2013 - 06:39

In 2012, I developed Radiation Induced Fibrosis (RIF) or Radiation Fibrosis Syndrome (RFS), more specifically sudden Late Onset Radiation Induced Fibrosis; Velopharyngeal Incompetence & Severe Dysphagia (fibrosis from the Soft Palate down to the Upper Esophageal Sphincter, inclusive).

My Current Treatment: SLP exercises, "Smooth Pureed" diet plus Resource Plus medical drinks and Pentoxifylline & Tocopherol (Vitamin E) antioxidant therapy.

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feeling better about things

9 May 2013 - 14:45

Today I am feeling much better about the things that are going on in my life. Its amazing how much a little information can make all the difference. Only a couple of days ago I was wondering how I would ever get through Darryn having melanoma. Today I feel bad with my own health issues but I feel much better than I have in a long time. We went to Darryn's G.P. that he saw up on the sunshine coast where we used to live because He trusts him and wanted him to explain things that we were worrying about.

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Carers are love

9 May 2013 - 11:26

Love suffers long and is kind; love does not parade itself, is not puffed up; does not behave rudely, does not seek its own, is not provoked, thinks no evil; bears all things, believes all things,hopes all things, endures all things. Love never fails.

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